Hi Regina,
NMO is often referred to as Devic's Disease. It is extremely rare, though
in the last years I have heard that the number of documented cases has
climbed to around 1000-1500 here in the States. LETM lesions are : Long
extensive transverse myelitis, usually covering at least three se
Grace,
What is LETM's and what is MNO?
February 15, 2006 7:01 PM
Subject: Re: Re: [TMIC] TM or MS
I had my first TM attack in 98 and my second in 01. All my
lesions are in the cord. My second opinion doctor gave me the DX of
recurrent TM and probable RR MS. Those two little letters M and S made me
eligible for MS drugs. I have
et along well.
Take care,
Sandy in Wisconsin where snow is promised but rarely delivered!
- Original Message -
From: <[EMAIL PROTECTED]>
To: "Sue Zieke" <[EMAIL PROTECTED]>; <[EMAIL PROTECTED]>
Cc:
Sent: Wednesday, February 15, 2006 6:44 PM
Subject: Re:
My injury was at the C7-C11 on the
spine. Thanks so much for getting back to me and I will let you know what the
next neurologist has to say.
Marie
>From: Sue Zieke <[EMAIL PROTECTED]>
>Date: Wed Feb 15 10:27:39 CST 2006
>To: [EMAIL PROTECTED]
>Cc: tmic-list@eskimo.com
>Subject
;
Cc:
Sent: Wednesday, February 15, 2006 9:27 AM
Subject: Re: [TMIC] TM or MS
marie, your story certainly struck a chord with me. i was dx with tm in
may 2000. one lesion c2-c6. none in my brain. sept 2005 my neuro repeated
brain mri, i have 10 plus lesions in my brain, she tells me absolutely i
marie, your story certainly struck a chord with me. i was dx with tm in
may 2000. one lesion c2-c6. none in my brain. sept 2005 my neuro
repeated brain mri, i have 10 plus lesions in my brain, she tells me
absolutely i now have ms. then 2 weeks later as we talk again she
changes her tune afte
ng to your Johns Hopkins diagnosis, one can have brain lesions WITHOUT MS. ??Gary in Michigan- Original Message - From: <[EMAIL PROTECTED]>To: Sent: Sunday, February 12, 2006 11:50 PMSubject: [Re: [TMIC] TM or MS]> From: [EMAIL PROTECTED]> Date: Sun Feb 12 22:34:43 CST 2006>
> Date: 2/13/2006 10:57:01 PM
> Subject: Re: [TMIC] TM or MS]
>
>
> Marie,
> I guess this is something new to me. I was under the impression that
with
> TM the brain had no lesions, just the spinal cord. But if you had
lesions
> on the brain while at Johns Hopkins
Johns
Hopkins diagnosis, one can have brain lesions WITHOUT MS. ??
Gary in Michigan
- Original Message -
From: <[EMAIL PROTECTED]>
To:
Sent: Sunday, February 12, 2006 11:50 PM
Subject: [Re: [TMIC] TM or MS]
From: [EMAIL PROTECTED]
Date: Sun Feb 12 22:34:43 CST 2006
To: Deborah
ent: Sunday, February 12, 2006 11:12 PM
Subject: [TMIC] TM or MS
Feb. 7th was my 4th year anniversary of having TM... I have come a long
way from that night from "hell" when no-one could figure out exactly what
was wrong with me... Finally, it was decided TM was the diagnosis. Johns
H
From: [EMAIL PROTECTED]
Date: Sun Feb 12 22:34:43 CST 2006
To: Deborah Nord Capen <[EMAIL PROTECTED]>
Subject: Re: Re: [TMIC] TM or MS
Yes, the lesions were there and I have had no real changes in four years?? Dr.
Pardo saw me four years ago and his diagnosis was TM.
Thanks for your reply!
Feb. 7th was my 4th year anniversary of having TM... I have come a long way
from that night from "hell" when no-one could figure out exactly what was wrong
with me... Finally, it was decided TM was the diagnosis. Johns Hopkins agreed
with this diagnosis.I take 600mg of neurontin 4 times a day...
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