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HI LARRY, I AM PAM. I HAVE HAD TM NOW 14 YEARS. I WAS DX IMMEDIATELY. BUT I
HAD GOOD DOCTORS . THEY KEPT UP ON THINGS AND DID RESEARCH AND WAS IN CONTACT
WITH THE DOCTORS AT JOHN HOPKINS.
PERSONALLY I DO NOT THINK NAMING DOCTORS IS A GOOD IDEA. YOU CAN DO IT ON
THE LIST IF YOU LIKE I WOULD E-MAIL PRIVATELY.
THIS DISEASE IS SO COMPLEX AND MANY PEOPLE DO NOT KNOW WHAT IT IS.
WHAT THE SITE DOES HELPS US OUR FAMILY WITH INFO AND GOOD FRIENDS.
IF WE SAID SOMETHING AND WENT PUBLIC WE COULD BE SUED BY THE DOCTORS. MR.
LUBIN MIGHT HAVE A BETTER SOLUTION TO WHAT YOU WANT TO DO.
YES SO MANY PEOPLE GET THE RUN AROUND, ITS ASHAME AND IF THEY REALLY CANNOT
GIVE YOU A ANSWER GO TO ANOTHER DOCTOR TILL YOU GET SATISFACTION. I WORKED IN
THE MEDICAL FIELD AND WHEN I GOT IT SO MANY NURSES AND DOCTORS HAD NO IDEA WHAT
IT WAS.WE NEED TO DO SOMETHING BUT OTHER THAN WHAT I SAID I REALLY DO NOT
KNOW.
I HAVE A DOCTOR APPOINTMENT ON MONDAY I WILL ASK HIM HOW THEY CAME UP WITH
MINE SO FAST AND WHY NOW YEARS LATER SO MANY DOCTORS JUST DIMISS US AND I WILL
TELL HIM WHAT I HEAR FROM THE TMIC LIST. HE KNOWS I BELONG TO IT AND THE MS ONE
JUST FOR SUPPORT FOR A FRIEND.
BEST WISHES PAM
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