Hi Sue,
Please let us know what Dr. Kerr has to say about your history after you
have seen him. It will be very interesting to see his take on all this.
Heather in Calgary
----- Original Message -----
From: "Sue Zieke" <[EMAIL PROTECTED]>
To: <[EMAIL PROTECTED]>
Cc: <tmic-list@eskimo.com>
Sent: Wednesday, February 15, 2006 9:27 AM
Subject: Re: [TMIC] TM or MS
marie, your story certainly struck a chord with me. i was dx with tm in
may 2000. one lesion c2-c6. none in my brain. sept 2005 my neuro repeated
brain mri, i have 10 plus lesions in my brain, she tells me absolutely i
now have ms. then 2 weeks later as we talk again she changes her tune
after reviewing an mri i had in 2002 when i had pneumonia, which was not
of good quality as i couldn't hold still because of the pain, because it
too showed changes in the white matter of my brain, then they called them
insignificant. she says because there hasn't been any other big symptoms
it might not be ms. i did have an episode of not being able to initiate
swallowing a year ago. so she ran more tests, evoked potentials on eyes
and brain stem, another lumbar punch, neuropsych testing. no more signs of
demylenization so for now it's not ms. the neuropsych testing did show
marked decrease in memory which could be a sign of ms, but not without
other symptoms she says that some people over 50, i'm 53, get these
lesions in their brains, just a part of aging, i guess. i really felt
yanked around emotionally. but am glad she changed her mind and didn't go
ahead and put me on the ms drugs. i have an appt in may to see dr kerr
and am looking forward to getting another opinion on this. sue
On Sunday, February 12, 2006, at 10:12 PM, <[EMAIL PROTECTED]>
wrote:
Feb. 7th was my 4th year anniversary of having TM... I have come a long
way from that night from "hell" when no-one could figure out exactly what
was wrong with me... Finally, it was decided TM was the diagnosis. Johns
Hopkins agreed with this diagnosis.I take 600mg of neurontin 4 times a
day... tho am never without pain.. I now walk with a walker, have hand
controls on my car and with my faith and family have adjusted to my new
life style. Due to Medicare I had to switch all my doctors. A Neurologist
was highly recommened as one of the best in the area. Long story
short...after all new MRI's etc... etc.. he informed me that without a
doubt I have Multiple Sclerosis. I am still in shock and not sure what is
my next step. I have made an appointment with another "top" neurologist
in the D.C area.. I have 5 lesions on my brain which supposedly
indicate MS. I am 59 years old. Also my brother -55- was just diagnosed
with underlying MS....
Any thoughts, suggestions would be greatly, greatly accepted... Anyone of
you with TM have lesions on the brain????
Thanks so much!
Marie Arthur
--
No virus found in this incoming message.
Checked by AVG Free Edition.
Version: 7.1.375 / Virus Database: 267.15.9/261 - Release Date: 2/15/2006
