In a message dated 5/12/2007 2:41:21 PM Eastern Daylight Time,
[EMAIL PROTECTED] writes:
. I know that this was about Jude but it seemed a relaventant time to reach
out for some help. Rick
THAT'S RIGHT RICK...ALL THIS DRAMA HAS BEEN ABOUT ME...ME, ME, ME
ALL MINE, NOBODY ELSE, ONLY ME,
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Saturday, May 12, 2007 4:33 PM
To: [EMAIL PROTECTED]
Cc: tmic-list@eskimo.com
Subject: Re: [TMIC] allodynia - Lynn
I wonder if it is that the TM makes things worse (my understanding is that
it's a one-time thing wi
Frank
Holding your breath and gritting your teeth during sex isn't sexy is it?
I also have Brown Sequad Syndrome and was furious the first time I read it in
the neuro's report to my PCP. I thought he was changing my TM Diagnosis to
something else until I Googled and learned it was yet another sy
Deb,
So sorry to hear of your pain, but I am glad to hear that you are able to
get a comfortable night sleep. Have you lost any body function after you
gained it back?
What type of work do you do? I agree that continuing to work and trying to
stay busy, helps with the pain. I am unable
27;s Day to all, Deb C in Mi.--- On Sat 05/12, <
[EMAIL PROTECTED] > wrote:From: [mailto: [EMAIL PROTECTED]:
[EMAIL PROTECTED], [EMAIL PROTECTED], [EMAIL PROTECTED], [EMAIL PROTECTED],
[EMAIL PROTECTED]: Sat, 12 May 2007 12:22:51 EDTSubject: Re: [TMIC] allodynia -
Lynn
In a message dated 5/
In a message dated 5/12/2007 2:49:43 PM Eastern Daylight Time,
[EMAIL PROTECTED] writes:
I have had TM almost 7 years and have sort of hit a plateau. Because I was
in a coma and came out paralyzed from the jaw down, it took approx. 1 1/2
years to get much of anything back but eventually I
Rick,
Just because I brought up the initial topic, doesn't mean that you don't
have the right to apply it to yourself when the same things are happening to
you.
You are darn right...it is scary and especially when you think you are all
alone, or like me...is it all in my head?
You never
ROTECTED]
Sent: Saturday, May 12, 2007 2:41 PM
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED];
[EMAIL PROTECTED]; [EMAIL PROTECTED]; Tmic-list@eskimo.com
Subject: Re: Re: [TMIC] allodynia - Lynn
After three or four trips to the emergency room thinking I was having a
heart attack and
But Frank.
Am I being foolish in believing that I haven't gotten worse in my 3.5 yrs since
TM? Do you think that once the lesion is there as seen on my MRI it always has
the possibility of spreading the same as a paint chip? If a paint chip is
fixed it won't rust. My MRI shows "scarring"
I wonder if it is that the TM makes things worse (my understanding is that
it's a one-time thing with residual symptoms rather than a progressive
illness), or that normal aging feels worse because of TM -- all the aches,
pains,
etc., are magnified because of our sensations.
Barbara H.
_h
O-U-C-H! I'm almost sorry I asked the question about having more pain
caused by TM as we age. Disheartening.
Heather in Calgary
- Original Message -
From: <[EMAIL PROTECTED]>
To: <[EMAIL PROTECTED]>
Cc:
Sent: Saturday, May 12, 2007 10:01 AM
Subject: Re: [TMIC]
in Calgary
- Original Message -
From: "Lynn Pouliot" <[EMAIL PROTECTED]>
To: "Kevin Wolfthal" <[EMAIL PROTECTED]>;
Sent: Saturday, May 12, 2007 10:07 AM
Subject: Re: [TMIC] allodynia - Lynn
Kevin,
It is so true and I am glad I am not the only one. People think I
I can't resist the temptation to add another 'view' to the picture presented by
Frank's allegory. This is NOT in conflict with his; just a possible other way
of looking at it - which may not fit for everyone - but I'd be willing to bet
that it fits for many - which is why I'm sticking my neck o
I have had TM almost 7 years and have sort of hit a plateau. Because I was in
a coma and came out paralyzed from the jaw down, it took approx. 1 1/2 years
to get much of anything back but eventually I got back my upper body strength
and little movement below the hips. The pain hasn't gotten any
51 EDT
> To: [EMAIL PROTECTED], [EMAIL PROTECTED], [EMAIL PROTECTED],
> [EMAIL PROTECTED], Tmic-list@eskimo.com
> Subject: Re: [TMIC] allodynia - Lynn
>
>
> In a message dated 5/12/2007 11:25:49 AM Eastern Daylight Time,
> [EMAIL PROTECTED] writes:
>
> &g
I am quickly
> gaining new symptoms. I have been thinking that I might be "sick in the
> head"
> but I know that my symptoms are real.
Ok, Listen up, Here is my story, the allegory (?), similie (?):
You are driving behind a dump truck in you new car. A piece of pebble fly on
to the hood
In a message dated 5/12/2007 11:25:49 AM Eastern Daylight Time,
[EMAIL PROTECTED] writes:
>>> I'm also interested in Heather's question: how many people w/TM
> >>> more> than 3 or 4 years have gotten >worse as time goes by?
> >>>
> >>
> >> Perhaps the question should be:
> >>
> >> Are ther
IL PROTECTED]>
To: "Lynn Pouliot" <[EMAIL PROTECTED]>;
Sent: Thursday, May 10, 2007 10:33 PM
Subject: Re: [TMIC] allodynia - Lynn
Lynn,
This is one of the oddest things I've noticed with my own symptoms.
My feet are numb to the touch, I can't tell what direction my bi
thal; Lynn Pouliot; Tmic-list@eskimo.com
Subject: Re: [TMIC] allodynia - Lynn
Lynn and Kevin,
Is it just great to not "feel" unless it feels like a thunderbolt has it
you!
I fell one night and it took 3 more falls before I realized that the "pain"
was what was making my legs give
To: [EMAIL PROTECTED], Tmic-list@eskimo.com
Subject: Re: [TMIC] allodynia - Lynn
I took a very bad fall, full force onto
a concrete floor a few ears ago. I think
that may be the reason I am having
hand numbness and neck/shoulder
problems now. An employee in the
build
05/11 Fri AM 07:09:38 EDT
To: [EMAIL PROTECTED], Tmic-list@eskimo.com
Subject: Re: [TMIC] allodynia - Lynn
I took a very bad fall, full force onto
a concrete floor a few ears ago. I think
that may be the reason I am having
hand numbness and neck/shoulder
problems now. An employee in the
- dah. But, this was the first time
that a fall had caused real pain and I am a little slower since TM to
anaylze cause/effect.
Candy K.
[Original Message]
From: Kevin Wolfthal <[EMAIL PROTECTED]>
To: Lynn Pouliot <[EMAIL PROTECTED]>;
Date: 5/10/2007 11:34:04 PM
Subject: Re: [TMI
Candis Kalley
[EMAIL PROTECTED]
EarthLink Revolves Around You.
> [Original Message]
> From: Candis Kalley <[EMAIL PROTECTED]>
> To: Kevin Wolfthal <[EMAIL PROTECTED]>; Lynn Pouliot
<[EMAIL PROTECTED]>;
> Date: 5/11/2007 1:31:28 AM
> Subject: Re: [TMIC] al
in and I am a little slower since TM to
anaylze cause/effect.
Candy K.
> [Original Message]
> From: Kevin Wolfthal <[EMAIL PROTECTED]>
> To: Lynn Pouliot <[EMAIL PROTECTED]>;
> Date: 5/10/2007 11:34:04 PM
> Subject: Re: [TMIC] allodynia - Lynn
>
>
>
> Lynn
: <[EMAIL PROTECTED]>;
Sent: Monday, May 07, 2007 9:42 AM
Subject: Re: [TMIC] allodynia
I'm also interested in Heather's question: how many people w/TM
more> than 3 or 4 years have gotten >worse as time goes by?
Perhaps the question should be:
Are there any of us who have NOT had an increase in symptoms??
F
inutes.
Lynn in RI
- Original Message -
From: <[EMAIL PROTECTED]>
To: <[EMAIL PROTECTED]>;
Sent: Monday, May 07, 2007 9:42 AM
Subject: Re: [TMIC] allodynia
I'm also interested in Heather's question: how many people w/TM more>
than 3 or 4 years have gotten >
My problem is that when I have my feet up on the ottoman and someone wearing
shorts or a lab coat come up and rubbing the edge of the cloth my toes. It
will send a shock up my leg and making my foot spasm. Then want to know why
I'm afraid of people coming up to me.
Todd in CC, TX
Gillian
Hi All,
I was trying to find information on the neuropathic pain we are all
experiencing since our TM attacks. I clump all the various problems such as
cold/burning/numb/stiff/screaming skin (I think that covers most of it) under
the term neuropathic pain. That is the term the Neurologist use
Hi Patti,
I am at 1600 mg Neurontin in the morning, and 1800 mg Neurontin mid day and
bedtime. That's a total of 5200/day, and that is a huge amount. When I
originally went on it, I was told that 3600 was max per day, but then on the
TMIC
learned that there were many who took more than t
or shopping or
long trips in the car. Supposedly Lyrica is just the "latest" drug to take
the place of Neurontin.
Trudy
-Original Message-
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Monday, May 07, 2007 10:43 AM
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subjec
lease re-contact us in case
your information has not been retained.
-Original Message-
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Monday, May 07, 2007 10:43 AM
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: Re: [TMIC] allodynia
> I'm also interested in Heather&
> I'm also interested in Heather's question: how many people w/TM more> than 3
> or 4 years have gotten >worse as time goes by?
>
Perhaps the question should be:
Are there any of us who have NOT had an increase in symptoms??
F
Barbara
You explain this very well. I am also on Neurontin and know when it is time
for my dose by how I feel. I increased my dose by changing from every eight
hours to every 6 hours. I just took one at 5.5 hrs because I felt the need.
We aren't junkies. We could quit our meds if it wasn't
It's not just the 3 of them. I have exactly the same symptoms and problems
with clothes, breezes, fans, air-conditioning, sun, heat, pets, and
unfortunately human touches. I've learned to prepare for someone touching me
and forcing myself not to jump or pull away, but it still hurts. I grind
Hi Sally,
My nerve pain is like I have an extremely painful sunburn while sitting in a
pool of ice. That's the freezing/burning for me. My lesion was at T8-10,
and this is the most painful from just above the waist to my toes. My torso
from about my bra strap to my waist is generally war
Candis, Frank, & Gillian,
Wow! I've never heard of it! That sounds terrible, especially on top of
everything else! Some of my 'pain' feels like 'freeze-burn' or a bad sunburn,
but it's not that big of a thing - just kind of distracting or irritating.
Yours sounds really painful! Does anyon
Sally it's hypersensitivity to touch, or things that hurt that shouldn't and
vice versa. pHranque will probably give you a much more medical description
though.
If you stuck a pin in me, I might not feel it but if you rubbed a cotton wool
ball over me ever so gently it would cause unbearable
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