Re: [TMIC] Drug testing

Hi Gaylon, My husband who is a computer aided designer had to have a drug test. They DID NOT ask him if he was taking any meds. No one interviewed him when he had the test. They took just a sample and a week later he was told he passed. I worried he might not pass as he was on meds. He actually had

Re: [TMIC] Pray for Jude

If it is the gut thing, my father had it bad when he was being treated for cancer. He finally did get rid of it by eating a "lot" of yogurt. He almost lived on yogurt. Natalie Boyles On Feb 13, 2008 2:14 AM, <[EMAIL PROTECTED]> wrote: > Hi Rick, > > Is it possible tha

Re: [TMIC] HGH Ttherapy human growth hormone

Yes, but HGH can be very dangerous thing. Checkout LDN. Natalie On Dec 27, 2007 10:32 PM, sal r <[EMAIL PROTECTED]> wrote: > has anyone ever thought about it for treatment? > > -- > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it > now.

Re: [TMIC] my first time to vent!

HI Randy, I really doubt very much it is you. I have been where you are and in some ways still am. My illness started while I was still in college, I started having problems before I could attain many of my life goals. It did effect my intellect and many academic undertakings that at one time would

Re: [TMIC] scissoring legs

Oh my I can barely hop, if at all. Not sure if it is hop or a stumble. And, skipping is totally gone. It is as if my body does not comprehend what my mind is telling it to do. It is strange. I wonder why all neuros do not ask us to try it. And, I wonder why this does not show up on the nerve conduc

Re: [TMIC] this is long but very worth reading....i definitely know it can help

Hi Sal, I like to try vitamins and herbs or most anything that might help. I just ordered some benfotiamine, but got mine from vitacost.com as I use them a lot. Today I resorted to prednisone as I started getting my unbearable pain back again. I cannot afford the benfotiamine, but I cannot bear the

Re: [TMIC] Swollen Hands

Sue is right about go to an emergency room if that is your only option. Some of my worst health problems started with a blood clot that caused my left arm to swell to huge proportions. Please do not wait too long to have this checked, like I did. My swollen arm had nothing to do with TM. The blood

Re: [TMIC] Pain

Hi Natalie, Why not try changing your family doctor. Sounds like he is stereotyping and treating you as if you were an anxious and neurotic female. The aspirin dose at that level is what they prescribe to deter heart attacks. And the Zanax, alone like that, is what they give patients when they do

Re: [TMIC] Pain

Hi Kevin, Please be careful if you are sensitive to cymbalta. I became extremely ill when taking it. I too got sick in my stomach from it and felt very ill. Had it been any worse, I would have needed to go to the emergency room. Luckily I was able to wait for its effects to wear off. I do not know

Re: [TMIC] my introduction to the group

Hi, I had much improvement over time and then it left. It was almost unbearable at times. Going to chiropractor helped me a lot. Actually as neuro told me to go to one. It did come back now and then, never as bad as the first time, but would go away after a while. It has now been gone for many yrs

Re: [TMIC] Depressed and no one to share with but you

Hi Regina, So sorry your surgery was so disappointing. Don't give up hope. I have a cousin who for yrs could barely walk and had terrible pains. He used a scooter. He had had several back operations and most of them only made things worse. I saw him last week for the first time in many yrs and he i

Re: [TMIC] Anyone else?

LOL Larry, I use duct tape for many things but this is one I never, ever thought of. BTW, how much hair do you have on your head? Don't let it grow Natalie On 8/10/07, Larry Throne <[EMAIL PROTECTED]> wrote: > > > > Duct Tape! Place one end on the head board then go under the chin, back > up

[TMIC] Re: OT aspirin

Hi Frank, Do you take the regular dose aspirin or the smaller dose some recommend for heart prevention. That always has me confused, which to take. Thanks Natalie On 7/25/07, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote: > Has anyone taken vitamin B6 and noticed any difference in their numbness

Re: [TMIC] aspartame

aspartame raises the level of phenylalnine in the blood*. Some people use phenylalanine to ease pain. I think any sugar is bad for people, but I do find when I drink something with aspartame in it I hurt less. I wonder if anyone will really ever know the answers about aspartame. Natalie Boyles On 7/14/07

Re: [TMIC] Cymbalta questions.

recommended for neuro type pain. I tolerate Sinequan extremely well and I only need to take a 25mg PM dose. I still cannot walk real far and if I try to do much I will get pain. But, I can do more and I am no longer in constant pain and my terrible spasms are gone. Natalie Boyles On 7/6/07, Kevin

Re: [TMIC] Amantadine

Hi Bill, Go to www.yahoo.com and do a search using the words, "Amantadine fatigue." You will get lots of results that show amantadine's use in regards to fatigue. It is used a lot for fatigue by people who have ms.. Natalie Boyles On 6/27/07, Bill and Mollie Wimberly <[EMAIL

Re: [TMIC] OT: Doctor won't refill medications.

Hi Kevin, You need to do what I am going to do - stop going to the doctors unless I am dying. And, then, I guess I will not need them. I do not think they can help some of us. Just the way it is. So, I will go only when there is no other option. I will go for thyroid blood test, perhaps a mammogra

Re: [TMIC] RE: WARNING. Someone tried to send you a potential virus or unaut...

Hi Everyone, It is very highly in all probability, not a virus. Many virus programs may have found it to be a possible threat. If you look at the warning it says "potential" virus and "unauthorized code. The card was a clickable link and that coding may have set off alarms in some virus programs.

Re: [TMIC] Bee Venom Therapy

I took the LDN and wrote about it several times to this list. It worked well, but I could not get a doctor to prescribe the dermal type and the oral started upsetting my stomach. Since there is no cure for what we have I thought the LDN was worth a try. I had a month of feeling pretty normal. It w

Re: [TMIC] double vision and dancing eyes...

How can he tell its not the muscles or nerves? Did he do tests? You have something wrong, as bouncy, double vision "ain't" right. I have read that you can have lesions, but they may not be visible on even today's high tech mri machines. It wasn't until I had mri's on the newest of machines with ce

Re: [TMIC] difficulty eating

Hi, I was wondering if any of you have had this problem. Sometimes I am more numb than usual and at these times I have problems with eating. I will be eating and suddenly I can no longer swallow. I then must vomit up the food that I have been eating. Never figured out from how far down the food is

Re: [TMIC] OT: Some Better Pet Foods Tainted

best. Natalie Boyles - Nutro Natural Choice Pet Food Class Action *PRESS RELEASE* *FOR IMMEDIATE RELEASE* *CONTACT: Russell Keith * *Monday, May 14, 2007 (305) 358-6555* *Nationwide Class Action Lawsuit Filed Against Pet Food Companies and Retailers For Misleading Consumers Regarding

Re: [TMIC] OT OT: RANT WARNING

parties involved and I did not need to do a thing. So, I would think either a state or federal Senator or Rep should be able to help you. I never knew they would go to so much trouble for just an "unknown" like me, but they did. Good luck, and hang in there. Natalie Boyles Harrisburg, PA

Re: [TMIC] Da factx

Hi Bobby Jim and Everyone, A neurologist I saw in 2005, who herself has MS, told me that TM is now considered under the "umbrella" of diseases covered by the MS foundation. So, guess we are all in the same family now. Natalie On 5/15/07, bobby jim hijar <[EMAIL PROTECTED]> wrote: As long as th

Re: Fw: [TMIC] computer desk, wheelchair friendly

I found one at Office Max.It is nice sized. I think it was a Souders but not sure. Guess would need to take the wheelchair along or measure. It will not work unless the wheelchair armrests are the lower half type(not sure how to explain that). Office Max had a lot of desks I think would work. I am

Re: [TMIC] Lyrica

Hi Gunny, Do a www.yahoo.com search using the words: Lyrica and Transverse Myelitis Guess do a google.com search too. I did find lots of good links on yahoo. I dont take Lyrica. I am still working with the Low Dose Naltexone off and on. It makes me sick after a while, but boy it can work wond

Re: [TMIC] Another Symptom

Okay you guys, you sound like my husband and he is healthy --- I wonder. He flaps his arms and jerks his legs in his sleep so badly, I must leave the bed. If you find an answer to this dilemma please let me know about it. I am tired of being beaten. Natalie On 5/3/07, Alton Ryder <[EMAIL PR

Re: [TMIC] thanks for rollator suggestions!

Hi Kevin, All your emails about a rollator have me thinking of getting one. I do not go many places anymore, just stay around home. And, I do have problems getting around at home too. I found a video of the Hugo at the link below. It does fold and looks real nice. I am glad you brought up the ques

Re: [TMIC] Swelling legs - Larry

*Life Gear, Motorized Oxycycle* I found it at the site below has it for $99 http://www.allegromedical.com/browse/ProductDetail.do?pid=211013&utm_source=YSM&utm_medium=ppc&utm_term=lifegear+motorized+oxycycle&engine=yahoo!8880&keyword=lifegear+motorized+oxycycle&OVRAW=Life%20Gear%2C%20Motorized%20O

Re: [TMIC] OT pet food recall at more stores than walmart

Hi, the dog food recall is not only for dog food at walmart. It is for brands found at pet stores, feed stores and more. Here is the link that lists all of of the foods. On the news they said to check often for updates. http://www.menufoods.com/recall/ Recalled Dog Product Information Recall

Re: [TMIC] OT Dog & Cat Food Recall

This is such a large recall, I thought some of you might want to know about it. Please read if you have dog or cat and feed wet/canned food. There is additional link to all the different effected brands in the article. Looks like it covers most brands sold. Natalie Boyles http://news.yahoo.com/s

Re: [TMIC] fine print and old eyes

If you use ie or like me use foxfire browser you can make things larger by going to "view" on the tool bar of the browser and increasing the text size. I must do this and I also use nothing higer than 800x600 resolution. If you use higher resolution you will for sure strain your eyes. I have never

Re: [TMIC] medications and supplements

Hi Frank, These are perna green mussels. They are given to dogs with arthritis and joint disease.The suppliment is glycoflex. It is just a well know fact among vets, dog owners, breeders. It works. You need to do a little research. If you do not know much about dog showing and breeding perhaps tha

Re: [TMIC] medications and supplements

The product they are selling is the very thing that saved my now 12 yr old dog from double hip replacement and the effects of severe arthritis. Dog people have been using this kind of supplement for yrs, so have horse owners. Guess now they have found it works for people too. If you have not trie

Re: [TMIC] medications and supplements

open to new things; especially when they make you better. You are the winner here, so do not worry what others think. Natalie Boyles On 1/18/07, Jenna Stentz <[EMAIL PROTECTED]> wrote: Frank, Do you really think I am lying? It's not who I am. I have medical proof of where I was

Re: [TMIC] TM Spasms

I have gotten much relief from spasms ( spine, legs, arms, abdomen, whole body) using LDN. I had extremely bad spasms. I had to take neurontin, valium, and darvocet and just go to bed. I have only had very mild ones since being on the LDN. I hardly ever need to take neurontin, valium or the darvoc

Re: [TMIC] low dose naltrexone

Hi Bob, I wrote to the list in Nov about LDN. I am still taking it and still having some improvement while on it. If you go to http://www.remedyfind.com/treatments/0/2165/ there are first hand accounts about LDN from people who have various illnesses. Also, here is a site that should help you.

[TMIC] TMIC: OT - cannot reach Paula Harris

the LDN. But, I think it is well worth the trouble of trying to find a good dose for myself. If you need any other information let me know. I can send you some links. Hope you are doing a bit better each day. Best Wishes, Natalie Boyles 2nd bounced email: Hi Paula, Neither of the two, Revia or

Re: [TMIC] Re: tmic-digest Digest V2006 #278

Hi Pam, I sent the following link in my last email. I am sending it again, as this is where you will find answers to your questions. http://www.lowdosenaltrexone.org/ * Latest News — November 2006 * * 2006 LDN Conference Multimedia *

Re: [TMIC] Question two

Hi, I sent the link to the pharmacy, because that is the pharmacy I used to get LDN, well actually 50mg tabs of Naltrexone. I have been trying to get a prescription for it from a doctor since August, but I have not had success. My family doctor is still reading up on it, the neuro I saw this summe

Re: [TMIC] TM Question

Hi All, Sharon mentions starting LDN for her MS. Well, it can also be used for TM. I started it a week ago. I have TM, not MS. I was to the pt of not being able to do very much. I had much trouble walking, with my bladder, numbness, awful spasms. I could not go anywhere I was a wreck. I was beginn

Re: [TMIC] Scooter recommendations?

Might find it here on Ibot site. http://www.ibotnow.com/ibot/reimbursement.html Natalie B On 11/27/06, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote: This may be a side topic, but, Does anyone know the requirements for getting help paying for an IBot?? Other than a rich uncle. F

Re: [TMIC] good & bad doctors

There is a website already that might be good for all of us to use. http://www.drscore.com/  It is free. Natalie B   On 11/2/06, Westgold <[EMAIL PROTECTED]> wrote: Hello -- I belong to several groups for cat health, and a couple of them have set up a FILE accessible from the group's home page at

Re: [TMIC] TM diagnosis

t maybe it is something we can discuss. Just my 2.3 cents. Larry in Oklahoma where it is beginning to look a lot like autumn! Larry Throne, MSW From: "Natalie Boyles" <[EMAIL PROTECTED]>To: "Tracey L. Black" < [EMAIL PROTECTED]>CC: tmic-list@eskimo.comSubject: Re

Re: [TMIC] TM diagnosis

Hi Tracey, TM effects people to different degrees. Your daughter hopefully is one of the more fortunate TMers. I have been sent to Hershey Med several times. Last time there the neurologist told me there was no such thing as TM and wondered what doctor had told me I had TM. I told him it was two d

Re: [TMIC] Be Careful When Exercising

Dear Jude, You are not insane. This is how it is. I have had TM or something, heck one doctor says yes, one says maybe you have had it and another looks at me like I am some freak of nature. We unfortunately seem to have acquired an illness/s that very little is know about. Doctors cannot even agre

Re: [TMIC] Re: tmic-digest Digest V2006 #230

I was wondering if there really is much difference between neurontin and lyrica. Could it be that since neurontin has gone generic the drug company needs to put out a new drug to generate more money. Neurontin is now very cheap. Lyrica is very expensive.   So, those of you who have switched, is Ly

Re: [TMIC]

I was wondering if anyone has found their blood pressure has been higher when taking neurontin. Natalie Boyles  On 9/29/06, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote: I take 600mg 4 times daily and absolutely know that it works for me.  I was taking it every 8 hours and the pain beca

Re: [TMIC] Re: Brain stuff or not

LOL Frank! Are you really serious about taking ones husband along so the doctor will believe them?  I never drag my husband along if I can help it.He only gets a few days off as is. And, I am a grown woman and I feel it would be like taking along a parent or guardian. Please tell me doctors do not

Re: [TMIC] OT Carpal Tunnel Syndrome

it until I cannot move my hands. And, I have a some problem areas in my cervical spine, so who knows if it would even help me.  Natalie Boyles   On 9/18/06, Kevin Wolfthal <[EMAIL PROTECTED]> wrote:   That's the problem.  After all the MRI's, EMG'S, etc, the best answer I

Re: [TMIC] p.s. Hard lessons to learn

ones, so one probably can never be sure if they have the best plan for them. There are just too many out there, and until you actually would try them, I doubt you can really tell how good they all. But, what I have is working.   Good luck with your decision. I hope this helps. Natalie Boyles Hugs to

Re: [TMIC] p.s. Hard lessons to learn

insurance.   I have lesions on my spine and brain, but the doctors cannot decide just what all is going on. Yesterday, I had another test for lymes and am hoping that may be part of my problem. Natalie Boyles   On 9/15/06, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote: I did a lot of searchi

Re: [TMIC] Re: tmic-digest Digest V2006 #185

tolerance.   I am even trying my best to be tolerant of your intolerance.  I thank you for this chance to practice tolerance toward intolerant people. Natalie Boyles   On 9/14/06, Krissy Z <[EMAIL PROTECTED]> wrote: yeah I was there when they wrote itand it seems most of those old

Re: [TMIC] Re: tmic-digest Digest V2006 #185

ir health problems. Natalie Boyles  On 9/13/06, Krissy Z <[EMAIL PROTECTED]> wrote: I've been quiet for a while about this, but you think you could cool the Caps lock? In the internt world its considered yelling :( hard to read too alot of times...ty.. [EMAIL PROTECTED] wrote: TO HEY JUDE

Re: [TMIC] No Mail

LOL, I did not even notice/know you were gone, . Did I miss some good drama. Darn. You will have to do it again. :) Natalie  On 9/11/06, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote: It sounds like many of you are not now nor have not gotten email since Thursday...   Does that mean tha

Re: [TMIC] am i getting worse?

Hi Krissy, When I take more than 300mg of neurontin a day I cannot remember things or think very well.I have friend who used to take neurontin and she was a total moron when on it. I also lose my balance, am tired, zombie like. The neurontin takes away my pain, my spasms, all the things it should,

Re: [TMIC] Brain lesions in TM???

Hi Sharon, I have more than a few brain lesions and some are where they would be in MS. But, radiologist and 2 neuros say I do not have MS.I would need to have more brain lesions in each of the places where I do now.  So, guess there are brain lesions in TM. But, now I have found that my TM diagnos

Re: [TMIC] Lipoma/hemangioma of the spine

everyone - possible lupus, or vasulitis or collagen disease, lymes or early demyelinating disease. So, all of you out there,  guess we should not bother to pay to have our mri's read, since it is all a bunch of lies. VBG Natalie Boyles  On 8/18/06, Jill Z <[EMAIL PROTECTED]> wrote: Hi Eve

Re: [TMIC] ACCEPTANCE/MAYBE EVEN GIVING UP

you say.   Sorry you have this. How did they figure out that the black dye had hardened? Did they do a test?  Natalie Boyles     - Original Message - From: Anne Shreve To: TMIC-List@eskimo.com Sent: Monday, July 24, 2006 1:44 AM Subject: [TMIC] ACCEPTANCE/MAYBE EVEN

Re: [TMIC] Questing and Rambling

I was a college student in the early days of my illness. It took me a while, but I learned it is best to learn to laugh at yourself. The comments are quickly said and just as quickly forgotten by the one who says them. They many times do not even realize they could be hurtful. The words can only hu

Re: [TMIC] OT- ON VACATION- OT

Have a wonderful vacation! Where can I purchase such a vacation, "break from all the problems, symptoms,etc., of Transverse Myelitis "? You be good. Natalie Boyles - Original Message - From: <[EMAIL PROTECTED]> To: Sent: Sunday, July 09, 2006 9:43 AM Subjec

Re: [TMIC] Social Security woes

I had to go to a lawyer to get my ss. They charged 30% of back money owed me. They did all the paper work, contacting doctors and of course writing to everyone and arranging everything. They also were at my hearing and presented my case. Since I did not feel well, it was nice to have the law

Re: [TMIC] New Neurologist

LOL!!! I have been going about it in the wrong way all these years. I will take your advice. Thanks, Natalie - Original Message - From: <[EMAIL PROTECTED]> To: "BobbyJim" <[EMAIL PROTECTED]>; "Natalie Boyles" <[EMAIL PROTECTED]>; <[EMAIL PROTECTE

Re: [TMIC] New Neurologist

and I must always fill out pages of history ahead of time for them. Natalie - Original Message - From: <[EMAIL PROTECTED]> To: "Natalie Boyles" <[EMAIL PROTECTED]>; <[EMAIL PROTECTED]>; "TMIC List" Sent: Wednesday, June 28, 2006 11:42 AM Subject: R

Re: [TMIC] RE: tmic-digest Digest V2006 #80

 "Most people have gone to too many drs. with no real results as far as I am concerned.  Be interested in hearing your take on this.  Take care,  Rosalie"   I think you may have hit it on the head; same for ms.  My first neuro sent me to a rheumatologist, then a rheumatologist sent me to a n

Re: [TMIC] New Neurologist

I do/did wonder why some doctors have their patients have yearly mri's or wonder maybe why some patients are able to have access to yearly mri's. I went to Johns Hopkins and my mri's were over yr old, but they did not do new ones. Hope this does not sound too bad. But do you, Frank, think that per

Re: [TMIC] Swelling in knees and NSAIDS

WOW Thanks so much for sending this. I told my "late" rheumatologist I had problems with NSAIDS. He said, NO, WAY and basically laughed at me. I hope he has become more educated by now. Natalie - Original Message - From: <[EMAIL PROTECTED]> To: "Grace" <[EMAIL PROTECTED]>; "tmic-lis

Re: [TMIC] Question re: Lyrica

Title: AOL Email Hi Jude and listers, Thank you everyone for the info on lyric and the other things that work.   Sorry to hear Jude, that you and others also had a bad day. And yes, today is another one, but I dragged myself out and hobbled along with my cane. I must have looked pretty bad,

Re: [TMIC] Question re: Lyrica

I just figured Lyrica was "another" drug similar to neurontin. But, from what I have been reading it appears this drug is better tolerated. So, for those taking it, could you let me know if it makes you feel like your drugged and spacey or not? I hate my spasms, but cannot find anything, that I can

Re: [TMIC] What do you take or do for spasticity?

I also take valium for my spasms. I had problems with many other meds and find valium does not effect me adversely. It also helps with the pain; guess it relaxes me. I have been using it for over 5yrs. I only take it when my spasms are really bad though. I like to save it for the worst of times, si

Re: [TMIC] Questions about weaning off Neurontin

There is a generic form of neurotin, gabapentin, that I used and is cheaper than brand name. If your program only covers the brand name, perhaps if you ask they might permit you to use the generic.    I have Humana PDP Enhanced S5884-005 medicare prescription plan. The pricing is different

Re: [TMIC] question

Hi, I found a good explanation for this here - http://experts.about.com/q/Oncology-General-Cancer-978/White-Matter-Disease.htm   Some of us go on to have white matter disease. The white matter contains the nerves that are covered with myelin. The white matter of the brain is white, due to the

Re: [TMIC] Questions!

what name is. I stopped the neurontin. I have not had any farther eye damage. Before her mentioning it, I had never heard neurontin could effect the eyes. Natalie  - Original Message - From: Krissy Z To: Natalie Boyles ; TM List Sent: Thursday, May 25, 2006 12:19

Re: [TMIC] Questions!

I had some eye problems when I was on neurontin and the opthamologist told me that neurontin can cause eye problems. I do not know about Lyrica, but perhaps it also effects the eyes. You should see an opthamologist just to be sure. I now have a permanently damaged eye. Not saying it was neurontin,

Re: [TMIC] OT ~ NONI JUICE - NO-NO

The following is some of my personal experience with noni juice. Some people I know have gotten relief from their arthritis with noni juice. And, some people have used it effectively for the arthritis in their dogs.  It has alkaloid properties similar to aspirin and so for many has much the

[TMIC] TMIC: Hi all

area has few neuros. And, actually I have seen more than a few of them already. Natalie Boyles