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You may all have seen the information on the Johns
Hopkins website regarding TM but, for those who may not have read it yet, the
address is http://www.hopkinsneuro.org/tm/diseases_and_conditions.cfm
They have 3 sections: a general section,
one on Long Term Care (rehabilitation) and another on Associated
Diseases. They suggest that we discuss the possibilites for rehab,
etc., with our doctors. I first saw their information last year after I
had been diagnosed with TM and it looks like they may have updated some of
it.
They mention many of the topics that have been
discussed here recently including physiotherapy, bone density testing,
etc.
I keep wishing someone would come up with a cure to
what ails us but, in the meantime, I guess we have to educate ourselves and our
doctors when necessary, in order to cope with the problems we face each
day. I took a printout of some of the information to my family doctor as
she admitted she has no experience with this condition.
I'm new to the list and look forward to reading all
the information everyone is sharing.
Regards.
Louise
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