Hello to all: When I went to see Dr. Kerr, I offered myself for research--and got into two studies. They went on and on about how valuable, etc, etc. But I feel very strongly that we must aid the research in any way we can, and if that means I travel halfway across the country a couple times a year, then so be it. There's not that much suffering involved, and we (collectively) HAVE to help. Since going to see him, I've been back up once. I am not a true TM: mine is caused by B-12 deficiency: but I still have the same symptoms: numbness, partial paralysis, burning pain, bowel and bladder dysfunction: and depression. They just put me into a research group that compares TM, MS, and those with spinal cord injury not caused by trauma(my bunch). And my pain is moving and increasing the last few months--any guesses about what may be going on?
Cora > Hi All, > > If women who bear children have a higher chance of development of > osteoporosis, what about women who have never had children? > > Is it like people who have never smoked, yet get lung cancer? > > Does anyone believe that one day the Earth will be disease free? > > What more can we do to promote stem-cell research and to compromise on > the > areas of disagreement? > > What about pain control? When is it going to become a priority and what > do > we need to do to make it one? What about legalizing marijuana for pain > control? What kinds of intelligent thoughts are out there we can put > into words > that will not incite negativity in uneducated, fearful people? > > It is said that "there is strength in numbers." If we all band together, > are our numbers large enough to influence knowledge and interaction > between the > medical community and general population? > > I do believe that there are worse diseases than TM. Still, TM is the one > we > are best versed in. If each of us wants to be part of the benefit of the > "cure" of TM, don't we need to be part of the solution? We have some > great > minds here on the List. I am continually surprised and awed by the depth > of > knowledge we individuals portray. > > Without Christopher and Dana as spokespersons, there are few people left > in > the limelight to speak out for us. Just call me ignorant of how to go on > educating and drawing attention to TM as an individual disease and part > of the > category of spinal cord injuries. > > Questions from, > Jude >
