Re: [TMIC] banding

2010-06-07 Thread Janice Nichols
-list@eskimo.com ; Garis, Brooks (Darien, CT) Subject: Re: [TMIC] banding Janet; The convulsions could be attributed to brain lesions. I say "could be" because with my steel back rods and 7 fused lumbar and thoracic vertebrae there is no way to conduct either an MRI or a Myelogram.

Re: [TMIC] banding

2010-06-07 Thread Dalton Garis
lp > control the convulsions? > > Janice > > > From: Dalton Garis <mailto:malugss...@gmail.com> > Sent: Sunday, June 06, 2010 9:52 PM > To: Kevin Wolfthal <mailto:wolft...@optonline.net> ; Patricia Cooley > <mailto:wpcoo...@gmail.com> ; tmic-list@eskimo.co

Re: [TMIC] banding

2010-06-06 Thread Janice Nichols
it and what meds have been given to you to help control the convulsions? Janice From: Dalton Garis Sent: Sunday, June 06, 2010 9:52 PM To: Kevin Wolfthal ; Patricia Cooley ; tmic-list@eskimo.com Subject: Re: [TMIC] banding Friends; What I pit together is this sequence of events for the

Re: [TMIC] banding

2010-06-06 Thread Dalton Garis
Friends; What I pit together is this sequence of events for the onset of TM. 1. I got sick with classical MS symptoms on the 9th of January after suffering increasingly with precursors that got stronger before the big attack on the 9th. Banding, or what is termed ³the MS hug,² began then and has

Re: [TMIC] banding

2010-06-06 Thread Kevin Wolfthal
Patricia, I just started getting the banding in the past year, after 22 years of having tm. It's a girdling feeling in my upper torso. When it started I thought I was having a heart attack. I had my heart checked a few weeks ago and it's fine except for occasional tachycardia which I am treate

Re: [TMIC] banding

2010-06-06 Thread Patricia Cooley
Kevin I guess I am lucky I don't have banding, just horrible neurophy in my feet which drives me insane. I sure wish there was something they could do for all our pain. Patti - Wisconsin On Sat, Jun 5, 2010 at 3:28 PM, Kevin Wolfthal wrote: > > > Does anyone find that the sensation of banding w

Re: [TMIC] banding

2010-06-05 Thread Janice Nichols
. Is that what you are talking about? Janice -- From: "Janet Dunn" Sent: Saturday, June 05, 2010 7:13 PM To: ; "'Kevin Wolfthal'" ; Subject: RE: [TMIC] banding Ah, yes sir. When I am in an emotionally charged sit

RE: [TMIC] banding

2010-06-05 Thread Janet Dunn
Janet -Original Message- From: Dalton Garis [mailto:malugss...@gmail.com] Sent: June 5, 2010 3:50 PM To: Kevin Wolfthal; tmic-list@eskimo.com Subject: Re: [TMIC] banding I do. In fact at those times I go into muscular convulsions and caN barely talk. Dalton Abu Dhabi --Original Message--

Re: [TMIC] banding

2010-06-05 Thread Dalton Garis
I do. In fact at those times I go into muscular convulsions and caN barely talk. Dalton Abu Dhabi --Original Message-- From: Kevin Wolfthal To: tmic-list@eskimo.com Subject: [TMIC] banding Sent: Jun 6, 2010 12:28 AM Does anyone find that the sensation of banding worsens during times

Re: [TMIC] banding

2010-06-05 Thread Jan Hargrove
ever since then. I've taken many dospaks of prednisone since 1984 for my eczema which is of course another auto-immune joy!! janh   OK From: Dennis Rabalais To: tmic Sent: Sat, June 5, 2010 4:19:34 PM Subject: [TMIC] banding hi i've had banding sens

Re: [TMIC] banding

2010-06-05 Thread Janice Nichols
can come at any time, even well past the 2 year mark.To answer your question, no I have never had steroids after the 2-year mark. Janice From: Dennis Rabalais Sent: Saturday, June 05, 2010 4:19 PM To: tmic Subject: [TMIC] banding hi i've had banding

Re: [TMIC] banding

2010-06-05 Thread rn11...@yahoo.com
ouple of years.All areas affected since day of onset. Cheryl  Easthampton,MA. --- On Sat, 6/5/10, Dennis Rabalais wrote: From: Dennis Rabalais Subject: [TMIC] banding To: "tmic" Date: Saturday, June 5, 2010, 5:19 PM hi i've had banding sensation for about 3yrs in

[TMIC] banding

2010-06-05 Thread Dennis Rabalais
hi i've had banding sensation for about 3yrs into my disease. i had gotten tm in 2002. i'm interested in anyone that has used steroids 2 or more years after onset of tm. instead of banding I feel tingling in my feet.. maybe a little banding feeling. has anyone felt tingling? i cannot walk so i d

Re: [TMIC] banding

2010-06-05 Thread kimr1999
Yes I do..  and feet burn when stressed   Kim - Atlanta  T-10  TM10/06/04 --- On Sat, 6/5/10, Kevin Wolfthal wrote: From: Kevin Wolfthal Subject: [TMIC] banding To: tmic-list@eskimo.com Date: Saturday, June 5, 2010, 4:28 PM Does anyone find that the sensation of banding worsens during

Re: [TMIC] banding

2010-06-05 Thread rn11...@yahoo.com
Hi Kevin,     I have noticedit lately,but not in the past. Cheryl in Easthampton,Ma. --- On Sat, 6/5/10, Kevin Wolfthal wrote: From: Kevin Wolfthal Subject: [TMIC] banding To: tmic-list@eskimo.com Date: Saturday, June 5, 2010, 4:28 PM Does anyone find that the sensation of banding

Re: [TMIC] banding

2010-06-05 Thread Janice Nichols
I have never noticed it.Janice -- From: "Kevin Wolfthal" Sent: Saturday, June 05, 2010 3:28 PM To: Subject: [TMIC] banding Does anyone find that the sensation of banding worsens during times of emotional stress? Kevin

[TMIC] banding

2010-06-05 Thread Kevin Wolfthal
Does anyone find that the sensation of banding worsens during times of emotional stress? Kevin

RE: [TMIC]banding

2006-09-14 Thread ceckenberg
riences. Mine is on the right side, from the torso > on > down the leg, right to the foot. > > > > Janet > > > > > > From: Jill Z [mailto:[EMAIL PROTECTED] > Sent: September 4, 2006 4:49 PM > To: Krissy Z; TM List > Subject: Re: [TMIC]banding >

Re: [TMIC]banding

2006-09-06 Thread Lynn Pouliot
: Jill Z To: Krissy Z ; TM List Sent: Monday, September 04, 2006 7:48 PM Subject: Re: [TMIC]banding I used to get the banding across the top and arch of my left foot as if I had an ankle brace on.  I also would get around on my left wrist.Krissy Z <[EMAIL PROTECTED]>

Re: [TMIC] Banding is really bad right now--what helps?

2006-09-05 Thread Jaime
: TM list Sent: Tuesday, September 05, 2006 3:42 AM Subject: Re: [TMIC] Banding is really bad right now--what helps? Everyone with tm should move to South Australia, MJ  is decriminalised  and you are allowed to grow one plant, in the garden.   One of my sons  kindly

Re: [TMIC]banding

2006-09-05 Thread Alle111
my banding is at my lower chest/upper stomach and it feels as though someone has a belt pulling it. Kind of like your bra is too tight. If I have a spasm, it is very difficult (for about 2 seconds) to breathe in but it is just something that is there. NOTHING has stopped it. I was in a coma

RE: [TMIC]banding

2006-09-05 Thread pjv1234
orso on > down the leg, right to the foot. > > Janet > > > From: Jill Z [mailto:[EMAIL PROTECTED] > Sent: September 4, 2006 4:49 PM > To: Krissy Z; TM List > Subject: Re: [TMIC]banding > > > I used to get the banding across the top and arch

Re: [TMIC] Banding is really bad right now--what helps?

2006-09-05 Thread Gillian Clark
-list@eskimo.com Sent: Saturday, September 02, 2006 12:04 PM Subject: Re: [TMIC] Banding is really bad right now--what helps? yea i agree, sometime i induldge in this but it is illegal.  it makes me feel better, i forget about my situation and hug my trees, maybe a stretch but its

Re: [TMIC]banding

2006-09-04 Thread Heather & Pieter
Janet, Do you take anything for the banding?? Heather in Calgary - Original Message - From: Janet Dunn To: 'TM List' Sent: Monday, September 04, 2006 7:45 PM Subject: RE: [TMIC]banding I am so glad to hear of these accounts of banding.  Mine

RE: [TMIC]banding

2006-09-04 Thread Jill Z
mber 4, 2006 4:49 PMTo: Krissy Z; TM ListSubject: Re: [TMIC]banding   I used to get the banding across the top and arch of my left foot as if I had an ankle brace on.  I also would get around on my left wrist.Krissy Z <[EMAIL PROTECTED]> wrote: My banding is usually my right leg, and some days

RE: [TMIC]banding

2006-09-04 Thread Janet Dunn
)  Thank you for sharing your experiences.  Mine is on the  right side, from the torso on down the leg, right to the foot.   Janet     From: Jill Z [mailto:[EMAIL PROTECTED] Sent: September 4, 2006 4:49 PM To: Krissy Z; TM List Subject: Re: [TMIC]banding   I used to get the banding

Re: [TMIC]banding

2006-09-04 Thread Jaime
thats whay I ignor it... - Original Message - From: Krissy Z To: TM List Sent: Monday, September 04, 2006 3:53 PM Subject: Re: [TMIC]banding My banding is usually my right leg, and some days better than others, the tightness around my ankle and knee...sometimes my

Re: [TMIC]banding

2006-09-04 Thread Jill Z
I used to get the banding across the top and arch of my left foot as if I had an ankle brace on.  I also would get around on my left wrist.Krissy Z <[EMAIL PROTECTED]> wrote: My banding is usually my right leg, and some days better than others, the tightness around my ankle and knee...sometimes my

Re: [TMIC]banding

2006-09-04 Thread Krissy Z
My banding is usually my right leg, and some days better than others, the tightness around my ankle and knee...sometimes my calf, never really painful tho just tight like someone is gripping it tighlyor there is some weight around my ankleKrissy ZoddaTri State Support Group Leader(603)589-1

Re: [TMIC] Banding is really bad right now--what helps?

2006-09-02 Thread Sandy Heidel
These would be union women then??? - Original Message - From: <[EMAIL PROTECTED]> To: Sent: Saturday, September 02, 2006 8:46 AM Subject: Re: [TMIC] Banding is really bad right now--what helps? Greetings, If you are having increased symptoms, it may because we are appro

Re: [TMIC] Banding is really bad right now--what helps?

2006-09-02 Thread Sharon Marsden
September 2, 2006 6:46:56 AMSubject: Re: [TMIC] Banding is really bad right now--what helps? Greetings,If you are having increased symptoms, it may because we are approaching Labor day.Labor day began millenium ago by prehistoric man to celebrate the fact that women, not men, have to suffer throu

Re: [TMIC] Banding is really bad right now--what helps?

2006-09-02 Thread [EMAIL PROTECTED]
Greetings, If you are having increased symptoms, it may because we are approaching Labor day. Labor day began millenium ago by prehistoric man to celebrate the fact that women, not men, have to suffer through the birthing process. I hopes that helps. pH

Re: [TMIC] banding

2006-09-01 Thread Jaime
my banding came on suddenly and lasted only a weekend then the other symptoms started in... - Original Message - From: ROBERT COOK To: TMIC Sent: Friday, September 01, 2006 3:11 PM Subject: RE: [TMIC] banding I ASSUME BROKEN RIBS HAVE BEEN RULED OUT

Re: [TMIC] Banding is really bad right now--what helps?

2006-09-01 Thread Jaime
, September 01, 2006 2:08 PM Subject: Re: [TMIC] Banding is really bad right now--what helps? What helps the severe banding? Sharon, "Hemp!!" Call it Marinol- a prescription medication. Synthetic Hemp. I take 5 mg up to three times a day for pain. Call it Marihaunna- "

Re: [TMIC] banding

2006-09-01 Thread Jaime
get hold of Dr. Kerr at Johns Hopkins and have him talk to his doctors.  He is great and would never turn down a chance to help someone - Original Message - From: Neil & Wendy To: TMIC Sent: Friday, September 01, 2006 1:13 PM Subject: [TMIC] banding

Re: [TMIC] Banding is really bad right now--what helps?

2006-09-01 Thread pjv1234
the Baclofen should relieve the banding. It helps me and I only take 40mg daily. Patti Sharon Marsden <[EMAIL PROTECTED]> wrote: > I have long had the banding or girdling around my ribs. But for the last > week it's been worse than ever and I am in so much pain. I take 3200 mg. of > Neu

RE: [TMIC] banding

2006-09-01 Thread ROBERT COOK
AREAS.   JMTCW   BOB SPRING, TEX     - Original Message - From: Neil & Wendy To: TMIC Sent: 9/1/2006 1:14:46 PM Subject: [TMIC] banding Hi  everyone,   Cole has been having pain in his sides on his ribs. It comes and goes. I was wondering if this could be the banding that everyone t

Re: [TMIC] Banding is really bad right now--what helps?

2006-09-01 Thread [EMAIL PROTECTED]
> What helps the severe banding? Sharon, "Hemp!!" Call it Marinol- a prescription medication. Synthetic Hemp. I take 5 mg up to three times a day for pain. Call it Marihaunna- "a killer drug, addictive and a 'gate way' to more, bad drugs" says the Bush administration. In Canada, Call it

[TMIC] banding

2006-09-01 Thread Neil & Wendy
Hi  everyone,   Cole has been having pain in his sides on his ribs. It comes and goes. I was wondering if this could be the banding that everyone talks about. If so how do I make the doctors understand what I am talking about?   Any Ideas ?   Thanks Wendy

[TMIC] Banding is really bad right now--what helps?

2006-09-01 Thread Sharon Marsden
I have long had the banding or girdling around my ribs.  But for the last week it's been worse than ever and I am in so much pain.  I take 3200 mg. of Neurontin a day, 70 mg. of Baclofen, Cymbalta and Klonopin.  I put in a call to my neuros office yesterday but have not heard from him yet.     What

[TMIC] BANDING

2006-02-08 Thread Harriet Schlacht
Dear All,     It was so gratifying to hear the issue of banding raised. Two and a half years ago, I got TM at the T5,6 region. I am blessed to be able to walk again and for that I am grateful. It wasn't without mentail adjustment of my new feet however. I feel the same things you feel, those of you

[TMIC] BANDING

2006-02-06 Thread dennis rabalais
HI ALL,     MY EXPERIENCE WITH BANDING STARTED FROM DAY ONE UP TO THE SECOND MONTH. SINCE IT HAS STOPPED. I HAVE BEEN ON BACLOFIN, AND NOW ON BOTH BACLOFIN AND ZANAFLEX. I STILL FEEL STIFFNESS AND PAIN IN MY BODY.   DENNIS   BEAUMONT, TX   Brings words and photos together (easily) with Pho