hi Candy here is a suggestion re gabaptentin; after consulting with your neuro have your dosage increase gradually until you hardly have any pain; together with the gabapentin also get a prescription for baclofin. be careful though as baclofin may have adverse affect on your liver. as well take zanaflex for spascity. my dosage is a follows :800mg of gabapentin three times a day; 20 mg. of baclofin twice daily and 4 mg zanaflex 3 times daily. it took me a few months of trial and error always with the neuro's guidance to get the doasge right. hope this helps gerry in snowy Montreal
Date: Sat, 4 Dec 2010 10:38:01 -0800 From: tmic-digest-requ...@eskimo.com Subject: tmic-digest Digest V2010 #678 To: tmic-dig...@eskimo.com --Forwarded Message Attachment-- tmic-digest Digest Volume 2010 : Issue 678 Today's Topics: Re: [TMIC] Med Question [ CANDIS KALLEY <cakal...@embarqmail. ] Re: [TMIC] Med Question [ kevin weilacher <hwyfli...@yahoo.co ] Fwd: [TMIC] Med Question [ CANDIS KALLEY <cakal...@embarqmail. ] --Forwarded Message Attachment-- Date: Sat, 4 Dec 2010 10:55:50 -0500 From: cakal...@embarqmail.com To: tmic-list@eskimo.com Subject: Re: [TMIC] Med Question Patti, I've been on gabapentin for awhile now. It does seem to help with the cold/burning in the feet along with several other things. It doesn't however take everything completely away all the time or even sometimes! There doesn't seem to be anything that does that! TM is worst than the weather in that if you don't like it stick around it can get worse! The gabapentin does seem to make me more drowsy no matter when or how I take it! I take 300 mg 3X daily! To prevent even worse afternoons, I take 300 mg in a.m. and 600 mg at bedtime! I must admit that the night sleep seems to be better! Within 30 minutes, I'm fast asleep and usually sleep 7 hrs straight thru! Sometimes this is bad because the bladder relaxes too much and in the morning I have to change the bed! TM in a way takes us all back to a 2nd childhood - learning to walk, toddling and falling, wearing diapers, changing clothes 2 or 3X daily, and changing beding in the morning! If it wasn't for all the pain, I'd feel like a 1 year old! Always wanted to do it over again but I had imagined starting back in the teens - I'd give TM up in heartbeat for a REAL BAD case of acne anyday! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. ----- Original Message ----- From: "Patricia Cooley" <patticoole...@gmail.com> To: TMIC-LIST@eskimo.com Sent: Saturday, December 4, 2010 10:39:58 AM Subject: [TMIC] Med Question On Thursday I saw a new doctor, a physiatrist (sp), that my neuro recommended. I am very impressed with him and his care which was very thorough. When I mentioned my freezing/burning and pain n my feet, he gave me a script for gabapentin. My previous neuro always said there was nothing I could take. I know many of who have mentioned it previously. I took my first capsule last night when I went to bed. This morning I feel so groggy, like I had a night on the town last night. Is that common? Will it go away after I am on it for a while? Maybe I should take it earlier in the evening so the affect wears off by morning. He has also recommend that I saw a ortho who will evaluate me to see if a brace on my bad leg would help with my balance and walking. If it helps, I am game for anything. Thank you in advance for any advice you can give me. Patti - Wisconsin --Forwarded Message Attachment-- Date: Sat, 4 Dec 2010 08:07:21 -0800 From: hwyfli...@yahoo.com To: cakal...@embarqmail.com; tmic-list@eskimo.com Subject: Re: [TMIC] Med Question and then there are folks like me that Gabapentin..(Neurontin) didn't do a thing....not help the pain or burning nor even give me any side effects and I was up to 2800mg a day before my doc decided to take me off of it. Again, just goes to show you...that we are all different and react differently to meds and to TM. Here's hoping that the Gabapentin works for you and just adjusting the time of day that you take it helps with the drowsiness. Candy...like you said....I'd give up TM for acne anyday....Acne can be successfully treated...TM's hit or miss it seems. Kevin Weilacher N.E. Ohio (Canton) From: CANDIS KALLEY <cakal...@embarqmail.com> To: tmic-list <tmic-list@eskimo.com> Sent: Sat, December 4, 2010 10:55:50 AM Subject: Re: [TMIC] Med Question Patti, I've been on gabapentin for awhile now. It does seem to help with the cold/burning in the feet along with several other things. It doesn't however take everything completely away all the time or even sometimes! There doesn't seem to be anything that does that! TM is worst than the weather in that if you don't like it stick around it can get worse! The gabapentin does seem to make me more drowsy no matter when or how I take it! I take 300 mg 3X daily! To prevent even worse afternoons, I take 300 mg in a.m. and 600 mg at bedtime! I must admit that the night sleep seems to be better! Within 30 minutes, I'm fast asleep and usually sleep 7 hrs straight thru! Sometimes this is bad because the bladder relaxes too much and in the morning I have to change the bed! TM in a way takes us all back to a 2nd childhood - learning to walk, toddling and falling, wearing diapers, changing clothes 2 or 3X daily, and changing beding in the morning! If it wasn't for all the pain, I'd feel like a 1 year old! Always wanted to do it over again but I had imagined starting back in the teens - I'd give TM up in heartbeat for a REAL BAD case of acne anyday! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. ----- Original Message ----- From: "Patricia Cooley" <patticoole...@gmail.com> To: TMIC-LIST@eskimo.com Sent: Saturday, December 4, 2010 10:39:58 AM Subject: [TMIC] Med Question On Thursday I saw a new doctor, a physiatrist (sp), that my neuro recommended. I am very impressed with him and his care which was very thorough. When I mentioned my freezing/burning and pain n my feet, he gave me a script for gabapentin. My previous neuro always said there was nothing I could take. I know many of who have mentioned it previously. I took my first capsule last night when I went to bed. This morning I feel so groggy, like I had a night on the town last night. Is that common? Will it go away after I am on it for a while? Maybe I should take it earlier in the evening so the affect wears off by morning. He has also recommend that I saw a ortho who will evaluate me to see if a brace on my bad leg would help with my balance and walking. If it helps, I am game for anything. Thank you in advance for any advice you can give me. Patti - Wisconsin --Forwarded Message Attachment-- Date: Sat, 4 Dec 2010 12:03:45 -0500 From: cakal...@embarqmail.com To: tmic-list@eskimo.com Subject: Fwd: [TMIC] Med Question Patti I also have the pads that fit completely over the bed, the rubber pants and all the others. I also have an ileostomy - I had to have my colon removed over 35 years ago - so I have to wear a bag on my lower abdomen that drains constantly. I have few problems with the ileostomy it's the appliances - some don't even last a day before they fall apart! The ileostomy is good in some ways because I don't have the usual BM problems of other TMers. I started using the bed pads 4 years before the TM because of the ileostomy applance problems. I can't wear the rubber pants except to go out in because I develop bad cases of yeast infections nor the pads all the time due to yeast! I have about 4 pads for the bed and about 10 for chairs and such! A mop is always around also! TM has really cut into my social life - not only getting out and around but because of the bladder problems and the yeast infections! OH FYI - old fashioned yeast infection fighter - use non-flavored original yogurt on an inserted tampon! SORRY GUYS! The GREEK yogurt seems to work the best! That has been a salvation for me! It works within a day or 2! The trouble is I never feel the burning or pain, I have to judge by a rash! I always keep the yogurt on hand just in case! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. ----- Original Message ----- From: "Patricia Cooley" <patticoole...@gmail.com> To: "CANDIS KALLEY" <cakal...@embarqmail.com> Sent: Saturday, December 4, 2010 11:24:31 AM Subject: RE: [TMIC] Med Question Candis thanks for responding so quickly. Right now I am only taking 300mg at night. My doctor said he may have to increase it sometime in the future. I did notice I slept very well last night. I did have to get up at one point to go potty but went right back to sleep. The nighttime bladder can be a real problem. I found a waterproof pad that fits across my whole bed so if an accident happens I don’t have to change the whole bed, just throw the pad in the washing machine and dryer. Also, at another web site I found they have a rubber pants that is completely waterproof. I wear that over my overnight pad and in the morning there is no mess. Also, I purchased regular underpants that have just a rubber crotch that I can wear during the day and if I don’t get to the bathroom soon enough, at least I don’t have to change clothes. I agree that TM is horrible in so many ways. I can handle the pain, etc., it is the bladder problems that really gets me down. I guess you come into the world wearing diapers, and we go out the same. Have a Merry Christmas Candis. Patti - Wisconsin From: CANDIS KALLEY [mailto:cakal...@embarqmail.com] Sent: Saturday, December 04, 2010 9:56 AM To: tmic-list Subject: Re: [TMIC] Med Question Patti, I've been on gabapentin for awhile now. It does seem to help with the cold/burning in the feet along with several other things. It doesn't however take everything completely away all the time or even sometimes! There doesn't seem to be anything that does that! TM is worst than the weather in that if you don't like it stick around it can get worse! The gabapentin does seem to make me more drowsy no matter when or how I take it! I take 300 mg 3X daily! To prevent even worse afternoons, I take 300 mg in a.m. and 600 mg at bedtime! I must admit that the night sleep seems to be better! Within 30 minutes, I'm fast asleep and usually sleep 7 hrs straight thru! Sometimes this is bad because the bladder relaxes too much and in the morning I have to change the bed! TM in a way takes us all back to a 2nd childhood - learning to walk, toddling and falling, wearing diapers, changing clothes 2 or 3X daily, and changing beding in the morning! If it wasn't for all the pain, I'd feel like a 1 year old! Always wanted to do it over again but I had imagined starting back in the teens - I'd give TM up in heartbeat for a REAL BAD case of acne anyday! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. ----- Original Message ----- From: "Patricia Cooley" <patticoole...@gmail.com> To: TMIC-LIST@eskimo.com Sent: Saturday, December 4, 2010 10:39:58 AM Subject: [TMIC] Med Question On Thursday I saw a new doctor, a physiatrist (sp), that my neuro recommended. I am very impressed with him and his care which was very thorough. When I mentioned my freezing/burning and pain n my feet, he gave me a script for gabapentin. My previous neuro always said there was nothing I could take. I know many of who have mentioned it previously. I took my first capsule last night when I went to bed. This morning I feel so groggy, like I had a night on the town last night. Is that common? Will it go away after I am on it for a while? Maybe I should take it earlier in the evening so the affect wears off by morning. He has also recommend that I saw a ortho who will evaluate me to see if a brace on my bad leg would help with my balance and walking. If it helps, I am game for anything. Thank you in advance for any advice you can give me. Patti - Wisconsin
