Re: [TMIC] Another unidentified becomes identified!

2008-03-10 Thread Neil & Wendy
My son Cole has TM. He was 6 months old, it will be 7 yeasr for him on the 15 of march. Cole is paralyzed from the chest down. He has autonomic dysreflexia and osteoporosis all because of TM. I kinds stay in the background.If you have any questions please ask. Wendy - Original Message

[TMIC] Cole( OT)

2008-01-13 Thread Neil & Wendy
I thought I would share with you Cole's good news. Cole is a huge fan of Ozzy Osbourne, I don't know where that comes from because I like country myself. I wrote Sharon Osbourne a letter telling her how much Cole love's his music, and sent some pictures of him derssed as Ozzy for halloween. Oz

[TMIC] Fw: mmantis1 sent you a video!

2008-01-13 Thread Neil & Wendy
YouTube - mmantis1 sent you a video! Subject: mmantis1 sent you a video! YouTube Broadcast YourselfT mmantis1 wants to share a video with you watch video Video Description 7 year old Cole and Dad jammin' at backyard party. Personal Message Cole has a

[TMIC] Fw: Looking for someone

2007-03-07 Thread Neil & Wendy
/index.php?id=18312 If you want to share your feelings with the list, you can forward that link for the people on the list to see. Take care, Debbie - Original Message - From: Neil & Wendy To: TMA/Deborah Capen Sent: Tuesday, March 06, 2007 4:31 PM Subject: Re: Looking

[TMIC] Dennis Galvin

2007-02-25 Thread Neil & Wendy
Hi Can someone tell me where Dennis Galvin works and the department. I am still tring to contact him. Thanks Wendy

[TMIC] Dennis Galvin

2006-12-13 Thread Neil & Wendy
I was just wondering if anyone has talked to Dennis Galvin? I never here from him anymore and I have emailed him several times. We email each other quite often, but he has not replyed. I'm very worried about him. Wendy (Cole's mom)

[TMIC] banding

2006-09-01 Thread Neil & Wendy
Hi  everyone,   Cole has been having pain in his sides on his ribs. It comes and goes. I was wondering if this could be the banding that everyone talks about. If so how do I make the doctors understand what I am talking about?   Any Ideas ?   Thanks Wendy

[TMIC] Thanks

2006-08-23 Thread Neil & Wendy
I just want to thank everyone for the Birthday wishes for Cole.   Wow 6 already !!

[TMIC] My Thoughts

2006-07-21 Thread Neil & Wendy
Well me being the one who cares for Cole. I have to watch and deal with all his pain and problems.I give him his suppositories, I catheterize him, I give him all his meds, I transfer him around,bath him, monitor his blood pressure.I try not to let him see how much it upsets me. He has no ide

[TMIC] Kids camp

2006-06-11 Thread Neil & Wendy
Hi , i received an email from Debbie Capen about a camp at Paul newman's Hole in the Wall camp in summer of 2007.Does anyone know the dates of this camp? Thanks,     Neil 

[TMIC] address for neil and wendy ross

2006-05-06 Thread Neil & Wendy
Our email is  [EMAIL PROTECTED]   Thanks, Neil   705-549-4861  

[TMIC] Anniversary

2006-03-15 Thread Neil & Wendy
5 years for my litttle guy today with TM. Somehow we have managed to get through all that has been tossed at us so far. We just keep up the hope and pray for Cole's health and happiness.   Wendy 

[TMIC] Chest Pain!

2006-02-13 Thread Neil & Wendy
Hi Everyone, Most of you know all about Cole, now 5 years old an incomplete Quad, got TM at 6 months of age.   He has been having some chest pain lately, it is becoming more of a concern for me. It is always on his left , he kinda grabs his chest and says it hurts! I have taken his bp and it

[TMIC] Merry Christmas from COLE

2005-12-25 Thread Neil & Wendy
Merry Christmas everyone, from Cole and Family         480 Con.11 E, RR1Perkinsfield, OntarioL0L 2J0705-549-4861

Re: [TMIC] TMIC 44 years and still rolling

2005-11-22 Thread Neil & Wendy
Dennis, The list is a wonderful help, But you are the one who always helps me get through a rough spell with Cole. I am so glad I have someone like you to talk to.Just when I am ready to crack you always email me with a little story of your childhood and cheer me up.   THANK YOU for being the

Re: [TMIC] Broken Femur

2005-11-11 Thread Neil & Wendy
I just thought I would answer one email, about Cole.   Cole has osteoporosis very bad. The doctor told me you can see through his xrays. So we will be going to the osteoporosis clinic when he is out of his cast . Then we will be starting him on something called pamidronate, this is an IV tre

[TMIC] Broken Femur

2005-11-09 Thread Neil & Wendy
Hi Everyone, I thought I would let you all know that Cole has broken his femur again!  Same left leg and the same spot. The doctors say that his osteoporosis is very bad in his legs. I guess we are house bound for the next 5 weeks or so.   Wendy (Cole's Mom)