Initially I had no feeling whatsoever from the waist downand it
stayed that way for 2-3 months. When some feeling started to return my
main problem was on my right side which is basically numb with excessive
banding (tightening) in my right leg just above the knee. My left leg
has always been m
efore in
order to gain strength as often.
Hugs, Barbara A in Auburn CA
-Original Message-
From: Robert Pall
To: Jan Hargrove ; lynne myers ;
tmic
Sent: Wed, Mar 10, 2010 8:19 am
Subject: RE: [TMIC] Lesions and Myelin Regeneration
As someone who has had TM for close to 13 years
So Sorry I did mean now not not.
--- On Thu, 3/11/10, Pieter and Heather wrote:
From: Pieter and Heather
Subject: Re: [TMIC] Lesions and Myelin Regeneration
To: "lynne myers" , "tmic"
Date: Thursday, March 11, 2010, 4:31 PM
Lynne,
I think you meant to write that Jim Lu
To: tmic
Sent: Thursday, March 11, 2010 5:44 AM
Subject: Re: [TMIC] Lesions and Myelin Regeneration
In my original post I did not state that there would be no imporvement
after the two year mark. With TM most of the improvements take place in the
first two years. After that
Lubin is actually
not able to move a finger after being paralized for years.
--- On Wed, 3/10/10, Janice Nichols wrote:
From: Janice Nichols
Subject: Re: [TMIC] Lesions and Myelin Regeneration
To: "Robert Pall" , "Jan Hargrove"
, "lynne myers" , "tmic"
2010 10:19 AM
To: Jan Hargrove ; lynne myers ; tmic
Subject: RE: [TMIC] Lesions and Myelin Regeneration
As someone who has had TM for close to 13 years I thought I too would chime
in on the subject. After 12 years I had a new MRI performed which showed the
lesion exactly as it appeared ini
I am at the 3-year mark, and I am definitely experiencing some improvements -
even in walking. We can NEVER give up.
Janice
From: Patricia Cooley
Sent: Wednesday, March 10, 2010 10:44 AM
To: 'Jan Hargrove' ; 'lynne myers' ; 'tmic'
Subject: RE: [TMIC] L
"DITTO", Jan!!!
Janice
From: Janet Dunn
Sent: Wednesday, March 10, 2010 12:06 PM
To: 'tmic'
Subject: RE: [TMIC] Lesions and Myelin Regeneration
I think that the improvement happens. For everybody? Depends. I have found a
few improvements in areas, and some worsenin
more readily. So I remain ever hopeful. And it has been since July 2004
that I have been afflicted.
Janet
From: Jan Hargrove [mailto:jmh1...@sbcglobal.net]
Sent: March 10, 2010 8:51 AM
To: lynne myers; tmic
Subject: Re: [TMIC] Lesions and Myelin Regeneration
I do not agree with the two
*After nearly four and a half years, I regained patchy spots of feeling on
the bottom of the foot and calf of my right leg. The majority of my trunk
and legs are still numb, but this is a definite improvement. I attribute it
to my use of Rituxan (For NMO), as late improvements are not unknown wit
...@sbcglobal.net]
Sent: Wednesday, March 10, 2010 9:51 AM
To: lynne myers; tmic
Subject: Re: [TMIC] Lesions and Myelin Regeneration
I do not agree with the two year statement. My doctor never told me that
I wouldn't get well, nor give me a timeline. The only thing he said would
not return w
nyone with our rare condition.
Rob in New Jersey
From: Jan Hargrove [mailto:jmh1...@sbcglobal.net]
Sent: Wednesday, March 10, 2010 10:51 AM
To: lynne myers; tmic
Subject: Re: [TMIC] Lesions and Myelin Regeneration
I do not agree with the two year statement.
I do not agree with the two year statement. My doctor never told me that
I wouldn't get well, nor give me a timeline. The only thing he said would
not return was my temperature control. He was right!! AND, I've had
improvements throughout the 14 years tm's been in my lifeno matter
how s
At about the two year mark, me missus had a second event (this one at C-5,6).
It was then that her dx was changed to MS.
BobbyJim in Elvisland.
From: lynne myers To: tmic Sent: Wednesday, March 10, 2010 6:26
Subject: [TMIC] Lesions and Myelin Regeneration
This
te:
From: [EMAIL PROTECTED] <[EMAIL PROTECTED]>
Subject: Re: [TMIC] lesions, re-occurance of TM and such
To: [EMAIL PROTECTED], [EMAIL PROTECTED], tmic-list@eskimo.com
Cc: "Sharon M" <[EMAIL PROTECTED]>
Date: Monday, December 1, 2008, 7:49 PM
I also tried Lyrica and all
elong"--- On Sun, 11/30/08, George Kittner <[EMAIL PROTECTED]> wrote:
From: George Kittner <[EMAIL PROTECTED]>Subject: Re: [TMIC] lesions, re-occurance of TM and suchTo: [EMAIL PROTECTED]Date: Sunday, November 30, 2008, 9:44 PM
I am on Lyrica 100mg 3x day for my TM. It
is where you belong"
--- On Sun, 11/30/08, George Kittner <[EMAIL PROTECTED]> wrote:
From: George Kittner <[EMAIL PROTECTED]>
Subject: Re: [TMIC] lesions, re-occurance of TM and such
To: [EMAIL PROTECTED]
Date: Sunday, November 30, 2008, 9:44 PM
I am on Lyrica 100mg 3x day f
08, Pieter and Heather <[EMAIL PROTECTED]> wrote:
From: Pieter and Heather <[EMAIL PROTECTED]>
Subject: Re: [TMIC] lesions, re-occurance of TM and such
To: [EMAIL PROTECTED], tmic-list@eskimo.com
Date: Thursday, November 27, 2008, 10:42 PM
AOL Email
Sharon,
Are you going to be
AOL EmailSharon,
Are you going to be seeing your neuro again soon? I would be asking him about
it again. Could it be another attack of the MS? I know my sister has MS and
hers was a severe attack back in the late 80's. At that time they weren't sure
it was MS.She then had a second severe at
That's what my first neuro says too. Thanks.
Sharon
The bluebird in the cedar tree spoke to me... "Your heart's desire dwells
here--this is where you belong"
--- On Thu, 11/27/08, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote:
From: [EMAIL PROTECTED] <[EMAIL P
Thanks Jude
I was really smiling. "A smile can take your sorrow away - so why not be
looted." So I am trying to smile as much as I can! Just
keeping my spirits up and my sanity intact with my poor darling hubby still in
India and managing life without me and I am sending all the goo
rsday, April 27, 2006 7:50 AM
Subject: Re: [TMIC] lesions in the brain
-
> Well, from what I've learned so far, as we age, all of us, our brains
> shrink at least 2% per year, more for those afflicted with >
TM-MS,etc..---
Frank
So if one's brain is not shrunk by a shrink it has less chances of shrinking
with age??
Nima
My brain was shrunk years ago by a psychiatrist, so maybe that's why it's
expanding!!
F
> Well, from what I've learned so far, as we age, all of us, our brains >
> shrink at least 2% per year, more for those afflicted with > TM-MS,etc..
I thought that any changes- seen on C.T. or MRI probably represent some sort of
disease such as mini strokes, atherosclerosis...
where did yo
I know that when they suspect someone of Alhzeimer's they scan the brain to
look for lesions. I know this because my mom has Alhzeimer's.
>>> Sue Zieke <[EMAIL PROTECTED]> 04/25/06 11:48 PM >>>
has anyone ever heard that as some people age they get lesions in their
brains, that are not ms or rea
Well, from what I've learned so far, as we age,
all of us, our brains shrink at least 2% per year, more for those afflicted with
TM-MS,etc.. They're not lesions as such but just the brain
shrinking as it ages. And that's why it's important to do all kinds
of brain 'exercises' to keep
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