Re: [TMIC] Re: tmic-digest Digest V2008 #478

2008-12-07 Thread Todd Tarno
wrote: From: [EMAIL PROTECTED] <[EMAIL PROTECTED]> Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #478 To: "jrushton" <[EMAIL PROTECTED]>, [EMAIL PROTECTED], "TMIC" Date: Friday, December 5, 2008, 3:27 PM > Talking about looking pregnant and I'm a ma

Re: [TMIC] Re: tmic-digest Digest V2008 #478

2008-12-06 Thread CANDIS KALLEY
) America/New_York Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #478 oh F, I so totally agree! Linda - Original Message - From: [EMAIL PROTECTED] To: jrushton ; [EMAIL PROTECTED] ; TMIC Sent: Friday, December 05, 2008 2:27 PM Subject: Re: [TMIC] Re: tmic-digest Digest V

Re: [TMIC] Re: tmic-digest Digest V2008 #478

2008-12-05 Thread L T CHERPESKI
08 2:27 PM Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #478 > Talking about looking pregnant and I'm a male. My belly bloated > up so bad, that people said I looked like I was pregnant with twins. Many gain abdominal girth while on cortisone/prednisone, or soon aft

Re: [TMIC] Re: tmic-digest Digest V2008 #478

2008-12-05 Thread Jenna
Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #478 Oh my gosh! same here I feel like the "Stay Puff Marshmellow Gal"! I gained 90 lbs when I got sick 4 years ago and have yet to lose any of it, -- Original message from "jrushton" <[EMAIL PROTECTED]&

Re: [TMIC] Re: tmic-digest Digest V2008 #478

2008-12-05 Thread Jenna
08 11:02:21 PM Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #478 Hear ya!!! the fatigue is hard to deal with working full time and hard to explain to others somedays it hurts just to get out of bed but we do... then to go and work out! please workout anymore is just getting off the co

Re: [TMIC] Re: tmic-digest Digest V2008 #478

2008-12-05 Thread JHarper33
Doc's info. about SS is here: _http://www.myelitis.org/tmic/resources/ssd-tm.htm_ (http://www.myelitis.org/tmic/resources/ssd-tm.htm) Barbara H. In a message dated 12/5/2008 7:04:48 P.M. Eastern Standard Time, [EMAIL PROTECTED] writes: In response to: Jeanne, When I went on S

Re: [TMIC] Re: tmic-digest Digest V2008 #478

2008-12-05 Thread jrushton
In response to: Jeanne, When I went on SS Disability, I got my full benefits and then the next year Medicare kicked in...The month before I was hit wih tm...,my disability was for another health problem.so when I reached 65, nothing changed. I would assume that's

Re: [TMIC] Re: tmic-digest Digest V2008 #478

2008-12-05 Thread Jan Hargrove
Jeanne,   When I went on SS Disability, I got my full benefits and then the next year Medicare kicked in...The month before I was hit wih tm...,my disability was for another health problem.so when I reached 65, nothing changed.  I would assume that's true for all.if it isn't, someo

Re: [TMIC] Re: tmic-digest Digest V2008 #478

2008-12-05 Thread [EMAIL PROTECTED]
> Talking about looking pregnant and I'm a male. My belly bloated > up > so bad, that people said I looked like I was pregnant with twins. Many gain abdominal girth while on cortisone/prednisone, or soon after. The bloat is secondary to the cortisone which causes increases in the lipoi

Re: [TMIC] Re: tmic-digest Digest V2008 #478

2008-12-05 Thread jrushton
In response to: Also, a question about Disability Talking about looking pregnant and I'm a male. My belly bloated up so bad, that people said I looked like I was pregnant with twins. Once the bloated came back down, I had put on 20 lbs. I was only at 135 lbs before TM, now at 160, it'

Re: [TMIC] Re: tmic-digest Digest V2008 #478

2008-12-05 Thread Todd Tarno
Talking about looking pregnant and I'm a male.  My belly bloated up so bad, that people said I looked like I was pregnant with twins.  Once the bloated came back down, I had put on 20 lbs.  I was only at 135 lbs before TM, now at 160, it's hard to get rid of it, especially around the holidays. Tryi

Re: [TMIC] Re: tmic-digest Digest V2008 #478

2008-12-04 Thread jrushton
In response to: I have taken Tramadol since day one, but not along with the other drugs you mention. The Tramadol has never, to my notice, done anything for me, but I have not seen a neuro' for years. Maybe I ought to make an appointment one day to see what new drugs might do to help my bandi

Re: [TMIC] Re: tmic-digest Digest V2008 #478

2008-12-04 Thread L T CHERPESKI
TECTED]<mailto:[EMAIL PROTECTED]> ; [EMAIL PROTECTED]<mailto:[EMAIL PROTECTED]> ; [EMAIL PROTECTED]<mailto:[EMAIL PROTECTED]> ; tmic-list@eskimo.com<mailto:tmic-list@eskimo.com> Sent: Thursday, December 04, 2008 9:27 PM Subject: Re: [TMIC] Re: tmic-digest Digest V2008

Re: [TMIC] Re: tmic-digest Digest V2008 #478

2008-12-04 Thread jrushton
In response to: To this day I have a poofy tummy and have never once contributed it to the disease. I thought I had just gained weight over the years. Isn't that strange? Jude Well, I know that it is very normal that as we grow older and as soon as I started 'the change' it was harder and h

Re: [TMIC] Re: tmic-digest Digest V2008 #478

2008-12-04 Thread Heyjude48458
I gained a "beer belly" at the onset and have kept it ever since. Who "duh" thunk it??? Jude In a message dated 12/4/2008 10:19:37 P.M. Eastern Standard Time, [EMAIL PROTECTED] writes: Oh my gosh! same here I feel like the "Stay Puff Marshmellow Gal"! I gained 90 lbs wh

Re: [TMIC] Re: tmic-digest Digest V2008 #478

2008-12-04 Thread kimr1999
Hear ya!!!  the fatigue is hard to deal with working full time and hard to explain to others somedays it hurts just to get out of bed but we do... then to go and work out! please workout anymore is just getting off the couch and being able to balance with my walker without falling on my f

Re: [TMIC] Re: tmic-digest Digest V2008 #478

2008-12-04 Thread jrushton
In response to: Oh my gosh! same here I feel like the "Stay Puff Marshmellow Gal"! I gained 90 lbs when I got sick 4 years ago and have yet to lose any of it, Kim, it's not like we can go out and run around the block or through the woods, right??? Heck, we can't even tell if we're holding

Re: [TMIC] Re: tmic-digest Digest V2008 #478

2008-12-04 Thread kimr1999
Mine feels like a hot branding iron is wraped around my waist -- Original message from Jan Hargrove <[EMAIL PROTECTED]>: -- That band is called L'Hermitte's and one of my doctors told me it's where the "break" in nerves were..that it essentially was the nerve

Re: [TMIC] Re: tmic-digest Digest V2008 #478

2008-12-04 Thread kimr1999
Oh my gosh! same here I feel like the "Stay Puff Marshmellow Gal"! I gained 90 lbs when I got sick 4 years ago and have yet to lose any of it,     -- Original message from "jrushton" <[EMAIL PROTECTED]>: -- In response to: I spent nine weeks in the hospital fro

Re: [TMIC] Re: tmic-digest Digest V2008 #478

2008-12-04 Thread Grace M.
> > > *You're absolutely right Mindy. Lhermitte's is the shocklike or buzzing > feeling that occurs whenever the head is lowered, and the squeezing symptom > around the ribcage or other areas is called *banding, or girdling*. In the > case of MS, it's referred to as the MS Hug. * > > *Gracie*

Re: [TMIC] Re: tmic-digest Digest V2008 #478

2008-12-04 Thread Lawrence King
Just a little correction: the banding feeling is called "MS Hug” or "Girdle-Band Sensation" I have L'Hermitte's sign and it "describes electrical buzzing sensations in the limbs and body brought on by movement of the neck. These sensations are known as paraesthesia and include tingling,

[TMIC] Re: tmic-digest Digest V2008 #478

2008-12-04 Thread jrushton
In response to: I spent nine weeks in the hospital from Jan. to April in 1981. I haven't heard anyone talking about a swollen belly. I was 235 with 42 waist when I got this. When in the hospital I swelled so when discharged I was 205 with 60 inch waist. It stayed like that for many weeks, a

Re: [TMIC] Re: tmic-digest Digest V2008 #478

2008-12-04 Thread Jan Hargrove
That band is called L'Hermitte's and one of my doctors told me it's where the "break" in nerves were..that it essentially was the nerve endings trying to find a connection... I think that is an over-simplified explanation so I'd comprehendI had it so bad that at times I thought I wou

[TMIC] Re: tmic-digest Digest V2008 #478

2008-12-03 Thread jrushton
In response to: Jeanne, when I was the hospital I had a band around my waist like a steel band. After some time out of the hospital and for many years it has been a band of pain. No medication relieved it. It was especially bad when i laid on my back. Ken in N.M. It is pretty horrible, is

[TMIC] RE: tmic-digest Digest V2008 #478

2008-12-03 Thread Kenneth Oliver
Jeanne, when I was the hospital I had a band around my waist like a steel band. After some time out of the hospital and for many years it has been a band of pain. No medication relieved it. It was especially bad when i laid on my back. Ken in N.M. Date: Wed, 3 Dec 2008 18:18:58 -0800From:

[TMIC] RE: tmic-digest Digest V2008 #478

2008-12-03 Thread Kenneth Oliver
Jeanne, when I was the hospital I had a band around my waist like a steel band. After some time out of the hospital and for many years it has been a band of pain. No medication relieved it. It was especially bad when i laid on my back. Ken in N.M. Date: Wed, 3 Dec 2008 18:18:58 -0800From: