Re: [TMIC] Looking for input. solving a problem urinating

2012-11-13 Thread Pat Cooley
lots of protection.I know that I will > probably not ever be much better > with this problem, but at least I do not have to cath any more. > > Janice > > > *From:* a-ry...@comcast.net > *Sent:* Monday, November 12, 2012 2:49 PM > *To:* Jde > *Cc:* tmic > *

Re: [TMIC] Looking for input. solving a problem urinating

2012-11-12 Thread Janice Nichols
any more. Janice From: a-ry...@comcast.net Sent: Monday, November 12, 2012 2:49 PM To: Jde Cc: tmic Subject: Re: [TMIC] Looking for input. solving a problem urinating > Is it just as easy as regular cathing? Yes, the same. > Do you have to deal with leaking and how do you deal w

Re: [TMIC] Looking for input. solving a problem urinating

2012-11-12 Thread a-ryder
nal Message - From: Jde To: a-ry...@comcast.net Sent: Fri, 28 Sep 2012 17:20:46 - (UTC) Subject: Re: [TMIC] Looking for input. solving a problem urinating Hi Alton, I don't know if you remember me, but I used to be on TMIC site several years ago and then go tired of all of the argue

Re: [TMIC] Looking for input.

2012-09-09 Thread Bridget Skinner
lf cathing for about 2 years.I no longer have to do it.I > can now clear my bladder on my own. > Keep us posted. > Janice > > > *From:* Ibridgets > *Sent:* Saturday, September 08, 2012 6:56 PM > *To:* jan...@centurytel.net > *Cc:* jcs...@yahoo.com ; xbeecla...@gm

Re: [TMIC] Looking for input.

2012-09-09 Thread Bridget Skinner
cath - I have > some > helpful hints for you. > Janice > > > *From:* Ibridgets > *Sent:* Sunday, September 09, 2012 8:35 PM > *To:* jan...@centurytel.net > *Cc:* jcs...@yahoo.com ; xbeecla...@gmail.com ; j.d...@shaw.ca ; > tmic-list@eskimo.com > *Subject:* Re:

Re: [TMIC] Looking for input.

2012-09-09 Thread Barbara H.
n...@centurytel.net > Cc: jcs...@yahoo.com ; xbeecla...@gmail.com ; j.d...@shaw.ca ; > tmic-list@eskimo.com > Subject: Re: [TMIC] Looking for input. > > I will be calling the TX urogynecology association on Monday to make an appt > and see how quickly I can get in. Apparently she

Re: [TMIC] Looking for input.

2012-09-09 Thread Janice Nichols
...@gmail.com ; j.d...@shaw.ca ; tmic-list@eskimo.com Subject: Re: [TMIC] Looking for input. Wow that is so encouraging. I love hearing positive outcomes. Thank you. I am praying for a similar outcome. Sent via the Samsung Galaxy S™ II Skyrocket™, an AT&T 4G LTE smartphone. Orig

Re: [TMIC] Looking for input.

2012-09-09 Thread Janice Nichols
I think scientists need to hear about thisHow wonderful. Janice From: Dalton Garis Sent: Saturday, September 08, 2012 8:03 PM To: Janice Nichols ; Bridget Skinner Cc: john snodgrass ; Elizabeth Clark ; Janet Dunn ; tmic-list@eskimo.com Subject: Re: [TMIC] Looking for input. I need to

Re: [TMIC] Looking for input.

2012-09-09 Thread Janice Nichols
@eskimo.com Subject: Re: [TMIC] Looking for input. I will be calling the TX urogynecology association on Monday to make an appt and see how quickly I can get in. Apparently she has some type of therapy she can do in her office and if that doesn't work it will be self cath. I will let u all

Re: [TMIC] Looking for input. solving a problem urinating

2012-09-09 Thread a-ryder
zabeth Clark , Janet Dunn , tmic-list@eskimo.com Sent: Sat, 08 Sep 2012 22:49:36 - (UTC) Subject: Re: [TMIC] Looking for input. I wanted to let you know as promised that i FINALLY got insurance in place and I saw my neurologist. I have something called myoclonus and am being treated for the j

RE: [TMIC] Looking for input.

2012-09-08 Thread Linda Cherpeski
21:03:58 -0400 Subject: Re: [TMIC] Looking for input. From: malugss...@gmail.com To: jan...@centurytel.net; ibridg...@gmail.com CC: jcs...@yahoo.com; xbeecla...@gmail.com; j.d...@shaw.ca; tmic-list@eskimo.com I need to deeply thank someone on this email tree; She suggested I try taking a teaspoonf

Re: [TMIC] Looking for input.

2012-09-08 Thread Dalton Garis
Janet Dunn , Subject: Re: [TMIC] Looking for input. Resent-From: Resent-Date: Sat, 8 Sep 2012 16:18:10 -0700 Well at least you have found some answers. That is always a plus. Let me know how the bladder retention goes ­ I think most of us have a problem in some way with our bladders and

Re: [TMIC] Looking for input.

2012-09-08 Thread Janice Nichols
From: Bridget Skinner Sent: Saturday, September 08, 2012 5:49 PM To: Janice Nichols Cc: john snodgrass ; Elizabeth Clark ; Janet Dunn ; tmic-list@eskimo.com Subject: Re: [TMIC] Looking for input. I wanted to let you know as promised that i FINALLY got insurance in place and I saw my neurologist

Re: [TMIC] Looking for input.

2012-09-08 Thread Bridget Skinner
Bridget Skinner > *Sent:* Monday, June 25, 2012 9:32 PM > *To:* john snodgrass > *Cc:* Janice Nichols ; Elizabeth > Clark; Janet > Dunn ; tmic-list@eskimo.com > *Subject:* Re: [TMIC] Looking for input. > > Thank you so much for replyingit's so nice to hear othe

Re: [TMIC] Looking for input.

2012-06-29 Thread Janice Nichols
Skinner Sent: Friday, June 29, 2012 12:24 PM To: Janice Nichols Cc: john snodgrass ; Elizabeth Clark ; Janet Dunn ; tmic-list@eskimo.com Subject: Re: [TMIC] Looking for input. Wow, Janice! I wish I would have taken your advice sooner. The reason I couldn't get in to my neurologist, in my mind,

Re: [TMIC] Looking for input.

2012-06-29 Thread Bridget Skinner
took care of my thrashing around. my wife said i was >> terrible to sleep with,,said i almost kicked her out of bed. @ 80 mg a day >> took that away.then a host of other meds for a host of other >> symptomsuggg! >> >> -- >> *From:* Brid

Re: [TMIC] Looking for input.

2012-06-28 Thread Janice Nichols
and we find there are a lot of similarities we deal with. Janice From: Susan Kleinz Sent: Thursday, June 28, 2012 10:05 AM To: Janice Nichols Cc: Bridget Skinner ; Elizabeth Clark ; Janet Dunn ; tmic-list@eskimo.com Subject: Re: [TMIC] Looking for input. Janice - hi. I take 10 mg. of

Re: [TMIC] Looking for input.

2012-06-28 Thread Susan Kleinz
anet Dunn ; tmic- l...@eskimo.com Subject: Re: [TMIC] Looking for input. Hello Bridget and all. Susan Kleinz here - Phoenix, Arizona Today it is going to be 113! The heat is hard, but the cold is worse for me. I have been on baclofen for 22 years. It has saved me from painful spasms. I take it every

RE: [TMIC] Looking for input.

2012-06-27 Thread Deb Monteleone
t day, Deb From: Dalton Garis [mailto:malugss...@gmail.com] Sent: Wednesday, June 27, 2012 8:02 AM To: Janice Nichols; Janet Dunn; tmic-list@eskimo.com Subject: Re: [TMIC] Looking for input. I keep busy with lots of little things and some few big things. I am about finished editing my s

Re: [TMIC] Looking for input.

2012-06-27 Thread Janice Nichols
so my dear wife can concentrate on her business. How the time flies. DG. Dalton H. Garis Flushing, Queens New York, USA From: Janice Nichols Date: Tuesday, 26 January 2012 9:48 PM To: Dalton Garis , Janet Dunn , Subject: Re: [TMIC] Looking for input. Actually, I am doing pretty we

Re: [TMIC] Looking for input.

2012-06-27 Thread Dalton Garis
the time flies. DG. Dalton H. Garis Flushing, Queens New York, USA From: Janice Nichols Date: Tuesday, 26 January 2012 9:48 PM To: Dalton Garis , Janet Dunn , Subject: Re: [TMIC] Looking for input. Actually, I am doing pretty well.Still getting stronger in my legs after 5 years of

Re: [TMIC] Looking for input.

2012-06-26 Thread john snodgrass
From: Bridget Skinner To: john snodgrass Cc: Janice Nichols ; Elizabeth Clark ; Janet Dunn ; "tmic-list@eskimo.com" Sent: Monday, June 25, 2012 10:32 PM Subject: Re: [TMIC] Looking for input. Thank you so much for replyingit's

Re: [TMIC] Looking for input.

2012-06-26 Thread Roger & Terese Pratt
until late evening when I try to relax.  This TM business can be really complex sometimes. Roger in Kennewick, WA   From: Janice Nichols To: Dalton Garis ; Janet Dunn ; tmic-list@eskimo.com Sent: Tuesday, June 26, 2012 6:48 PM Subject: Re: [TMIC] Looking

Re: [TMIC] Looking for input.

2012-06-26 Thread Janice Nichols
: Re: [TMIC] Looking for input. Actually; The situation was much improved for a while. But now they are back again, having Segwayed into a kind of mental fog, which comes on quickly then leaves me with limited speech and locomotion capacities, and in need of around 3-4 hours sleep almost

Re: [TMIC] Looking for input.

2012-06-26 Thread Janice Nichols
n first - I think it works great.You need to take all through the day, morning, noon and night.It really does help a lot. Janice From: Elizabeth Clark Sent: Monday, June 25, 2012 2:36 PM To: 'Janet Dunn' ; tmic-list@eskimo.com Subject: RE: [TMIC] Looking for

Re: [TMIC] Looking for input.

2012-06-26 Thread Dalton Garis
lmost immediately. I am really a shut-in now, since I can't > depend on more than around 6 hours of lucidity before the next attack. > > How are you doing? > > Love to all, > > DG > Dalton H. Garis > Flushing, Queens > New York, USA > > From: Janice Nichols

Re: [TMIC] Looking for input.

2012-06-26 Thread James Berg
te: Tuesday, 26 January 2012 10:23 AM > To: Dalton Garis , Janet Dunn , < > tmic-list@eskimo.com> > > Subject: Re: [TMIC] Looking for input. > > Dalton, how are you doing with your seizures? Haven’t heard much about > it lately. Hope it means there is vast improve

Re: [TMIC] Looking for input.

2012-06-26 Thread Dalton Garis
c-list@eskimo.com Subject: Re: [TMIC] Looking for input. We love you, and your struggle; It is all of our struggles, also. Our solidarity has done sooo much to keep me going, to get up and try to make something useful of the lucid and non-distracted time I can get. DG Dalton H. Garis Flu

Re: [TMIC] Looking for input.

2012-06-26 Thread Susan Kleinz
Baclofen first - I think it works great. You need to take all through the day, morning, noon and night. It really does help a lot. Janice From: Elizabeth Clark Sent: Monday, June 25, 2012 2:36 PM To: 'Janet Dunn' ; tmic-list@eskimo.com Subject: RE: [TMIC] Looking for inpu

Re: [TMIC] Looking for input.

2012-06-26 Thread Janice Nichols
Dalton, how are you doing with your seizures? Haven’t heard much about it lately. Hope it means there is vast improvement. Janice From: Dalton Garis Sent: Monday, June 25, 2012 9:59 PM To: Janet Dunn ; tmic-list@eskimo.com Subject: Re: [TMIC] Looking for input. We love you, and your

Re: [TMIC] Looking for input.

2012-06-26 Thread Janice Nichols
Tell me again where you live - I think I want to move there. Since TM, I LOVE cold weather! Janice From: Janet Dunn Sent: Monday, June 25, 2012 9:43 PM To: tmic-list@eskimo.com Subject: Re: [TMIC] Looking for input. Thank you for all of the replies. I am going to try the baclofen as

Re: [TMIC] Looking for input.

2012-06-26 Thread john snodgrass
Dunn Date: Monday, 25 January 2012 10:43 PM To: "tmic-list@eskimo.com" Subject: Re: [TMIC] Looking for input. Resent-From: Resent-Date: Mon, 25 Jun 2012 19:48:11 -0700 Thank you for all of the replies.  I am going to try the baclofen as needed.  Yes, I am taking other meds

Re: [TMIC] Looking for input.

2012-06-26 Thread john snodgrass
boss! From: Janice Nichols To: Bridget Skinner ; john snodgrass Cc: Elizabeth Clark ; Janet Dunn ; tmic-list@eskimo.com Sent: Tuesday, June 26, 2012 8:46 AM Subject: Re: [TMIC] Looking for input. Bridget, Are you sure you can’t get into the doc until August?    Have you told

Re: [TMIC] Looking for input.

2012-06-26 Thread Janice Nichols
your progress with these issues. Janice From: Bridget Skinner Sent: Monday, June 25, 2012 9:32 PM To: john snodgrass Cc: Janice Nichols ; Elizabeth Clark ; Janet Dunn ; tmic-list@eskimo.com Subject: Re: [TMIC] Looking for input. Thank you so much for replyingit's so nice to hear

Re: [TMIC] Looking for input.

2012-06-25 Thread Dalton Garis
, 25 January 2012 10:43 PM To: "tmic-list@eskimo.com" Subject: Re: [TMIC] Looking for input. Resent-From: Resent-Date: Mon, 25 Jun 2012 19:48:11 -0700 Thank you for all of the replies. I am going to try the baclofen as needed. Yes, I am taking other meds - effexor,

Re: [TMIC] Looking for input.

2012-06-25 Thread Janet Dunn
Thank you for all of the replies.  I am going to try the baclofen as needed.  Yes, I am taking other meds - effexor, welbutrin, oxycontin fast acting, and oxycontin time release, and either tylenol or advil.  I also have flexeril if I need it. I have come to the conc

Re: [TMIC] Looking for input.

2012-06-25 Thread Bridget Skinner
--- > *From:* Bridget Skinner > *To:* Janice Nichols > *Cc:* Elizabeth Clark ; Janet Dunn ; > tmic-list@eskimo.com > *Sent:* Monday, June 25, 2012 8:16 PM > > *Subject:* Re: [TMIC] Looking for input. > > A question is coming I promise: > > I can

Re: [TMIC] Looking for input.

2012-06-25 Thread john snodgrass
Nichols Cc: Elizabeth Clark ; Janet Dunn ; tmic-list@eskimo.com Sent: Monday, June 25, 2012 8:16 PM Subject: Re: [TMIC] Looking for input. A question is coming I promise: I can relate to all of these different sensations. I live in texas and am terrified about the cold weather which won'

Re: [TMIC] Looking for input.

2012-06-25 Thread Bridget Skinner
ld start with Baclofen first - I think it works great.You > need to take all through the day, morning, noon and night.It really > does help a lot. > Janice > > *From:* Elizabeth Clark > *Sent:* Monday, June 25, 2012 2:36 PM > *To:* 'Janet Du

Re: [TMIC] Looking for input.

2012-06-25 Thread Janice Nichols
I would start with Baclofen first - I think it works great.You need to take all through the day, morning, noon and night.It really does help a lot. Janice From: Elizabeth Clark Sent: Monday, June 25, 2012 2:36 PM To: 'Janet Dunn' ; tmic-list@eskimo.com Subject: RE: [TMIC] L

Re: [TMIC] Looking for input.

2012-06-25 Thread Roger & Terese Pratt
either lots of fatigue or pain. Roger in Kennewick, WA From: Dalton Garis To: Todd Tarno ; TMIC Sent: Monday, June 25, 2012 4:19 PM Subject: Re: [TMIC] Looking for input. Folks, If I forget to take Lyrica, then within hours I light up from within like a

Re: [TMIC] Looking for input.

2012-06-25 Thread Dalton Garis
shing, Queens New York, USA From: Todd Tarno Date: Monday, 25 January 2012 3:49 PM To: TMIC Subject: Re: [TMIC] Looking for input. Resent-From: Resent-Date: Mon, 25 Jun 2012 12:53:55 -0700 I have only got good things to say, about getting off Lyrica.Was on Neuronten for 5 yrs & Lyrica for

Re: [TMIC] Looking for input.

2012-06-25 Thread Todd Tarno
Subject: Re: [TMIC] Looking for input. To: "Bernie Pelow" , "Janet Dunn" , "TMIC" Date: Monday, June 25, 2012, 11:55 AM Bernie i have noticed that when i make it snow in here i sleep better,,,lol From: Bernie Pelow To: Janet Dunn ; TMIC Sent: Monday,

Re: [TMIC] Looking for input.

2012-06-25 Thread john snodgrass
wont leave home without it...lol From: Janice Nichols To: Janet Dunn ; tmic-list@eskimo.com Sent: Monday, June 25, 2012 2:25 PM Subject: Re: [TMIC] Looking for input. Janet, one more thought. Do you take Baclofen for spasms?    Really works great for

RE: [TMIC] Looking for input.

2012-06-25 Thread Elizabeth Clark
Coincidentally, someone from a different TM support group recently expressed similar difficulty and here's a response that may be of help. > > "Hi all, > I am new to this group and was hoping you folks could give me some advice. I am recovering from transverse myelitis. I was unable to walk for

Re: [TMIC] Looking for input.

2012-06-25 Thread Robert Pall
, Jun 25, 2012 2:23 pm Subject: Re: [TMIC] Looking for input. Janet, I have not noticed increased pain anywhere with the heat. I do, however, have problems with heat affecting my ability to handle my body’s heat from the shoulders up.I have excessive sweating from head and face.I wear a

Re: [TMIC] Looking for input.

2012-06-25 Thread Cody
: Janet Dunn ; TMIC Subject: Re: [TMIC] Looking for input. Hi Janet, You're not the only one who finds heat a problem. I live in Texas and literally have to stay indoors all summer, only venturing out in the late evening if it is cool enough. Mine is because my body cannot regulate temper

Re: [TMIC] Looking for input.

2012-06-25 Thread Janice Nichols
Janet, one more thought. Do you take Baclofen for spasms?Really works great for me as long as I take it 3 times a day. Janice From: Janet Dunn Sent: Monday, June 25, 2012 12:29 AM To: tmic-list@eskimo.com Subject: [TMIC] Looking for input. Hello Everyone - not sure who is on here anym

Re: [TMIC] Looking for input.

2012-06-25 Thread Janice Nichols
Janet, I have not noticed increased pain anywhere with the heat. I do, however, have problems with heat affecting my ability to handle my body’s heat from the shoulders up.I have excessive sweating from head and face.I wear a patch – it is Clonidine and it helps with our hot weather.

Re: [TMIC] Looking for input.

2012-06-25 Thread bobberino
er to stay inside. Arghh... BobbyJim - Original Message - From: Barbara H. To: Janet Dunn Cc: tmic-list@eskimo.com Sent: Monday, June 25, 2012 11:11 AM Subject: Re: [TMIC] Looking for input. I haven't really noticed if spasms are worse, but

Re: [TMIC] Looking for input.

2012-06-25 Thread john snodgrass
Bernie i have noticed that when i make it snow in here i sleep better,,,lol From: Bernie Pelow To: Janet Dunn ; TMIC Sent: Monday, June 25, 2012 11:46 AM Subject: Re: [TMIC] Looking for input. Hi Janet,   You're not the only one who finds heat a probl

Re: [TMIC] Looking for input.

2012-06-25 Thread Barbara H.
I haven't really noticed if spasms are worse, but my main problem with the heart is that it just drains me of energy. I'm much more easily fatigued in the heat, but I am stiffer in the cold and am almost home-bound when it is icy due to balance and footing problems. Barbara H. http://barbarah.word

Re: [TMIC] Looking for input.

2012-06-25 Thread Bernie Pelow
Hi Janet, You're not the only one who finds heat a problem. I live in Texas and literally have to stay indoors all summer, only venturing out in the late evening if it is cool enough. Mine is because my body cannot regulate temperature, and I cannot sweat at all because of the damage to the

Re: [TMIC] Looking for input.

2012-06-25 Thread john snodgrass
i have been experiencing more leg problems in this warmer weather  From: Janet Dunn To: tmic-list@eskimo.com Sent: Monday, June 25, 2012 1:29 AM Subject: [TMIC] Looking for input. Hello Everyone - not sure who is on here anymore. I have written in before,

Re: [TMIC] Looking for input.

2012-06-25 Thread Linda Egli
the cold.   PS  There is still people here, I just don't write much. Linda E. From: lynne myers To: tmic Sent: Monday, June 25, 2012 9:48 AM Subject: Re: [TMIC] Looking for input. Janet I think I am one of the odd ones out there who has more problems wi

Re: [TMIC] Looking for input.

2012-06-25 Thread lynne myers
Janet I think I am one of the odd ones out there who has more problems with the heat than I do with the cold weather.  I always seem to have more issues with spasms and pain during the summer months, especially if we are having hot days with high humidity. Lynne --- On Mon, 6/25/12, Janet Dunn

Re: [TMIC] Looking for input.

2012-06-25 Thread ACAROE
Hi Janet, Its been quiet around here lately. I find the cold very difficult so I migrate like the birds do. Winter in Florida and summer in New York. I like it very warm and find I feel better in the heat. When its cold my whole body is affected. Take care, Rosalie In a message dat

RE: [TMIC] Looking for input.

2012-06-24 Thread Elizabeth Clark
Hi Janet, For myself, I always do much better in the hotter weather. the cold makes my nerves seize up and I suffer much more pain. I have much less pain and can move around so much easier in the warm weather. I think I could even do very well in a place like Arizona or Texas if I didn't like Sono