I would like to write my story, but in some kind of relapse. My feet hurt so
bad and they never have before. Has anyone gone to a pain specialist? Thanks
Susan in Phoenix, AZ
On Apr 28, 2013, at 2:39 AM, Janet Dunn wrote:
> I woke up one morning in late August 2004 and my right leg was tingli
I woke up one morning in late August 2004 and my right leg was
tingling and numb, like I had a muscle knot. I went to the
chiropractor, the massage therapist, and the rolfer - and none of
them could change the feeling. The numbness increased, as did the
banding (now I k
e TM. The numbers really surprised me.
Kudos to Greg!
Linda
- Original Message -
From: Beeclark<mailto:beecl...@aol.com>
To: tmic-list@eskimo.com<mailto:tmic-list@eskimo.com>
Sent: Thursday, September 09, 2010 4:51 PM
Subject: Re: [TMIC] TRANSVERSE MYELITIS
My mis
I agree, Janice
From: Beeclark
Sent: Friday, September 10, 2010 12:22 AM
To: tmic-list@eskimo.com
Subject: Re: [TMIC] TRANSVERSE MYELITIS
Not really... but as I told Greg on his Facebook, it really brought me back to
the day I contracted it. His experience was so very close to mine. He
2010 5:51 PM
To: tmic-list@eskimo.com
Subject: Re: [TMIC] TRANSVERSE MYELITIS
My mistake... the episode is titled "The Toddler Who Stopped Walking" and it
originally aired last Sunday night. I watched it and it was GREAT! It would be
wonderful if all the physicians who are not familiar wi
Betty, did you learn anything different from watching - meds, exercising, etc.?
Janice
From: Beeclark
Sent: Thursday, September 09, 2010 5:51 PM
To: tmic-list@eskimo.com
Subject: Re: [TMIC] TRANSVERSE MYELITIS
My mistake... the episode is titled "The Toddler Who Stopped Walking&qu
Yes, it is an hour show and it looks like it will be the 2nd half on TM.
Don't know what is on the first half.
Janice
--
From: "Akua"
Sent: Thursday, September 09, 2010 5:32 PM
To:
Subject: Re: [TMIC] TRANSVERSE MYELITIS
Than
My mistake... the episode is titled "The Toddler Who Stopped Walking" and it
originally aired last Sunday night. I watched it and it was GREAT! It would be
wonderful if all the physicians who are not familiar with TM would watch!
Betty
In a message dated 09/09/10 15:42:43 Pacific Daylight Ti
The story is about Greg Sapp who lives in Statesboro, GA. The show originally
aired this last Monday and will repeat next week. Here's a link about the show.
Unfortunately, those who don't have cable and don't get this particular station
won't be able to see it... and for those who can get it,
Thanks!
What do you mean by the second half?
the second half hour?
My sister, who lives in Savannah, told me about a Transverse
Myelitis patient that lives near there. He will be on the
2nd half of Discovery Health channel. Dates are:
Saturday, Sept. 11 at 5:00pm
My sister, who lives in Savannah, told me about a Transverse Myelitis patient
that lives near there. He will be on the
2nd half of Discovery Health channel. Dates are:
Saturday, Sept. 11 at 5:00pm and
Monday, Sept. 13 at 3:00pm
Should be in
Some folks will NEVER EVER NEVER learn how to use bcc's.oh well
BobbyJim
From: Lori Biehler To: 'Dex Packard' Cc: 'TMIC'
Sent: Sunday, June 28, 2009 8:47 PM
Subject: RE: [TMIC] Transverse Myelitis Network
Yes I kno
t@eskimo.com
Sent: Sunday, June 28, 2009 8:52:18 PM
Subject: Re: [TMIC] Transverse Myelitis Network
Good grief, Rick. Todd was not at all griping or insinuating anything. He wrote
a very gracious response to the previous e-mails in this thread.
Barbara H.
In a message dated 6/28/2009 9:19:53 P
. So be carefull when you insinuate. Your friend Rick Ashford.
From: Todd Tarno To: ladyno...@aol.comCc: TMIC Sent: Sunday, June 28, 2009 5:25:50 PMSubject: Re: [TMIC] Transverse Myelitis Network
That won't happen again.
We do enjoy reading ALL of your e-mails.
I'm sadden that I
e able to manage it
on
his on. We all keep it working. So be carefull when you insinuate. Your
friend Rick Ashford.
From: Todd Tarno
To: ladyno...@aol.com
Cc: TMIC
Sent: Sunday, June 28, 2009 5:25:50 PM
Subject: Re: [TMIC] Transverse Myelitis Networ
o'; ladyno...@aol.com
Cc: 'TMIC'
Subject: Re: [TMIC] Transverse Myelitis Network
Did it ever occur to you that every e-mail address you put in a message can
be copied by others?
- Original Message -
From: Lori Biehler <mailto:lbieh...@earthlink.net>
l.com
Cc: TMIC
Subject: Re: [TMIC] Transverse Myelitis Network
I wish you people would learn to use BCC! That means that there is only one
address showing not a whole bunch
- Original Message -
From: Todd Tarno
To: ladyno...@aol.com
Cc: TM
; dream and he could not be able to manage it on his on. We all keep it
working. So be carefull when you
insinuate. Your friend Rick Ashford.
From: Todd Tarno
To: ladyno...@aol.com
Cc: TMIC
Sent: Sunday, June 28, 2009 5:25:50 PM
Subject: Re: [TMIC] Trans
If reading a bunch of addresses was the worst thing that happened to me this
year, I would really consider myself blessed!
From: Dex Packard [mailto:d...@centurytel.net]
Sent: Sunday, June 28, 2009 7:11 PM
To: Todd Tarno; ladyno...@aol.com
Cc: TMIC
Subject: Re: [TMIC] Transverse Myelitis
I wish you people would learn to use BCC! That means that there is only one
address showing not a whole bunch
- Original Message -
From: Todd Tarno
To: ladyno...@aol.com
Cc: TMIC
Sent: Sunday, June 28, 2009 3:25 PM
Subject: Re: [TMIC] Transverse Myelitis Network
s Christi, TX
--- On Wed, 6/17/09, ladyno...@aol.com wrote:
From: ladyno...@aol.com
Subject: Re: [TMIC] Transverse Myelitis Network
To: heyjude48...@aol.com, tmic-list@eskimo.com
Date: Wednesday, June 17, 2009, 12:03 PM
Jude,
First of all, I never said I PREFER the paraplegic/quadriplegic site.
-list@eskimo.com; Tracey
L. Black
Subject: RE: [TMIC] Transverse Myelitis Network
Well said Tracy!
Jill
--- On Wed, 6/17/09, Tracey L. Blackwrote:
From: Tracey L. Black
Subject: RE: [TMIC] Transverse Myelitis Network
To: ladyno...@aol.com, _heyjude48...@aol.com_ (mailto:heyjude48...@aol.com)
,
mailto:heyjude48...@aol.com> ;
tmic-list@eskimo.com<mailto:tmic-list@eskimo.com> ; 'Tracey L.
Black'<mailto:tracey.bl...@hnoins.com>
Sent: Wednesday, June 17, 2009 7:59 PM
Subject: RE: [TMIC] Transverse Myelitis Network
I HAVE ALWAYS FELT VERY WELCOME BY EVERYONE ON
IT IS A BETTER ONE FOR US ALL.
PATTI - WISCONSIN
From: Jill Z [mailto:jillybean60...@yahoo.com]
Sent: Wednesday, June 17, 2009 6:05 PM
To: ladyno...@aol.com; heyjude48...@aol.com; tmic-list@eskimo.com; Tracey L.
Black
Subject: RE: [TMIC] Transverse Myelitis Network
Well said Tracy
Message -
From: Jill Z
To: ladyno...@aol.com ; heyjude48...@aol.com ; tmic-list@eskimo.com ; Tracey
L. Black
Sent: Wednesday, June 17, 2009 6:05 PM
Subject: RE: [TMIC] Transverse Myelitis Network
Well said Tracy!
Jill
--- On Wed, 6/17/09, Tracey L. Black
Well said Tracy!
Jill
--- On Wed, 6/17/09, Tracey L. Black wrote:
From: Tracey L. Black
Subject: RE: [TMIC] Transverse Myelitis Network
To: ladyno...@aol.com, heyjude48...@aol.com, tmic-list@eskimo.com
Date: Wednesday, June 17, 2009, 1:14 PM
As a caretaker/mother of a daughter who has
; heyjude48...@aol.com; tmic-list@eskimo.comSent: Wednesday, June 17, 2009 2:14:15 PMSubject: RE: [TMIC] Transverse Myelitis NetworkAs a caretaker/mother of a daughter who has had TM for 4 years now; this saddens me to read this. I am also a member of the one Yahoo TM site b/c for me it seems like it
Original Message- From: ladyno...@aol.com Sent: Jun 17, 2009 9:23 AM To: heyjude48...@aol.com, tmic-list@eskimo.com Subject: Re: [TMIC] Transverse Myelitis Network
Jude,
It's not that I think any one site is better than the other, and is not so much about interaction, as information It'
ing regular business hours. If you do not hear from us within
1 business day, please re-contact us in case your information has not been
retained
From: ladyno...@aol.com [mailto:ladyno...@aol.com]
Sent: Wednesday, June 17, 2009 1:03 PM
To: heyjude48...@aol.com; tmic-list@eskimo.com
Subje
eyjude48...@aol.com
To: ladyno...@aol.com
Sent: Wed, Jun 17, 2009 4:26 am
Subject: Re: [TMIC] Transverse Myelitis Network
Then what is holding you back?? Why don't you simply quit this site and use the
other one that you say you prefer?? What's the big deal?
?
Jude
?
>
> *Hi Naomi, *
>
> *Very well said. It's like that for NMO patients also. Although we too,
> suffer from non traumatic SCI, our needs are very different than the typical
> TM patient. Our treatments differ greatly---many of us are on heavy duty
> anti-rejection/immunosuppressant drugs, an
Original Message-
From: heyjude48...@aol.com
To: ladyno...@aol.com
Sent: Wed, Jun 17, 2009 4:24 am
Subject: Re: [TMIC] Transverse Myelitis Network
Naomi,
?
Why do you think that you get more out of one group than the other?? Is there
more interaction?? More topics of interest??
I second that emotion
In a message dated 6/15/2009 9:14:50 A.M. Eastern Daylight Time,
rp...@neillsupply.com writes:
Jim:
Do you have any feedback on the new Transverse Myelitis Network many of us
have been invited to join. What is the difference between our present
network :"the Transve
009 9:00 AM
Subject: Re: [TMIC] Transverse Myelitis Network
The Transverse Myelitis Network is another great way for patients to communicate and compare notes. Many of the TMIC members participate there. Our own Marieke is one of the administrators. I advocate for NMO, and work with Sandy Siegel and
I am also a member of the paraplegic/quadriplegic website that Jim has
started. Although I have TM, which left me a quadriplegic, I identify more
with the members of the paraplegic quadriplegic site then with the members of
the TM site.
Naomi
C-4 Quadriplegic, since July 2, 2005
Due to Tra
VERY well said, Debbie!
**Download the AOL Classifieds Toolbar for local deals at your
fingertips.
(http://toolbar.aol.com/aolclassifieds/download.html?ncid=emlcntusdown0004)
s too!
Take care,
Debbie Capen
Secretary
The Transverse Myelitis Association
- Original Message -
From: Grace M.
To: jharpe...@aol.com
Cc:
rp...@neillsupply.com ;
jlu...@makoa.org ;
tmic-list@eskimo.com
Sent: Monday, June 15, 2009 9:00 AM
Subject: Re: [TMIC] Transverse Mye
M._ (mailto:grace...@gmail.com)
To: _jharpe...@aol.com_ (mailto:jharpe...@aol.com)
Cc: _rp...@neillsupply.com_ (mailto:rp...@neillsupply.com) ;
_jlu...@makoa.org_ (mailto:jlu...@makoa.org) ; _tmic-l...@eskimo.com_
(mailto:tmic-list@eskimo.com)
Sent: Monday, June 15, 2009 9:00 AM
Subject: R
une 15, 2009 9:00 AM
Subject: Re: [TMIC] Transverse Myelitis Network
The Transverse Myelitis Network is another great way for patients to
communicate and compare notes. Many of the TMIC members participate there.
Our own Marieke is one of the administrators. I advocate for NMO, and w
>
> *The Transverse Myelitis Network is another great way for patients to
> communicate and compare notes. Many of the TMIC members participate there.
> Our own Marieke is one of the administrators. I advocate for NMO, and work
> with Sandy Siegel and the TMA crew, and I also have my own site, of
I was wondering this, too. I got an invite but no information and anything
I clicked on just took me back to the same invitation.
The TMIC is plenty for me and the forum (_http://www.myelitis.org/forum/_
(http://www.myelitis.org/forum/) ) is there for people who want more. The
forum is kind of o
Jim:
Do you have any feedback on the new Transverse Myelitis Network
many of us have been invited to join. What is the difference between our
present network :"the Transverse Myelitis Internet Club" and this
one...and why was it neededthe only explanation is it can do things
our present
Hi Betty,
Ella is good people to know and converse with, especially if you have
questions or problems. I am like Ella in that I have a constant buzzing
feeling throughout my body which is similar to when one of your extremities
"falls asleep". I hate it...
Love You,
Jude
In
this good group! Jeanne in Dayton, WA
---Original Message---
From: Betty Shaffer
Date: 4/19/2009 11:07:03 AM
To: tmic-list@eskimo.com
Subject: [TMIC] transverse myelitis
I'm a new subscriber to the TM internet club and find the messages
in
st taste of chocolate
cake. Too cute.
Heather in Calgary
- Original Message -
From:
To: ; "Betty Shaffer"
Sent: Sunday, April 19, 2009 6:33 PM
Subject: Re: [TMIC] transverse myelitis
> Hi Betty
> Welcome to our on-line TM family. I was diagnosed in 2003 at age
y Shaffer"
Sent: Sunday, April 19, 2009 6:33 PM
Subject: Re: [TMIC] transverse myelitis
Hi Betty
Welcome to our on-line TM family. I was diagnosed in 2003 at age 53 at
C4-C6. I also have balance problems and just gave in to using a walker
during a short vacation. I was surprised that I was
Hi Betty
Welcome to our on-line TM family. I was diagnosed in 2003 at age 53 at C4-C6.
I also have balance problems and just gave in to using a walker during a short
vacation. I was surprised that I was able to walk and enjoy looking at
something besides my feet. I hadn't thought about the s
I don't have the banding. I did at the onset of TM but not any longer.
From: alle...@aol.com [mailto:alle...@aol.com]
Sent: April-19-09 1:58 PM
To: tmic-list@eskimo.com
Subject: Re: [TMIC] transverse myelitis
Welcome Betty,
One symptom I'd say we all have is definitely the b
Welcome Betty,
One symptom I'd say we all have is definitely the banding yet other
symptoms do vary. I'm a paraplegic since 9/2000, lesion T6-10. I don't have
the
numbness but a buzzing feeling that is uncomfortable without meds. Ask us
anything you wish and you will get an answer. Have you
eskimo.com
Subject: [TMIC] transverse myelitis
I'm a new subscriber to the TM internet club and find the messages interesting.
I was diagnosed with T.M. ( Cl and C 2 level) in 2004 at the age of 77.
Numb from my toes up to and inclucing my neck, I rar3ly feel pain but have much
discomfort from
o.com
Sent: Sunday, April 19, 2009 12:03 PM
Subject: [TMIC] transverse myelitis
I'm a new subscriber to the TM internet club and find the messages
interesting.
I was diagnosed with T.M. ( Cl and C 2 level) in 2004 at the age of 77.
Numb from my toes up to and inclucing my neck, I rar3ly
Dayton, WA
---Original Message---
From: Betty Shaffer
Date: 4/19/2009 11:07:03 AM
To: tmic-list@eskimo.com
Subject: [TMIC] transverse myelitis
I'm a new subscriber to the TM internet club and find the messages
interesting.
I was diagnosed with T.M. ( Cl and C 2 level) in 2004 a
I'm a new subscriber to the TM internet club and find the messages
interesting.
I was diagnosed with T.M. ( Cl and C 2 level) in 2004 at the age of 77.
Numb from my toes up to and inclucing my neck, I rar3ly feel pain but have
much discomfort from the banding, especially in my torso and neck. I wa
ness day, please re-contact us in case
your information has not been retained.
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Thursday, July 05, 2007 9:01 PM
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: [TMIC] transverse myelitis
Hi, When I
Hi, When I first went into the hospital 9/05 the doctors didnt know what
the heck I had. So they started me on IVIG. They thought I might have
Guilliame Barre Syndrome. I was on it for 5 days - 3 bottles a day. Very
fine
hospital (teaching hospital) on Long Island in New York. The en
You may all have seen the information on the Johns
Hopkins website regarding TM but, for those who may not have read it yet, the
address is http://www.hopkinsneuro.org/tm/diseases_and_conditions.cfm
They have 3 sections: a general section,
one on Long Term Care (rehabilitation) and another
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