[TMIC] New e-mail address

2013-04-25 Thread Janice Nichols
I have changed my e-mail address to: jmailto:jannic...@gmail.com . Please update your list as I enjoy getting your e-mails. Thanks

[TMIC] New Jersey Support Group Meeting

2012-03-03 Thread Robert Pall
Hello to all. This is just to notify our members in the New York City/New Jersey/Philadelphia area that a support group meeting has been scheduled for April 15th at the Centra State Hospital in Freehold NJ (Central NJ). Anyone I have not previously reached out to who would like to attend please

Re: [TMIC] New Year Prayer for all of us

2012-01-02 Thread L T CHERPESKI
.com> Sent: Monday, January 02, 2012 11:37 AM Subject: Re: [TMIC] New Year Prayer for all of us Thanks Dalton. On Mon, Jan 2, 2012 at 11:12 AM, john snodgrass mailto:jcs...@yahoo.com>> wrote: thanks Dalton ---

Re: [TMIC] New Year Prayer for all of us

2012-01-02 Thread pat cooley
Thanks Dalton. On Mon, Jan 2, 2012 at 11:12 AM, john snodgrass wrote: > thanks Dalton > > -- > *From:* Dalton Garis > *To:* TM list > *Sent:* Sunday, January 1, 2012 11:10 AM > *Subject:* Re: [TMIC] New Year Prayer for all of us > > Fe

Re: [TMIC] New Year Prayer for all of us

2012-01-02 Thread john snodgrass
thanks Dalton From: Dalton Garis To: TM list Sent: Sunday, January 1, 2012 11:10 AM Subject: Re: [TMIC] New Year Prayer for all of us Fellow sufferers; I offer this prayer, called the Remover of Difficulties prayer, which I have recited for decades

Re: [TMIC] New Year Prayer for all of us

2012-01-01 Thread Dalton Garis
Fellow sufferers; I offer this prayer, called the Remover of Difficulties prayer, which I have recited for decades, sometimes 400-500 times/day in times of great pain or stress, for inner calm and the expectation of better things to come from sources and directions I did not imagine. Is there any

Re: [TMIC] New MRI results

2011-12-17 Thread Janice Nichols
Thanks.I hope you have 100% success! Keep us posted. Janice From: Janet Dunn Sent: Saturday, December 17, 2011 11:28 AM To: 'Janice Nichols' ; 'TMIC' ; tmic-l...@eskimo.net Subject: RE: [TMIC] New MRI results A hemangioma is: A.D.A.M. Medical Encyclopedia. H

RE: [TMIC] New MRI results

2011-12-17 Thread Janet Dunn
A hemangioma is: A.D.A.M. Medical Encyclopedia. Hemangioma Cavernous hemangioma; Strawberry nevus Last reviewed: October 10, 2010. A hemangioma is an abnormal buildup of blood vessels in the skin or internal organs. Causes, incidence, and risk factors About 30% of hemangiomas are present

RE: [TMIC] New MRI results

2011-12-17 Thread Janet Dunn
...@chartermi.net] Sent: December 16, 2011 8:25 PM To: Janet Dunn Cc: 'Janice Nichols'; 'TMIC'; tmic-l...@eskimo.net Subject: RE: [TMIC] New MRI results Janet, Can the hemangioma be lazered or disolved in some way? we had a young lady in TMIC about eight years ago who was diagnosed

Re: [TMIC] New MRI results

2011-12-16 Thread Janice Nichols
What is the hemangioma? Janice From: Janet Dunn Sent: Friday, December 16, 2011 8:41 PM To: 'Janice Nichols' ; 'TMIC' ; tmic-l...@eskimo.net Subject: RE: [TMIC] New MRI results HI Janice It is not really what I was talking about – but I am very careful about the sh

RE: [TMIC] New MRI results

2011-12-16 Thread pjv1234
active now, but the shoes are beginning to be a real problem. Is this what you were talking about? Janice From: Janet Dunn Sent: Wednesday, December 14, 2011 3:11 AM To: 'TMIC' ; tmic-l...@eskimo.net Subject: [TMIC] New MRI results Hello Everybody I have had TM and

RE: [TMIC] New MRI results

2011-12-16 Thread Janet Dunn
7;; tmic-l...@eskimo.net Subject: Re: [TMIC] New MRI results Janet, I have always had real sensitivity in my feet.If someone rubbed them, they would really spasm.I have had TM for 5 years now. What I am just recently noticing is that shoes that fit my foot – leather – have start

Re: [TMIC] New MRI results

2011-12-15 Thread Janice Nichols
real problem. Is this what you were talking about? Janice From: Janet Dunn Sent: Wednesday, December 14, 2011 3:11 AM To: 'TMIC' ; tmic-l...@eskimo.net Subject: [TMIC] New MRI results Hello Everybody I have had TM and the various symptoms of since August of 2004. I have a

Re: [TMIC] New MRI results

2011-12-14 Thread Akua
had one Dr who told me that she never had much time for extra study and for me to search and whatever I found that we had not tried that she would support me in it. well she had opportunity in another place that was better for her so she moved on. This just happened to me! My primary i

RE: [TMIC] New MRI results

2011-12-14 Thread pjv1234
Hi Janet., I had to google you diagnosis to learn what it is. Your a rarity again. One in a million for TM and what are the odds for a TMer with a spinal hemangioma? (After reading about it I realized my daughter has used this term to describe two bruise colored birthmarks on one of her twi

Re: [TMIC] New MRI results

2011-12-14 Thread Akua
Dear Janet, Sorry to read of the increased discomfort. The term and the condition are new to me and as you've doubtless done an internet search, there's nothing I could add. Sending my well wishes, for comfort and healing. Akua --

Re: [TMIC] New MRI results

2011-12-14 Thread john snodgrass
#x27; ; tmic-l...@eskimo.net Sent: Wednesday, December 14, 2011 12:26 PM Subject: RE: [TMIC] New MRI results Hello Dalton   Yes sir, the shoes have long been lost.  And the stress and fatigue – are definitely kept to a minimum.  I understand the part of there being little room for any swelling wit

RE: [TMIC] New MRI results

2011-12-14 Thread Janet Dunn
et that! Thanks for sharing. Janet From: Dalton Garis [mailto:malugss...@gmail.com] Sent: December 14, 2011 5:26 AM To: Janet Dunn; 'TMIC'; tmic-l...@eskimo.net Subject: Re: [TMIC] New MRI results I think there is something in common with my own situation; In 1970 I fell

RE: [TMIC] New MRI results

2011-12-14 Thread Janet Dunn
...@eskimo.net Subject: Re: [TMIC] New MRI results I am so sorry to hear the news-would a round of steroids help? Jane/Splendora Tx In a message dated 12/14/2011 3:12:51 A.M. Central Standard Time, j.d...@shaw.ca writes: Hello Everybody I have had TM and the various symptoms of

Re: [TMIC] New MRI results

2011-12-14 Thread john snodgrass
way to dissolve and resolve this new issue. Tomorrow will be better! From: "celr...@aol.com" To: j.d...@shaw.ca; tmic-list@eskimo.com; tmic-l...@eskimo.net Sent: Wednesday, December 14, 2011 10:08 AM Subject: Re: [TMIC] New MRI results I am so sor

Re: [TMIC] New MRI results

2011-12-14 Thread Celrods
I am so sorry to hear the news-would a round of steroids help? Jane/Splendora Tx In a message dated 12/14/2011 3:12:51 A.M. Central Standard Time, j.d...@shaw.ca writes: Hello Everybody I have had TM and the various symptoms of since August of 2004. I have a lesion on my spine

Re: [TMIC] New MRI results

2011-12-14 Thread Dalton Garis
Dec 2011 02:11:04 -0700 To: 'TMIC' , Subject: [TMIC] New MRI results Resent-From: Resent-Date: Wed, 14 Dec 2011 01:14:00 -0800 > Hello Everybody > > I have had TM and the various symptoms of since August of 2004. I have a > lesion on my spine at T4-5. There are a

[TMIC] New MRI results

2011-12-14 Thread Janet Dunn
Hello Everybody I have had TM and the various symptoms of since August of 2004. I have a lesion on my spine at T4-5. There are a few issues with that, put I have been managing. Take my meds, keep my stress down, rest, - you all know the routine. I was doing so well that this summer I a

Re: [TMIC] New to T/M mail list

2011-12-07 Thread Janice Nichols
you are doing and what help you are getting. Janice From: Ryota Nishino Sent: Tuesday, December 06, 2011 11:27 AM To: tmic-list@eskimo.com Subject: [TMIC] New to T/M mail list To fellow myelitis fighters, I stumbled upon your website and signed up for email list immediately. Does anyone

RE: [TMIC] New to T/M mail list

2011-12-07 Thread pjv1234
We are fighters. Stress always aggravates my symptoms. You don't have to disclose everything at once if you symptoms are stagnant. My neurologist told me, "Status quo is good. Anytime you aren't going backward, going forward is easier." Simply disclosing that you had an illness that left

Re: [TMIC] New to T/M mail list

2011-12-06 Thread Akua
Hi Ryota! I wanted to welcome you to the group. When you mentioned Christchurch, my interest was piqued. Just a week or so agao there was a travel show on NZ and they spent time showing the architecture boating on a waterway in Christchurch. How lovely it was!I have a friend I've never met, wh

[TMIC] New to T/M mail list

2011-12-06 Thread Ryota Nishino
To fellow myelitis fighters, I stumbled upon your website and signed up for email list immediately. Does anyone know of someone with transverse myelitis in Fiji and a good neurolosist? I have had t/m since 5 Oct last year, just a few weeks before I turned 34. I relocated from Christchurch in N

Re: [TMIC] new member

2011-11-17 Thread Janice Nichols
Randy, we will always try to help anyone on this website with any TM problem. Thanks. Janice From: randy rankin Sent: Thursday, November 17, 2011 2:54 PM To: tmic-list@eskimo.com Subject: [TMIC] new member Hello tmi group I was in the library working on my dissertation and overheard a

Re: [TMIC] new member

2011-11-17 Thread john snodgrass
like cause with like effect,she is sure to find direction towards answers in here. it is good. From: randy rankin To: "tmic-list@eskimo.com" Sent: Thursday, November 17, 2011 3:54 PM Subject: [TMIC] new member Hello tmi group I was in the libra

[TMIC] new member

2011-11-17 Thread randy rankin
Hello tmi group I was in the library working on my dissertation and overheard a lady discussing ordeals about her mother. The problems related to m.s. not t.m.; however, she mentioned her mom's doctor talk about mylopothy, multiple mylopothy, ect. but didn't understand the terminology or issues

Re: [TMIC] new treatment for MS and maybe more

2011-04-19 Thread Janice Nichols
holland Sent: Tuesday, April 19, 2011 8:00 AM To: wolft...@optonline.net ; TMIC Subject: RE: [TMIC] new treatment for MS and maybe more Sounds well, it gives the impression that this kind of deseases, the side affects are almost history. Still I am in a wheelchair and struggle every day with TM

RE: [TMIC] new treatment for MS and maybe more

2011-04-19 Thread wim from holland
tmic-list@eskimo.com > Subject: [TMIC] new treatment for MS and maybe more > > > http://www.disabled-world.com/health/autoimmunediseases/ms/compound.php >

[TMIC] new treatment for MS and maybe more

2011-04-18 Thread Kevin Wolfthal
http://www.disabled-world.com/health/autoimmunediseases/ms/compound.php

Re: [TMIC] New Videos of the conference

2011-02-15 Thread Akua
They have come a long way to developing a cure for our problems.--my biggest worry is the cost I second that. But every time I mention money, I get attacked. --

[TMIC] New Videos of the conference

2011-02-14 Thread James Berg
They have come a long way to developing a cure for our problems.--my biggest worry is the cost

[TMIC] new year

2010-12-31 Thread Celrods
HAPPY NEW YEAR EVERYONE!!! I HOPE YOU ALL HAVE A SAFE AND PROSPEROUS AND A PAIN FREE ONE. JANE/SPLENDORA TX

Re: [TMIC] new Facebook e-mail thingie

2010-11-18 Thread Barbara Alma
Hi Emily and Janice, I'm going to send you an invitation. The one who started this is Kevin Weilacher. Hugs, Barbara A in Auburn CA -Original Message- From: Emily To: 'Barbara Alma' Sent: Thu, Nov 18, 2010 7:42 am Subject: RE: [TMIC] new Facebook e-mail thi

Re: [TMIC] new Facebook e-mail thingie

2010-11-17 Thread Barbara Alma
I've joined the Facebook TM Folk group. I find it good because it's another vehicle for people to meet up and get support and information. I don't know how many of the people belong to other internet support groups, but this groups has really taken off pretty well. Most of the names are new t

[TMIC] New Squidoo page on TM

2010-09-29 Thread Laura Beaudin
I was writing up some Squidoo lenses when I discovered (of all horrors) that of the hundreds of thousands of lenses, no one ever wrote one up specifically about Transverse Myelitis. Well this has now changed and I published a lens yesterday titled "What Is Transverse Myelitis?" here: http://www.sq

Re: [TMIC] New developments

2010-09-18 Thread Janice Nichols
Re: [TMIC] New developmentsBoy, I sure hope those doc's can get ahold of some reason for this. We knew you had been miserable the last few months with the seizures, but this is just too much.Keep us up on what will/has been done for you and if it helps.God bless you! Janice

Re: [TMIC] New developments

2010-09-18 Thread john snodgrass
thoughts? overwhelmed! From: Dalton Garis To: john snodgrass ; em...@telephonelady.com Cc: transverse myelitis Sent: Sat, September 18, 2010 8:26:50 AM Subject: Re: [TMIC] New developments Hey, all; I just spent from 9:00 AM to 3:00 PM spazzed out, with no

Re: [TMIC] New developments

2010-09-18 Thread Dalton Garis
: transverse myelitis Subject: Re: [TMIC] New to TM Resent-From: Resent-Date: Fri, 17 Sep 2010 17:24:44 -0700 that is so classic. i remember the morning i decided it was time to go to the Dr. when i got out of bed my whole right side was numb. top of my head to the bottom of my right foot was

Re: [TMIC] New to TM

2010-09-17 Thread john snodgrass
would chime in on these. From: Emily To: tmic-list@eskimo.com Sent: Thu, September 16, 2010 11:30:34 PM Subject: [TMIC] New to TM Thank you to everyone who responded to my initial email.  It is wonderful to know that I am not in this alone.  I guess misery likes

Re: [TMIC] New to TM

2010-09-16 Thread Akua
MRIs of the thoracic spine were taken and then another one with contrast and it was in these MRIs where they could see abnormalities (lesions). He was then turned over to a team on neurologists and more tests (cat scans, blood tests, MRIs, and spinal taps) were taken. He was also tested for e

Re: [TMIC] New to TM

2010-09-16 Thread Janice Nichols
. Never give up and never forget we are right here for you both. We never get tired of questions or any communication you want to make. Janice From: Emily Sent: Thursday, September 16, 2010 10:30 PM To: tmic-list@eskimo.com Subject: [TMIC] New to TM Thank you to everyone who responded to my

[TMIC] New to TM

2010-09-16 Thread Emily
Thank you to everyone who responded to my initial email. It is wonderful to know that I am not in this alone. I guess misery likes company ;) Let me tell you a little about how we came to find out that my husband has TM. At the beginning of August my husband was getting constipated which is

Re: [TMIC] New to TM

2010-09-16 Thread bpelow
Hi Emily, This place is for people with TM, spouses, family members, caregivers, etc. Sorry you have to join our family, but this is a great place for information, support, love, and understanding. Some of us have been on here for many years and it is a wonderful site. Peace, Bernie in Texas

Re: [TMIC] New to TM

2010-09-16 Thread bobby jim
m (a.k.a. Bobberino) -- Where in Pennsylvania are you...??? My father lived in Wilmington, Delaware for many many years. From: Emily To: tmic-list@eskimo.com Sent: Thursday, September 16, 2010 11:10 Subject: [TMIC] New to TM Hi Everyone, My husband has recently

Re: [TMIC] New to TM

2010-09-16 Thread L T CHERPESKI
Emily<mailto:em...@telephonelady.com> To: tmic-list@eskimo.com<mailto:tmic-list@eskimo.com> Sent: Thursday, September 16, 2010 10:10 AM Subject: [TMIC] New to TM Hi Everyone, My husband has recently (September 2nd) been diagnosed with Idiopathic TM. He was treated at Penn

RE: [TMIC] New to TM

2010-09-16 Thread Robert Pall
at we incorporate family members within our group. Rob in New Jersey From: Emily [mailto:em...@telephonelady.com] Sent: Thursday, September 16, 2010 12:11 PM To: tmic-list@eskimo.com Subject: [TMIC] New to TM Hi Everyone, My husband has recently (Septembe

Re: [TMIC] New to TM

2010-09-16 Thread Dalton Garis
Welcome, again. We are from all over the earth. I am in the Middle East but have a home in Queens, NY. This is a great place and everyone is helpful. Dalton From: Patricia Cooley Date: Thu, 16 Sep 2010 11:59:16 -0500 To: , Subject: RE: [TMIC] New to TM Resent-From: Resent-Date: Thu

RE: [TMIC] New to TM

2010-09-16 Thread Patricia Cooley
: [TMIC] New to TM Hi Everyone, My husband has recently (September 2nd) been diagnosed with Idiopathic TM. He was treated at Pennsylvania Hospital under the care of a team of Neurologists. He was given mega doses of Prednisone and is currently weaning with oral prednisone. He was discharged

Re: [TMIC] New to TM

2010-09-16 Thread Jan Hargrove
right place!!   Welcome...janh  Stillwater, OK From: Emily To: tmic-list@eskimo.comSent: Thu, September 16, 2010 11:10:38 AMSubject: [TMIC] New to TM Hi Everyone,   My husband has recently (September 2nd) been diagnosed with Idiopathic TM.  He was treated at Pennsylvania Hospital unde

Re: [TMIC] New to TM

2010-09-16 Thread Janice Nichols
n Missouri From: Emily Sent: Thursday, September 16, 2010 11:10 AM To: tmic-list@eskimo.com Subject: [TMIC] New to TM Hi Everyone, My husband has recently (September 2nd) been diagnosed with Idiopathic TM. He was treated at Pennsylvania Hospital under the care of a team of Neurologists. H

[TMIC] New to TM

2010-09-16 Thread Emily
Hi Everyone, My husband has recently (September 2nd) been diagnosed with Idiopathic TM. He was treated at Pennsylvania Hospital under the care of a team of Neurologists. He was given mega doses of Prednisone and is currently weaning with oral prednisone. He was discharged from the hospital la

Re: [TMIC] new result.

2010-08-21 Thread Todd Tarno
p the great health, Todd in CC, TX --- On Sat, 8/21/10, Dalton Garis wrote: From: Dalton Garis Subject: Re: [TMIC] new result. To: "Kelly Jean Craig" , tmic-list@eskimo.com Date: Saturday, August 21, 2010, 12:20 AM Everyone; I am sending you this copy of a letter I just sen

Re: [TMIC] new result.

2010-08-21 Thread Janice Nichols
Re: [TMIC] new result.Miracle of miracles.Can you get a regular supply of those meds if you need them every once in a while?Does your doc know you are taking these?Am excited for you, but a little nervous too. Good to hear from you again. Janice From: Dalton Garis Sent

Re: [TMIC] new result.

2010-08-20 Thread Dalton Garis
Everyone; I am sending you this copy of a letter I just sent to my brother, regarding TM since the time we accidently discovered that the homeopathic, magnesia-phosphorica, has made things different, as explained in the letter. Everyone is different with TM. In my case the physical damage was

Re: [TMIC] new member

2010-06-04 Thread CANDIS KALLEY
t; , tmic-list@eskimo.com Sent: Friday, June 4, 2010 11:57:45 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] new member Kelly Jean, I have had TM since January of 2007.   I just turned 60 the month before.   I was paralyzed from the shoulder blades on down, but with proper meds, much physic

Re: [TMIC] new member

2010-06-04 Thread Janice Nichols
able to help take some of the "isolation" feeling that we all seem to get from this disease being so rare. Janice, Missouri From: Kelly Jean Craig Sent: Thursday, June 03, 2010 11:58 AM To: tmic-list@eskimo.com Subject: [TMIC] new member Hi Everyone, Well, I was reluctan

Re: [TMIC] new member

2010-06-04 Thread Akua
Fatigue is a symptom, as is pain. Ask about your levels of D, B12, whether you need folic acid, whether you are anemic. You can attend to these by diet and supplements. When i was ambulatory and thought i was recovering I embarked on a course of acupuncture which helped enormously to relieve

Fw: [TMIC] new member

2010-06-03 Thread Todd Tarno
needed to, Todd in Corpus Christi, TX --- On Thu, 6/3/10, Kelly Jean Craig wrote: From: Kelly Jean Craig Subject: [TMIC] new member To: tmic-list@eskimo.com Date: Thursday, June 3, 2010, 11:58 AM Hi Everyone, Well, I was reluctantly admitted to the TM group last week. My name is Kelly Jean

[TMIC] new member

2010-06-03 Thread Kelly Jean Craig
Hi Everyone, Well, I was reluctantly admitted to the TM group last week. My name is Kelly Jean and I am 28 years old. I am a cancer research scientist, athlete, wife and pug lover.  I was diagnosed after a strange string of events. I woke up two weeks ago with a coughing episode that left me

[TMIC] New Jersey support group meeting

2010-05-05 Thread Robert Pall
This is a final notice regarding the NJ support group meeting being held in Rahway on May 16th (Sunday) between 1-4. All are invited!. Please contact me for further info. If you are interested in attending. I expect a minimum of 20 people! Rob in New Jersey

[TMIC] New Jersey Support Group Meeting

2010-04-27 Thread Robert Pall
We are planning on having a Central New Jersey TM support group meeting on Sunday May 16th at the Robert Woods University Hospital in Rahway New Jersey (exit 135 Garden State Pkwy)anyone from the New York City area or Philadelphia are more than welcome to attend. If interested please rsvp me as

[TMIC] New Years

2009-12-31 Thread Janice Nichols
H A P P Y N E W Y E A R !! May This Be The Best One For All Of Us !!! Love Ya And Totally A

Re: [TMIC] new therapy for paralyzed

2009-10-19 Thread Parkerswebe
Might I suggest you forward this to Dr. Kerr to get his opinion? Thanks, Sparker Ventura, CA

Re: [TMIC] new therapy for paralyzed

2009-10-16 Thread Akua
this is exciting but almost too good to be true. Lately my feet have been falling off/leaving the feet rests--- but i don't feel them move, nor can i do it voluntarily. I'm hoping that it's a good sign, but i would so like to be able to pull myself up and stand--- it would make life a zilli

Re: [TMIC] new therapy for paralyzed

2009-10-16 Thread ROSEOFRENO
wouldn't be the walking wounded that we are. Be careful with this Kevin Weilacher N.E. Ohio (Canton) From: Amanda Diskey To: tmic-list@eskimo.com Sent: Thu, October 15, 2009 8:14:27 PM Subject: [TMIC] new therapy for paralyzed Hello

RE: [TMIC] new therapy for paralyzed

2009-10-16 Thread Patricia Cooley
BE PAID FOR THEIR CLAIMS AND ARE JUST FAKING IT. IT WOULD BE WONDERFUL IF IT WERE TRUE. PATTI - WISCONSIN From: Amanda Diskey [mailto:adis...@yahoo.com] Sent: Thursday, October 15, 2009 7:14 PM To: tmic-list@eskimo.com Subject: [TMIC] new therapy for paralyzed Hello all: I know I don&#

Re: [TMIC] new therapy for paralyzed

2009-10-16 Thread kevin weilacher
nd if $6,000 were all it took to "fix us" I'm sure that more of us wouldn't be the walking wounded that we are. Be careful with this Kevin Weilacher N.E. Ohio (Canton) From: Amanda Diskey To: tmic-list@eskimo.com Sent: Thu, October 15, 20

[TMIC] new therapy for paralyzed

2009-10-15 Thread Amanda Diskey
Hello all: I know I don't post often, but I came  across something on  the internet that I am unsure of and I would like your opinions. I found a therapist claiming to be able to help the paralyzed regain movement and sensation. He claims to be able to "turn the nerves back on" through a form of

RE: [TMIC] New Medications

2009-09-30 Thread Robert Pall
[mailto:pkeen...@yahoo.com] Sent: Tuesday, September 29, 2009 6:37 PM To: Robert Pall Subject: Re: [TMIC] New Medications Hi Rob, The nausea and lethargy will eventually subside. I have been on Lyrica and Cymbalta for quite a while (don't remember) and it works for me. Just give it a litt

RE: [TMIC] New Medications

2009-09-22 Thread Robert Pall
h daywelcome to the wonderful world of TM! All the best! Rob in New jersey -Original Message- From: pjv1...@chartermi.net [mailto:pjv1...@chartermi.net] Sent: Saturday, September 05, 2009 8:05 AM To: Robert Pall; tmic-list@eskimo.com Subject: Re: [TMIC] New Medications I take both Lyric

Re: [TMIC] New Medications

2009-09-05 Thread pjv1234
I take both Lyrica and Cymbalta, however, I also take Baclofen. I take 100mg Lyrica x3, 10mg Baclofen x3, and 60mg Cymbalta in the morning, 30mg Cymbalta in the afternoon. I tried an increase of 120mg Cymbalta in the morning and got "brain zaps" (Google the term - it's not fun) so I dropped back

Re: [TMIC] New Medications

2009-09-05 Thread pjv1234
I take both Lyrica and Cymbalta, however, I also take Baclofen. I take 100mg Lyrica x3, 10mg Baclofen x3, and 60mg Cymbalta in the morning, 30mg Cymbalta in the afternoon. I tried an increase of 120mg Cymbalta in the morning and got "brain zaps" (Google the term - it's not fun) so I dropped back

Re: [TMIC] New Medications

2009-09-03 Thread jrushton
ke the grade, adding the Tramadol really did help! Hope this helps??? Everyone is different, right?? Jeanne ---Original Message--- From: Robert Pall Date: 9/3/2009 8:35:31 AM To: tmic-list@eskimo.com Subject: [TMIC] New Medications Readers of my postings will remember that I

Re: [TMIC] New Medications

2009-09-03 Thread Lawrence King
I was on both Lyrica and 40 mg Cymbalta, I found that Cymbalta helped with the pain though I don't suffer from banding so I can't speak to that. It also helped with my anger and depression. As for side effects it made me want to sleep 16 hrs a day and I had difficulty multi-tracking my

Re: [TMIC] New Medications

2009-09-03 Thread kimr1999
Same here, I could NOT take Lyrica and Cymbalta at the same time.. just Lyrcia alone made me loopy, and lathargic, From: Grace M. To: Robert Pall Cc: tmic-list@eskimo.com Sent: Thursday, September 3, 2009 9:58:46 AM Subject: Re: [TMIC] New Medications Hi

Re: [TMIC] New Medications

2009-09-03 Thread Grace M.
*Hi Robert, * ** *I took 60 mgs of Cymbalta per day for about two years. It didn't really help with the banding, pain, or sensory symptoms, but it was great for depression. I didn't have any side effects.* ** *Gracie*

[TMIC] New Medications

2009-09-03 Thread Robert Pall
Readers of my postings will remember that I saw Dr Kerr in July and we decided to wean myself off of 2 of my medications. The first one I went off of was 4-Aminopyridine (a Potassium channel blocker) and the second med is Lyrica. Anyway I did not notice any change in my banding going off of

Re: [TMIC] New onset of TM - little girl

2009-07-17 Thread L T CHERPESKI
y in my thoughts and prayers. Please keep us updated? Thanks Jeanne hugs, Linda (Eagle,ID) - Original Message - From: jrushton<mailto:jrush...@columbiaenergyllc.com> To: tmic<mailto:tmic-list@eskimo.com> Sent: Friday, July 17, 2009 8:05 AM Subject: [TMI

Re: [TMIC] New onset of TM - little girl

2009-07-17 Thread Grace M.
*It depends on the underlying cause of her TM. If it is something like NMO (As in my case.) then immunosuppression via chemo would be something that a neuro would definitely consider. If it is idiopathic---then, no.* ** *Respectfully, * *Grace* *(NMO since 2005)* > > > >

Re: [TMIC] New onset of TM - little girl

2009-07-17 Thread jrushton
Oh, God (and I mean that), I couldn't agree more. The only way I would feel okay with that is if Dr. Kerr agreed with them. ---Original Message--- From: roseofr...@aol.com Date: 7/17/2009 2:18:36 PM To: jrush...@columbiaenergyllc.com Subject: Re: [TMIC] New onset of TM - l

[TMIC] New onset of TM - little girl

2009-07-17 Thread jrushton
Prayers, please, again for a little girl by the name of Colby from here in Dayton who is in the Children's Hospital in Spokane with the new onset of TM. They did give her the steroids and now want to put her on chemo! Mom just called me and I said to call Dr. Kerr and beg to talk to him or one

RE: [TMIC] New Month, New Efforts

2009-05-03 Thread Akua
Thank you, Patti for reading and "hearing" me. Thank you for the compliment. It occurs to me that for all the poems I have read, I had never read one about paralysis or a wheelchair and I thank you all for my psychological survival, that I am able to talk about it. Thank you Akua for allowing

RE: [TMIC] New Month, New Efforts

2009-05-03 Thread pjv1234
Thank you Akua for allowing us to read from your heart and soul. Brilliant! I read them several times, because your words say so much! I'm not in a chair and feel that you added so much insight as to how it is for you. You should be published . Oncore! Blessings Patti - Michigan Akua

[Fwd: Re: [TMIC] New Month, New Efforts]

2009-05-03 Thread Kevin Wolfthal
--- Begin Message --- Akua, I enjoyed your poems and related to your words. Look forward to more of your writing. Kevin Akua wrote: Thank you to those who asked. Here are two of my TM-related poems from April 2009. Prompt: Object Wheelchair

Re: [TMIC] New Month, New Efforts

2009-05-02 Thread L T CHERPESKI
urday, May 02, 2009 7:08 AM Subject: Re: [TMIC] New Month, New Efforts Akua, Can we read any of your poems? I would like to and I think others would too. Patti - Michigan Akua mailto:a...@artfarm.com>> wrote: > thanks Linda, and the neurologist is a she! >

RE: [TMIC] New Month, New Efforts

2009-05-02 Thread Akua
o Patti, dear! Thank you so much. Yes, hope, faith and prayer are what get me through each day. I haven't written poems about TM since I first contracted it-- in part because my energy just wasn't what it was, and then because, I felt it was a"giving in" to the demands that my body put on my atten

RE: [TMIC] New Month, New Efforts

2009-05-02 Thread Patricia Cooley
AGAIN FOR YOUR WORDS. PLEASE GIVE US MORE. BLESSINGS ON YOU. PATTI - WISCONSIN From: Akua [mailto:a...@artfarm.com] Sent: Saturday, May 02, 2009 1:34 PM To: tmic-list@eskimo.com Subject: RE: [TMIC] New Month, New Efforts Thank you to those who asked. Here are two of my TM-related

RE: [TMIC] New Month, New Efforts

2009-05-02 Thread Akua
Shalom Trudy - in wet, rainy, damp Virginia - hey - maybe I'll try to turn that into a poem. That sounds like a great beginning! It's been crazy weather here. The apple blossoms have appeared and I'm wearing a hat and scarf! thanks for the encouragement! Hugs, Akua --

RE: [TMIC] New Month, New Efforts

2009-05-02 Thread Akua
Thank you to those who asked. Here are two of my TM-related poems from April 2009. Prompt: Object Wheelchair Confined to? No it does not imprison me, some raw deal dealt this blow requiring help for every little here to there moving through any space Brilliant contraption: wheels 4 wheels on c

RE: [TMIC] New Month, New Efforts

2009-05-02 Thread Trudy OGILVIE
... my growing up years you weren't even allowed to color "outside the line" Worrying does not empty tomorrow of its troubles; It empties today of its strengths. > Date: Fri, 1 May 2009 17:40:44 -0400 > To: tmic-list@eskimo.com > From: a...@artfarm.com > Subject: [TM

Re: [TMIC] New Month, New Efforts

2009-05-02 Thread pjv1234
Akua, Can we read any of your poems? I would like to and I think others would too. Patti - Michigan Akua wrote: > thanks Linda, and the neurologist is a she! > Akua > > >Congratulations Akua! What a huge accomplishment. I can relate to > >the neurologist challenges, and am very happy

Re: [TMIC] New Month, New Efforts

2009-05-01 Thread Akua
thanks Linda, and the neurologist is a she! Akua Congratulations Akua! What a huge accomplishment. I can relate to the neurologist challenges, and am very happy that you found a good one. It makes all the difference in the world. hugs, Linda (Eagle, ID) -- --

Re: [TMIC] New Month, New Efforts

2009-05-01 Thread L T CHERPESKI
: tmic-list@eskimo.com<mailto:tmic-list@eskimo.com> Sent: Friday, May 01, 2009 3:40 PM Subject: [TMIC] New Month, New Efforts April was National Poetry Month and I met the challenge of writing at least one poem a day every day in response to prompts. Over 30 new works!!! I am so

Re: [TMIC] New Month, New Efforts

2009-05-01 Thread Pieter and Heather
. Unfortunately I'm no help with any of the transit things there where you are in the USA. Hope you can find someone who is familiar with these things. Heather in Calgary - Original Message - From: "Akua" To: Sent: Friday, May 01, 2009 3:40 PM Subject: [TMIC] New Month, New

Re: [TMIC] New Month, New Efforts

2009-05-01 Thread jrushton
I am proud of you, too Akua!!! I will be putting you in my Prayer Pot in hopes for things to work out for you! Jeanne ---Original Message--- From: Akua Date: 5/1/2009 4:41:03 PM To: tmic-list@eskimo.com Subject: [TMIC] New Month, New Efforts April was National Poetry Month and I met

RE: [TMIC] New Month, New Efforts

2009-05-01 Thread Akua
Thanks, Tami! --

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