My last tap showed increased pressure. My neuro
called it Pseudo Tumor Cerebri and said, "Well now we have something else to add
to your list of rare neurological disorders." I said, " I am not looking to
expand the list."
He loves the diagnosis part of his job. I
try to prevent him from using those skills any more than he has to.
But it can evidently cause blindness and
so I have to have my eyes checked for damage from the increased pressure on the
retina. It can also cause headaches but I cant say that thats my case. I
have migraines that come and go but they were here before the TM or the
PTC.
I am wondering now if an increase in pressure is
part of the active disease cycle and if its common to TM or MSers when a tap is
done during an attack?
Sandy
----- Original Message -----
Sent: Wednesday, September 20, 2006 10:19
AM
Subject: RE: [TMIC] Not Devic's (MS)-
then what???
They thought I had Hydrocephalus
- too much fluid (?) - they had me on my feet 15 minutes after
the spinal tap (they took 50cc) no improvement in my
walking
BERNARD
BUTCHER
Same here; inflammation and my fluid pressure was high (but I'm not sure
what that means).
Bev
From: "Butcher, Bernie [S&FS]"
<[EMAIL PROTECTED]> To: "Beverly Barr"
<[EMAIL PROTECTED]>, <tmic-list@eskimo.com>,
<[EMAIL PROTECTED]> Subject: RE: [TMIC] Not
Devic's (MS)- then what??? Date: Wed, 20 Sep 2006 08:04:49
-0400
The only thing they found from my spinal tap was
evidence of inflammation (?)
BERNARD
BUTCHER
Last week I had the spinal tap and today I found out that the results
were negative. Negative for MS I'm guessing. I have to wait
until next week Tuesday in order to have a visit and sit down with my
Dr. What does this all mean? That I most likely have Devic's and
definately not MS? I need some answers so that I do not get
overly weighed downed...
I went to Cancun with my sister a two weeks ago. I left children
and husband behind...I really needed to mope and think. My sister has
Lupus and she was quite helpful on what to do when you are exhausted, tired
or just not in the right frame of mind. While I was there, I believe I
was very much affected by the hot weather. I was sick for two
days, back, neck pain and I even spiked a fever overnight and woke up
with a fever blister on my lip. I had no appetite and I was a just
wanting to sleep. I took some of my sister's 600mg ibuprofen
for comfort. I typically, love and enjoy
the warm weather. I love the feel of the sun on me
and I just was a little disturbed that i did not feel well and was
so drained on my vacation.
Does the warm weather affect persons with Devic's in this mannter??
-----------------------------------------------------------------------------------------------------------------------------
I just received a call from my dr. that my antibody test from the Mayo
Clinic was negative for Devic's disease. He previously ruled out MS
based on my MRI scans, what then is plaguing me? It is possible to have
Devic and have a negative testing for the particular
antibody?
Bev
From: [EMAIL PROTECTED] To: [EMAIL PROTECTED],
tmic-list@eskimo.com Subject: Re: [TMIC] subscribe Date:
Thu, 31 Aug 2006 23:02:30 EDT
You can correspond with all of the group by just writing using the
original address that you used that I replied to. In case you do not
still have it, the address is listed above along with yours.
Ann in
Virginia
|