: Wednesday, May 16, 2007 10:43 AM
Subject: Re: [TMIC] Re: Who's got what?
Hi Everyone,
I have been reading all the e-mails about TM and MS, etc., and I have also
been confused about it since I was struck by TM in October 2005.
According to what I've been told and have read s
system of mine from attacking itself.
Lynn in Rhode Island
- Original Message -
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED] ; tmic-list@eskimo.com
Sent: Tuesday, May 15, 2007 9:22 PM
Subject: Re: [TMIC] Re: Who's got what?
Patti,
My doctors told me that someone wi
f my description wasn't clear enough and hope everyone will read
the John's Hopkins information as it is really helpful.
Regards again,
Louise
- Original Message -
From: natalie mizenko
To: Transverse Myellitis
Sent: Wednesday, May 16, 2007 1:34 PM
Subject:
o on Avonex but the MS is affecting
her vision and she's had two wrecks already driving to work. Yikes.
Bobberino
From: Louise Croyden To: natalie mizenko ; Transverse Myellitis
Sent: Wednesday, May 16, 2007 2:24 PM Subject: Re: [TMIC] Re: Who's got
wha
y on the
spine, not all over the body. Hm.
Bobberino
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED] ; tmic-list@eskimo.com
Sent: Monday, May 14, 2007 8:51 PM
Subject: Re: [TMIC] Re: Who's got what?
In a message dated 5/13/2007 7:10:29 PM Eastern Daylight Time, [EMAI
com>
Sent: Tuesday, May 15, 2007 10:53 AM
Subject: Re: [TMIC] Re: Who's got what?
Why don't you all take a vote and
> decide whether or not you would like to see me leave this list.
ONE BIG THUMB UP
Let her stay!!
F
ROTECTED]> ; [EMAIL
PROTECTED]<mailto:[EMAIL PROTECTED]> ; [EMAIL PROTECTED]<mailto:[EMAIL
PROTECTED]> ; tmic-list@eskimo.com<mailto:tmic-list@eskimo.com>
Sent: Tuesday, May 15, 2007 7:21 AM
Subject: RE: [TMIC] Re: Who's got what?
I can't imagine that anyon
se Croyden To: natalie mizenko ; Transverse Myellitis
Sent: Wednesday, May 16, 2007 2:24 PM Subject: Re: [TMIC] Re: Who's got
what?
Hi Natalie,
I hope that, in my e-mail, you didn't think I was saying we would all get MS.
As I mentioned, MS is only one of the un
> I was able to upload a picture also
Please, good people, don't use tiny fonts. Geezers with old eyes
cannot read them without stopping to use aids.
Alton, age 71 and counting
ko
To: Transverse Myellitis
Sent: Wednesday, May 16, 2007 1:34 PM
Subject: Re: [TMIC] Re: Who's got what?
When I was at Baylor they first gave me an MRI which indicated the
Transverse Myelitis (I had already been diagnosed in Arkansas); anyway while I
was sent over to the Baylor Reha
I was dx with TM 4/04 & told then that the TM could progress to MS. Was told
TM can be considered "single Sclerosis" instead of "Multiple Schlerosis". When
I saw mu neuro 11/06 was told because I had improved & then gotten worse that
this is now MS.
Linda E.
[EMAIL PROTECTED] wrote:
P
age -
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED] ; tmic-list@eskimo.com
Sent: Tuesday, May 15, 2007 10:22 PM
Subject: Re: [TMIC] Re: Who's got what?
Patti,
My doctors told me that someone with TM will only have a re-occurrence if
they had underlying illness s
looking for ways to cope in the meantime.
Regards to everyone,
Louise
- Original Message -
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED] ; tmic-list@eskimo.com
Sent: Tuesday, May 15, 2007 10:22 PM
Subject: Re: [TMIC] Re: Who's got what?
Patti,
My doctors told me that
ECTED]; [EMAIL PROTECTED];
[EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: RE: [TMIC] Re: Who's got what?
ha ha, no, that is the disclosure that we have to put on the bottom of our
emails and is normally meant for our clients. If anyone lives in PA and
needs auto, home, motorcycle, etc insurance,
skimo.com
Subject: RE: [TMIC] Re: Who's got what?
Tracey,
Does this mean we are all going to be covered by your insurance company?
Larry Throne, MSW
Tracey L. Black
Certified Insurance Service Representative
Hockley & O'Donnell Insurance Age
I was able to upload a picture also.
Candy K.
- Original Message -
From: Kevin Wolfthal
To: [EMAIL PROTECTED];Tmic-list@eskimo.com
Sent: 5/15/2007 7:55:34 PM
Subject: Re: [TMIC] Re: Who's got what?/ Photos
I also was able to upload a picture, view at your own risk. ;-)
Patti,
My doctors told me that someone with TM will only have a re-occurrence if
they had underlying illness such as, MS, Sarcoidosis or some other autoimmune
disease. I can't imagine going back through what I went through(total
paralysis from neck down). It was hard enough to survive the
Dido here, we don't want anyone to go anywhere!
Larry Throne, MSW
From: [EMAIL PROTECTED]To: [EMAIL PROTECTED], tmic-list@eskimo.comSubject: Re: [TMIC] Re: Who's got what?Date: Tue, 15 May 2007 09:28:10 EDT
No need for a vote -- we're not that kind of a club. :) Of course no o
m: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]Sent: Monday, May 14, 2007 9:51 PMTo: [EMAIL PROTECTED]; tmic-list@eskimo.comSubject: Re:
[TMIC] Re: Who's got what?In a message dated 5/13/2007 7:10:29 PM Eastern Daylight Time,[EMAIL PROTECTED] writes:. I'm always worried that my TM will co
I also was able to upload a picture, view at your own risk. ;-)
Kevin
[EMAIL PROTECTED] wrote:
*I WAS ALSO ABLE TO UPLOAD A PICTURE. I WILL ADD MORE LATER.*
**
*PRISCILLA IN TN*
See what's free at AOL.com
<
I WAS ALSO ABLE TO UPLOAD A PICTURE. I WILL ADD MORE LATER.
PRISCILLA IN TN
** See what's free at http://www.aol.com.
I went today and added my photo and had no problem but it wouldn't work if I
used upper & lower case letters, I used all upper case
Ella
** See what's free at http://www.aol.com.
Hi Barbara,
If I go to _http://www.myelitis.org/_ (http://www.myelitis.org/) and click
on "support groups", it leads me to an error page. That's what I was trying
to get at about the site. This may or may not be something going on with my
puter, but I thought it should be looked at by
Thumbs up from out here too.
Heather in Calgary
- Original Message -
From: <[EMAIL PROTECTED]>
To: <[EMAIL PROTECTED]>; <[EMAIL PROTECTED]>;
Sent: Tuesday, May 15, 2007 9:53 AM
Subject: Re: [TMIC] Re: Who's got what?
Why don't you all take a vote an
I don't see any pictures either.
Heather in Calgary
- Original Message -
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]
Cc: tmic-list@eskimo.com
Sent: Tuesday, May 15, 2007 5:50 AM
Subject: Re: [TMIC] Re: Who's got what?
No, I don't see any picture o
Why don't you all take a vote and
> decide whether or not you would like to see me leave this list.
ONE BIG THUMB UP
Let her stay!!
F
The reason there are so many responses when one of us blunders and says
something inside-out is because we each respond as soon as we read the email
without waiting to see if the originator apologized for the blunder. We should
wait until we have read a few more postings before we start our own
e
your information has not been retained.
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Monday, May 14, 2007 9:51 PM
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: Re: [TMIC] Re: Who's got what?
In a message dated 5/13/2007 7:10:29 PM Eastern Daylight Ti
Tue AM 09:28:10 EDT
> To: [EMAIL PROTECTED], tmic-list@eskimo.com
> Subject: Re: [TMIC] Re: Who's got what?
>
>
> No need for a vote -- we're not that kind of a club. :) Of course no one
> wants you to leave.
>
> Barbara H.
> _http://barbarah.wordpress.co
live right outside Washington, D.C. If you ever get out this way to
see this beautiful city and all its monuments please let me know!
_
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Tuesday, May 15, 2007 9:28 AM
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: Re: [TM
ours. If you
do not hear from us within 1 business day, please re-contact us in case
your information has not been retained.
From: Gunny [mailto:[EMAIL PROTECTED]
Sent: Tuesday, May 15, 2007 9:33 AM
To: Tracey L. Black
Subject: RE: [TMIC] Re: Who's got wh
No need for a vote -- we're not that kind of a club. :) Of course no one
wants you to leave.
Barbara H.
_http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/)
In a message dated 5/14/2007 10:10:33 PM Eastern Daylight Time,
[EMAIL PROTECTED] writes:
I seem to get into trouble
act us in case your information has not
been retained.
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Monday, May 14, 2007 9:51 PM
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: Re: [TMIC] Re: Who's got what?
In a message date
TED] [mailto:[EMAIL PROTECTED]
Sent: Monday, May 14, 2007 10:10 PM
To: [EMAIL PROTECTED]; [EMAIL PROTECTED];
tmic-list@eskimo.com
Subject: Re: [TMIC] Re: Who's got what?
Please Jill and All,
I have tried to convey how much respect I have for Bob and his wife and
the huge amount of knowl
MAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Monday, May 14, 2007 9:51 PM
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: Re: [TMIC] Re: Who's got what?
In a message dated 5/13/2007 7:10:29 PM Eastern Daylight Time,
[EMAIL PROTECTED] writes:
. I'm always worried that
Both the Members Photos link and the Members Activity, Recreation, and
Travel links from the TMIC site at _http://www.myelitis.org/tmic/_
(http://www.myelitis.org/tmic/) work for me -- the link for the support
groups from the TMA
page at _http://www.myelitis.org/ _ (http://www.myelitis.org/
No, I don't see any picture of you or even a header in e-mails.
Barbara H.
_http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/)
In a message dated 5/14/2007 9:28:58 PM Eastern Daylight Time,
[EMAIL PROTECTED] writes:
> I would love to see pictures of everyone [with the emai
Please Jill and All,
I have tried to convey how much respect I have for Bob and his wife and the
huge amount of knowledge and compassion both convey to everyone on this list.
He is and always has been one of my favorite people and I hope that I have
told him that many times in private emai
In a message dated 5/13/2007 7:10:29 PM Eastern Daylight Time,
[EMAIL PROTECTED] writes:
. I'm always worried that my TM will come back OR progress to MS?
This is the type of email that I was alluding to...does TM progress to MS?
Does TM affect other organs the way that MS does? I get
> I would love to see pictures of everyone [with the emails]
I use an iMac and Apple's Mail program. It puts a little picture of
me in the header of every message I send. It is just the head part of
my old picture in the tma collection.
Does it come through to all you people using pc'
Hey, Jude. all is cool OK??? MS and TM are intimately linked,
unfortunately, as are all other CNS afflictions, down to the very last one. No
exceptions. Anything having to do with our nervous systems IS connected.
Very much so. It's all about the wiring. Got it??
Un
Sorry Barbara,
I didn't see your link until after I sent the email. However, the link on
the TMA site still doesn't work.
Hugs, Barbara A
** See what's free at http://www.aol.com.
retained.
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Monday, May 14, 2007 5:04 PM
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; tmic-list@eskimo.com
Cc: [EMAIL PROTECTED]
Subject: Re: [TMIC] Re: Who's got what?/ Photos
Hello Barbara,
I was just about to say p
Hello Barbara,
I was just about to say pretty much the same thing. I didn't know if I could
edit the photo info that is already in the gallery though. If I remember
correctly, the link for the Support Groups is where the gallery is. It's not
working. Does anyone know what is going on th
There are some photos at _http://www.myelitis.org/gallery/index.php?cat=2_
(http://www.myelitis.org/gallery/index.php?cat=2)
I urge you all to put your photos up if you haven't yet. :) And put your
name with them -- not everyone has done that.
It is nice to put faces to names.
Barbara H
I was diagnosed with TM in 2002 and in Dec. diagnosed with MS. I did try an
MS website and it just wasn't the same. I've been with this group so long. I
know I should learn more about MS and I will but right now this TM group
takes good care of my questions, problems, etc. I do take copaxone every
EDT
> To: [EMAIL PROTECTED], Jill Z <[EMAIL PROTECTED]>,
> tmic-list
> Subject: Re: Re: [TMIC] Re: Who's got what?
>
> Rick,
>
> Have you and Bobberino and his Missus actually got to meet one another?
> Wow, you two live in the same city so I'm
EDT
> To: [EMAIL PROTECTED], Jill Z <[EMAIL PROTECTED]>,
> tmic-list
> Subject: Re: Re: [TMIC] Re: Who's got what?
>
> Rick,
>
> Have you and Bobberino and his Missus actually got to meet one another?
> Wow, you two live in the same city so I'm
Beautiful
- Original Message -
From: <[EMAIL PROTECTED]>
To: "Jill Z" <[EMAIL PROTECTED]>; "tmic-list"
Sent: Sunday, May 13, 2007 6:04 PM
Subject: Re: Re: [TMIC] Re: Who's got what?
Hey Folks, I basically have much respect for Bob and It bothers me to h
I didn't realize your in ET also. I hope to go to Knoxville sometime next fall. If I get too, I'll stop and see you guys.
Larry Throne, MSW
From: <[EMAIL PROTECTED]>To: Jill Z <[EMAIL PROTECTED]>, tmic-list Subject: Re: Re: [TMIC] Re: Who's got what?Date: Sun, 13
my permission
to say whtever he wants to about MS TM or Elvis himselves. Love to hear from
you Boberino. Rick who also lives in Elvis town too.
>
> From: Jill Z <[EMAIL PROTECTED]>
> Date: 2007/05/13 Sun PM 07:09:44 EDT
> To: tmic-list
> Subject: Re: [TMIC] Re: Who's got what?
>
>
l Z
To: tmic-list
Sent: Sunday, May 13, 2007 5:09 PM
Subject: Re: [TMIC] Re: Who's got what?
I don't mind hearing about people who have other diseases, syndromes,
whateverI have TM and my best friend has MS. Sometimes we compare notes.
It sure doesn't hurt since
I don't mind hearing about people who have other diseases, syndromes,
whateverI have TM and my best friend has MS. Sometimes we compare notes.
It sure doesn't hurt since it seems like we're all in the same kinda boat. I'm
always worried that my TM will come back OR progress to MS?
Hap
-
From: Jan Hargrove
To: [EMAIL PROTECTED] ; tmic-list ; Bobby Jim
Sent: Sunday, May 13, 2007 9:32 AM
Subject: Re: [TMIC] Re: Who's got what?
Here's my thinking, Bobby Jim has been at least with us 10 of the 11years
I've been
here, and he is a valued member of
I agree, Jan.
There are many similarities between TM and MS, so much of the info. would
apply to either one.
A lot of definitions that were helpful to me in explaining TM symptoms I
found in an MS book.
There are several MSers among the TMers here, and they're more than welcome.
Barb
I've been here for almost a decade. Jan Hargrove expressed well the
feelings of many old timers.
Alton, ten years this coming July
On May 13, 2007, at 9:3204 AM, Jan Hargrove wrote:
Here's my thinking, Bobby Jim has been at least with us 10 of the
11years I've been
here, and he is a valued
In a message dated 5/13/2007 8:47:38 AM Eastern Daylight Time,
[EMAIL PROTECTED] writes:
First off, I am glad Bob feels like part of the family and that he feels
comfortable sharing here. And I hope to one day stop in Elvis land and say
hello
& hug him and the missus. I'm not sure but I d
Here's my thinking, Bobby Jim has been at least with us 10 of the 11years I've
been
here, and he is a valued member of this group...his lady may have
progressed to MS,
but Bobby Jim is still here as a caregiver and a great friend and member of
this family!!!
My 2 ¢ jan
Larry Throne, MSW
From: [EMAIL PROTECTED]To: [EMAIL PROTECTED], tmic-list@eskimo.comSubject: [TMIC] Re: Who's got what?Date: Sun, 13 May 2007 08:09:59 EDT
In a message dated 5/12/2007 7:18:41 PM Eastern Daylight Time, [EMAIL PROTECTED] writes:
Me missus came down with TM in 97 September at T-8.
In a message dated 5/12/2007 7:18:41 PM Eastern Daylight Time,
[EMAIL PROTECTED] writes:
Me missus came down with TM in 97 September at T-8. No action taken; no
meds, no nada.
Then, in 99 Feb she had a second attack, this time at C-5,6. She was given
steroids for a few dayze then abou
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