t doesn't go on. I just might stop the provigil, and use l-carnitine
and an amino acid capsule. They helped even before the Amantadine.
Thank you for the info.
Prayers and thoughts to you and yours,
Candy K.
-Original Message-
>From: "Butcher, Bernie (S&FS)" <[EMAIL
I just returned from my Nuro. The amantadine after nine weeks, was giving me
terrible flu like symptoms. He gave me 4 weeks of provigil. Has anyone used
provigil?
My tens pads had caused a rash everywhere I put the pads. However without the
tens, my spasms and cramps had returned with a v
OH this sounds GREAT not only for MS but for TM'ers.
Prayers and thoughts for all,
Candy K.
-Original Message-
>From: Kevin Wolfthal <[EMAIL PROTECTED]>
>Sent: Aug 14, 2007 5:49 PM
>To: Tmic-list@eskimo.com
>Subject: [TMIC] OT: MS vaccine tests
>
>
>
>fyi:
>
>
>http://www.canada.com/montr
done too much the previous
day or its going to rain - waiting to see about the cold weather!
Hope info helps.
Prays and thoughts for each and everyone,
Candy K.
-Original Message-
>From: natalie mizenko <[EMAIL PROTECTED]>
>Sent: Aug 11, 2007 10:55 AM
>To: cakalley <[EMA
I take zanaflex and experience the dry mouth. It seems worse in the morning,
sometimes even waking me up. However, I have experienced very dry mouth
feelings during the day especially if I had been doing something labor intense
or after walking distances.
Candy K.
-Original Message-
>
Marieke,
I really admire you. I don't know how you do it! I would say that you really
deserved the award you received.
My fatigue is better since I started taking amantidine and L-Carnatine 2X
daily. While the two have helped, I find that I overdo and then crash for a
day or 2 - this is bett
Barbara,
I think all governments should kick out the lobbyist for the pharmacy,
insurance, and medical fields.
Lobbying in government should be crime punishible by the most highest degree!
Did you see where the lobbyist were able to get a bill thu where Medicare does
NOT require pharmacy co. t
I'm sorry to say that this is the first that I have written in almost 2 weeks.
I've been reading messages, but just too tired to think and write.
I'm having my place remodeled because it use to take me 10 feet to go from my
"favorite chair" in the Living Room to my Kitchen which was just on the o
Natalie,
My Nero also doesn't keep up on the latest on TM. He did know enough after
ruling everything else out, that it was TM. However, he did not know about the
Plasma Exchanges. It was only after my sister gave him the John Hopkins
website and info. that he called and investigated the PLEX
tart
staggering, stumbling and careening off the walls. I sure can't multi-task
anymore especially when I'm walking!
Well, I've bent your ear enough.
Prayers and thoughts,
Candy K.
-Original Message-----
>From: Regina Rummel <[EMAIL PROTECTED]>
>Sent: Jul 18, 2007 8
Since TM, I've said that walking for me is like a marathon for a "normal"
person. After 50 feet or so, I'm soaked and feeling like I'd done a 5K
marathon - or what I would think it would be like. Even doing dishes is a
major taks anymore. I know my heart rate increases by walking or doing 15
It has now been almost 2 weeks since I got my TENS unit and also started taking
AMANTADINE and I am feeling so much better.
The TENS unit seems to not only help the pain in my back and shoulders, but I
am not experiencing as many spasms in either my R leg or L hand/arm.
I am taking the AMANTADI
I went to my neurologist today. I told him that I had been using one
of those electronic ab exercisers and told him that it has really
helped not only with the pain in the lower back but also the spasms
seem to have been reduced. My neurologist asked if I had had any
problems which I have because I
Larry, I agree with you regarding the spinal tap - why after three years for a
spinal tap? I thought the spinal tap was only done at the beginning which if
TM is still active, some kind of protein is found. MRI's will show where the
scar tissue is on the spine and if any new leisons have appea
I take 2 B comlex vitamines plus 2 L-Carnitine and 2 Surper Guarana tablets 2X
aday. They have helped but the fatigue is always present, expecially after
feeling "good" and then overdo it! It now only takes half the time to recoup -
usually a day where before the above it would be 2 or 3 days.
I actually thought that we had an over-active immune system - it's on and
doesn't know when to stop which causes the immune system to attack different
parts ofallergic t our body which our immune system doesn't reconize as a part
of the whole body and not an outside invader.
I attribute my hay-
;Sent: Jun 15, 2007 4:30 PM
>To: cakalley <[EMAIL PROTECTED]>, tmic-list
>Subject: Re: [TMIC] Relief for backache
>
>That sounds great. I have low back pain too from previous herniated disc.
>What is the actual name etc brand etc of what you are using?
>
>Thank
So far I am very happy with it.
Hope this helps.
Candy K.
-Original Message-
>From: Heather & Pieter <[EMAIL PROTECTED]>
>Sent: Jun 15, 2007 4:30 PM
>To: cakalley <[EMAIL PROTECTED]>, tmic-list
>Subject: Re: [TMIC] Relief for backache
>
>That sounds
I just have to pass this on.
Living here in FL and the rainy season being the worst, except for the cold,
for my back aching which I suppose is due to barametric pressure changes. I
can tell when it's going to rain within a couple of hours within a 50 mile
radius.
I have purchased all kinds of
I just found a link that maybe helpful for some.
http://www.blvd.com/
Candy K.
Another resource for help - the local hospital's social services department.
-Original Message-
>From: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]>
>Sent: Jun 13, 2007 5:25 PM
>To: Akua <[EMAIL PROTECTED]>, tmic-list@eskimo.com
>Subject: Re: [TMIC] grocery delivery
>
>When we are in Maine, my "
send it to you personally.
>[EMAIL PROTECTED]
>
>take care -- Michelle
>
>
>
>- Original Message -
>From: "Sandy Heidel" <[EMAIL PROTECTED]>
>To: "cakalley" <[EMAIL PROTECTED]>; "Akua" <[EMAIL PROTECTED]>
>Cc:
get in the building you are in?
-Original Message-
>From: Akua <[EMAIL PROTECTED]>
>Sent: Jun 13, 2007 3:30 PM
>To: cakalley <[EMAIL PROTECTED]>
>Subject: Re: [TMIC] grocery delivery
>
>>Akua,
>>
>>Please don't bristle - we are just trying to he
I agree that Allen and his book is a good start.
I also agree with you, Akua, about the support that Allen has around him.
I think that some of us that are dealing with TM alone - no significate other,
spouse, family, or job we can continue on during our change in life - need to
write about our
I agree that Allen and his book is a good start.
I also agree with you, Akua, about the support that Allen has around him.
I think that some of us that are dealing with TM alone - no significate other,
spouse, family, or job we can continue on during our change in life - need to
write about our
le Church
1901 Napa Valley Drive
Little Rock, AR 72212-3913
From: cakalley [mailto:[EMAIL PROTECTED] Sent: Monday, June 11, 2007 8:28 AMTo: [EMAIL PROTECTED]Cc: tmic-list@eskimo.com; [EMAIL PROTECTED]Subject: Re: [TMIC] ot
When I asked my neuro, he said that (I'm paravasing) it depend
I received your message.
However, I am also in the yahoo group for TM and I haven't been receiving emails from them. For some reason, my yahoo emails were "bouncing" and I had to go thru steps to reinstate account!
Sometimes "shit happens" and systems have bad days also.
Candy K.
-Origin
In my reply to Jude, I forgot to mention that I also have to "think" about moving but my chant is "heel, toe, heel, toe". Also when going up/down stairs, it's "good up, bad down" because my R leg is worst than my L - the R needs constant thought to move while the L is only on "bad" days.
I also
OH I WISH IT WAS POSSIBLE TO HAVE TM AND NO PAIN - I have such excruciating pain in my lower back all the time - except when I first wake up and only move my eyelids - when I start moving in the morning the pain in the lower back just keeps esculating - at night when I'm going to go to sleep it t
When I asked my neuro, he said that (I'm paravasing) it depends on how deep the attack on the myeli, the shaft surrounding the spinal cord, and the degree of scar. My C4 - T2 was on my second episode and had already been treated with steriods. All of my leisions were difficult to see on MRI and
I have multiple levels. One at C4 to T2 the other at T10 to T12. The T10 - T12 leison made me paralyzed from bra line down. I went thru PT/OT and walked with a walker and was "hell on wheels" in a wheel chair. The C4 - T2 made me a quad. With Plasma Exchange (PLEX) and starting at square one
sk for a refund because whoever
did my wiring must've been an apprentice with no one over seeing his work!
Candy K.
-Original Message-
>From: [EMAIL PROTECTED]
>Sent: Jun 9, 2007 7:23 AM
>To: cakalley <[EMAIL PROTECTED]>
>Subject: Re: Re: [TMIC] ot
>
>But don
I found that wearing soxes makes my feet colder - and when I take my soxes off, they are damp like my feet are sweating but I feeling, sensation, as if my feet are in an ice bucket. Going barefoot has helped but I wear slip on cloth sandeles when I go out.
Candy K.
-Original Message- Fr
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