That happens to me also.Janice
From: john snodgrass
Sent: Wednesday, November 10, 2010 12:17 PM
To: transverse myelitis
Subject: RE: [TMIC] hello out there
another strange thing i have experienced is i would feel something wet
like on my leg or somewhere and think ,,what the heck
nerves.
gotta love em.
--- On Wed, 11/10/10, Carol E wrote:
From: Carol E
Subject: RE: [TMIC] hello out there
To: jan...@centurytel.net, tmic-list@eskimo.com
Date: Wednesday, November 10, 2010, 12:45 PM
With the exception of my face, I don't have any problems staying dry at night
This is a really nasty part of TM. Hate it! Janice
From: Carol E
Sent: Wednesday, November 10, 2010 11:45 AM
To: jan...@centurytel.net ; tmic-list@eskimo.com
Subject: RE: [TMIC] hello out there
With the exception of my face, I don't have any problems staying dry at night.
I
o: jcs...@yahoo.com; tmic-list@eskimo.com
Subject: Re: [TMIC] hello out there
Date: Wed, 10 Nov 2010 10:42:55 -0600
Carol, how are you at staying dry during the nite? I have a real problem
with that and always have to wear protection and sometimes that doesn't always
work. Can't
...@centurytel.net]
Sent: Wednesday, November 10, 2010 10:43 AM
To: john snodgrass; transverse myelitis
Subject: Re: [TMIC] hello out there
Carol, how are you at staying dry during the nite? I have a real problem
with that and always have to wear protection and sometimes that doesn't always
work.
You are right, that helps.Also, blowing your nose does too! I void
completely when I go, but apparently make a lot of urine late at nite.
Janice
From: CANDIS KALLEY
Sent: Wednesday, November 10, 2010 10:28 AM
To: tmic-list
Subject: Re: [TMIC] hello out there
I also have the problem
its!
Janice
From: john snodgrass
Sent: Wednesday, November 10, 2010 10:15 AM
To: transverse myelitis
Subject: RE: [TMIC] hello out there
Carol E,
your sunday to present condition sounds almost exactly like mine.
heavy sigh.
--- On Wed, 11/10/10, Carol E wrote
Sent: Wednesday, November 10, 2010 10:06 AM
To: malugss...@gmail.com ; tmic-list@eskimo.com
Subject: RE: [TMIC] hello out there
I also have the residuals as Linda mentioned...burning, banding, weakness,
bladder control. Sometimes I can void normally (pre TM) and other times I have
to sit on the
t;rare" TM is.
Maybe Dr. Frank should get in on this. I would trust his answers.
Janice
From: john snodgrass
Sent: Wednesday, November 10, 2010 4:02 AM
To: transverse myelitis
Subject: Re: [TMIC] hello out there
i have asked my Dr a couple of times why i have the symptoms with no
bly .
And never regret anything that made you smile.
Prayers and thoughts for you and yours,
Candy K.
- Original Message -
From: "john snodgrass"
To: "transverse myelitis"
Sent: Wednesday, November 10, 2010 11:15:06 AM
Subject: RE: [TMIC] hello out ther
Carol E,
your sunday to present condition sounds almost exactly like mine.
heavy sigh.
--- On Wed, 11/10/10, Carol E wrote:
From: Carol E
Subject: RE: [TMIC] hello out there
To: malugss...@gmail.com, tmic-list@eskimo.com
Date: Wednesday, November 10, 2010, 11:06 AM
I also have the
om
To: malugss...@gmail.com; tmic-list@eskimo.com; snow121...@hotmail.com
Subject: Re: [TMIC] hello out there
Date: Tue, 9 Nov 2010 21:16:00 -0700
This is what I have been told also. My lesions can still be seen but they are
inactive (C4,5,6). I was told they are like a scar. However, I'v
affected areas after the
proteen is replaced at the lesions.
--- On Tue, 11/9/10, Carol E wrote:
From: Carol E
Subject: RE: [TMIC] hello out there
To: malugss...@gmail.com, tmic-list@eskimo.com
Date: Tuesday, November 9, 2010, 11:04 PM
Hi Dalton and all,
I was 1st diagnosed with TM June 2005
i have asked my Dr a couple of times why i have the symptoms with no lesions
and he said it was because of the nerves damaged from the TM
--- On Tue, 11/9/10, Dalton Garis wrote:
From: Dalton Garis
Subject: Re: [TMIC] hello out there
To: "L T CHERPESKI" , tmic-list@eskimo.com
ooler I keep my body, the less chance I will get hot.
> Janice
>
> *From:* L T CHERPESKI
> *Sent:* Tuesday, November 09, 2010 10:26 PM
> *To:* tmic-list@eskimo.com ; malugss...@gmail.com ; Barbara
> Alma; Janice
> Nichols
> *Subject:* Re: [TMIC] hello out there
>
>
To: Dalton Garis , , Carol E
Subject: Re: [TMIC] hello out there
Resent-From:
Resent-Date: Tue, 9 Nov 2010 20:17:15 -0800
This is what I have been told also. My lesions can still be seen but they
are inactive (C4,5,6). I was told they are like a scar. However, I've seen
p
my body, the less chance I will get hot.
Janice
From: L T CHERPESKI
Sent: Tuesday, November 09, 2010 10:26 PM
To: tmic-list@eskimo.com ; malugss...@gmail.com ; Barbara Alma ; Janice Nichols
Subject: Re: [TMIC] hello out there
Welcome back, Janice! Sounds like you had a wonderful time. (So
mailto:balmat...@aol.com>
Sent: Tuesday, November 09, 2010 6:43 PM
Subject: Re: [TMIC] hello out there
Actually, I love the winter weather.At least then I don't have many "hot"
spells. I can control that better in cold weather. Anyone else like that?
Janice
So, I have all the symptoms;
But no lesions. OK, I¹m stumped, except that the brainstem lesions are
still there.
Dalton
From: L T CHERPESKI
Date: Tue, 9 Nov 2010 21:16:00 -0700
To: Dalton Garis , , Carol E
Subject: Re: [TMIC] hello out there
Resent-From:
Resent-Date: Tue, 9 Nov 2010 20:17
that some days are better than others. It's going on 9 years for me. Hope you
get to feeling better!
Linda in Eagle, ID
- Original Message -
From: Carol E
To: malugss...@gmail.com ; tmic-list@eskimo.com
Sent: Tuesday, November 09, 2010 9:04 PM
Subject: RE: [TMIC]
scar.
Carol in Addison, IL
Date: Wed, 10 Nov 2010 07:50:59 +0400
Subject: Re: [TMIC] hello out there
From: malugss...@gmail.com
To: jan...@centurytel.net; balmat...@aol.com; tmic-list@eskimo.com
Hey, Janice!
We missed you. And I missed you. Glad to have you back with us.
I have a que
me housebound and often
unable to get around without assistance of my dear part-time maid and
helper.
Could someone get back to me on this?
Thanks a lot.
Dalton
From: Janice Nichols
Date: Tue, 9 Nov 2010 19:28:29 -0600
To: Dalton Garis , Barbara Alma ,
Subject: Re: [TMIC] hello out there
I do
that has got to b a "woman" thing
I thank God everyday that I am not a woman!
;)
--- On Tue, 11/9/10, Janice Nichols wrote:
From: Janice Nichols
Subject: Re: [TMIC] hello out there
To: cherp...@msn.com, tmic-list@eskimo.com, malugss...@gmail.com, "Barbara
Alma&
mplex.
--- On Tue, 11/9/10, Janice Nichols wrote:
From: Janice Nichols
Subject: Re: [TMIC] hello out there
To: "Dalton Garis" , "Laura Beaudin"
Cc: "Barbara Alma" , tmic-list@eskimo.com
Date: Tuesday, November 9, 2010, 8:34 PM
Dalton, maybe you should start bugg
i havet worked since tuesday last week and i have had 1 decent day since.
lots and lots of spasms today.
ofcource the barametric pressure is up pretty good today.
--- On Tue, 11/9/10, Janice Nichols wrote:
From: Janice Nichols
Subject: Re: [TMIC] hello out there
To: "john snod
ss...@gmail.com
Subject: Re: [TMIC] hello out there
Hello all,
Well, maybe I shouldn't have asked this question, but I'm glad I did. It looks
like some support was needed for you guys and maybe for some just lurking and
not feeling up to writing in. Believe me, I sympathize with you and
Re: [TMIC] hello out thereI agree with you Linda.He needs help.
Janice
From: L T CHERPESKI
Sent: Sunday, November 07, 2010 6:43 PM
To: tmic-list@eskimo.com ; Barbara Alma ; Dalton Garis
Subject: Re: [TMIC] hello out there
Hi Dalton & Everyone ~~
You're right Dalton. Many of u
We live and learn!Put those 6-month infusions on the calendar.Hope you
are comfortable now.
Janice
From: L T CHERPESKI
Sent: Sunday, November 07, 2010 5:33 PM
To: tmic-list@eskimo.com ; Barbara Alma
Subject: Re: [TMIC] hello out there
Have been trying to keep myself calm and quiet
@eskimo.com
Subject: Re: [TMIC] hello out there
Well;
I was MRI-d this summer and they found no evidence of demyelination (but
couldn't rule out inflammation, of course). I have also been tested for
epilepsy and they didn't find any, but found pseudo-epilepsy-whatever that is.
The
No, I haven't noticed that, but I have noticed strange bruising with no pain.
I prefer my situation to yours.
Janice
From: CANDIS KALLEY
Sent: Sunday, November 07, 2010 10:55 AM
To: tmic-list
Subject: Re: [TMIC] hello out there
Dalton,
So sorry that you had another bad day.
Wit
unday, November 07, 2010 10:23 AM
To: Barbara Alma ; tmic-list@eskimo.com
Subject: Re: [TMIC] hello out there
Actually;
I had a day-long attack of spasms yesterday which left me unable to control
either my hands and arms, legs, torso or speech. Every time I tried to talk I
would cramp up. And Elvi
John
Have you retired yet? If so, can you tell a difference in how you feel?
Janice
From: john snodgrass
Sent: Sunday, November 07, 2010 3:59 AM
To: transverse myelitis
Subject: Re: [TMIC] hello out there
I would say the pain is not as intense as it has been but am afraid i
will
Good idea. Janice
From: Barbara Alma
Sent: Saturday, November 06, 2010 10:48 PM
To: tmic-list@eskimo.com
Subject: [TMIC] hello out there
Well, I guess since nobody has written in that all must be going well for
everyone. It's very good to hear this. I do think that it is a good idea to
Message -
From: "john snodgrass"
To: "transverse myelitis"
Sent: Monday, November 8, 2010 7:55:37 AM
Subject: Re: [TMIC] hello out there
i have been attempting to journalize the weather and my pain on a 1-10 scale.
and it seams as if when the barametric pressu
i have been attempting to journalize the weather and my pain on a 1-10 scale.
and it seams as if when the barametric pressure is up I hurt more.
--- On Sun, 11/7/10, Barbara Alma wrote:
From: Barbara Alma
Subject: Re: [TMIC] hello out there
To: cherp...@msn.com, tmic-list@eskimo.com
OK, Barb,
I don't have anything new to report. Into my tenth year! Who would have
thought?
I always read the list but feel fairly far removed from the newly diagnosed
now. Still, I'm always more than willing to help.
hugs
Gilly
>From Kanmantoo
South Australia
- Original Message -
F
e aware of this. This is another reason why it's
important to keep in touch.
Hugs, Barbara A in Auburn CA
-Original Message-
From: L T CHERPESKI
To: tmic-list ; Barbara Alma ; Dalton
Garis
Sent: Sun, Nov 7, 2010 4:43 pm
Subject: Re: [TMIC] hello out there
Hi Dalton & Everyo
...@comcast.net<mailto:kimharrison...@comcast.net>
To: tmic-list@eskimo.com<mailto:tmic-list@eskimo.com>
Cc: tmic-list@eskimo.com<mailto:tmic-list@eskimo.com>
Sent: Sunday, November 07, 2010 1:09 PM
Subject: Re: [TMIC] hello out there
was doing good until yesterday, went
ilto:tmic-list@eskimo.com>
Sent: Sunday, November 07, 2010 2:59 AM
Subject: Re: [TMIC] hello out there
I would say the pain is not as intense as it has been but am afraid i
will jinx myself!
--- On Sun, 11/7/10, Barbara Alma
mailto:balmat...@aol.com>> wrote:
m<mailto:tmic-list@eskimo.com> ; Barbara
Alma<mailto:balmat...@aol.com>
Sent: Sunday, November 07, 2010 5:19 PM
Subject: Re: [TMIC] hello out there
Seems as if everyone went down at the same time. Is it possible that I might
have recurrent TM? I wish I could get the neuro
Subject: Re: [TMIC] hello out there
Resent-From:
Resent-Date: Sun, 7 Nov 2010 15:33:39 -0800
Have been trying to keep myself calm and quiet as I am in a full blown
flare. I'm 2 months past my Rituxan infusions, which obviously is not good.
Hoping they were approved last Friday and wi
Have been trying to keep myself calm and quiet as I am in a full blown flare.
I'm 2 months past my Rituxan infusions, which obviously is not good. Hoping
they were approved last Friday and will be scheduled this week. I have
Recurring TM and Rituxan has kept me "attack" free the last 2 years
was doing good until yesterday, went on a 3 mile ALS walk (ok I rolled while
someone pushed) well except for down hill then gravity took over.) The extreme
cold has me hurting today but once i rest and and warm back up all should be
good
Well, I guess since nobody has written in tha
terest. And that is as far as it has gone. I have a
> dr who keeps me in Lyrica prescriptions; but has no further interest in the
> case.
>
> Dalton
>
> --
> *From: *Laura Beaudin
> *Date: *Sun, 7 Nov 2010 09:47:05 -0700
> *To: *Dalton Garis
Garis
Cc: Barbara Alma ,
Subject: Re: [TMIC] hello out there
Dalton,
Have you been properly screened for MS?
Laura
www.laurabeaudin.com <http://www.laurabeaudin.com> --NOT just another blog!
http://practical-homeschooling.org
On Sun, Nov 7, 2010 at 9:23 AM, Dalton Garis wrote:
>
hing that made you smile.
Prayers and thoughts for you and yours,
Candy K.
- Original Message -
From: "Dalton Garis"
To: "Barbara Alma" , tmic-list@eskimo.com
Sent: Sunday, November 7, 2010 11:23:44 AM
Subject: Re: [TMIC] hello out there
Actually;
I had
Dalton,
Have you been properly screened for MS?
Laura
www.laurabeaudin.com --NOT just another blog!
http://practical-homeschooling.org
On Sun, Nov 7, 2010 at 9:23 AM, Dalton Garis wrote:
> Actually;
>
> I had a day-long attack of spasms yesterday which left me unable to control
> either my
Actually;
I had a day-long attack of spasms yesterday which left me unable to control
either my hands and arms, legs, torso or speech. Every time I tried to talk
I would cramp up. And Elvis was definitely being channeled in my body.
Thank heavens I had the assistance of a very nice and strong mai
Barb I guess everyone is busy with the weekend. No news is good news.
Hopefully, everyone is doing as well as can be expected with TM. I know I
always look forward to all the posts.
Take care all.
Patti - Wisconsin
From: Barbara Alma [mailto:balmat...@aol.com]
Sent: Saturday, Novembe
I would say the pain is not as intense as it has been but am afraid i will jinx
myself!
--- On Sun, 11/7/10, Barbara Alma wrote:
From: Barbara Alma
Subject: [TMIC] hello out there
To: tmic-list@eskimo.com
Date: Sunday, November 7, 2010, 12:48 AM
Well, I guess since nobody has written in th
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