I had a major attack in 1997 and was diagnosed with TM. I regained most function within 2 or 3 months but then started ups and downs and I was dxed with MS in 98. I do walk. Inside the house I can sometimes walk without a cane but outside the house I use either a cane, a walker or sometimes a scooter depending on how bad I feel. Regarding the pain in my legs--I was given an emg and it was negative for a cause such as peripheral neuropathy. It seems the cause of the pain is from brain lesions in the sensory areas of my brain. I see my neuro on the 14th for the final word on that.
Sharon --from Arizona TM 1997 to MS 1998 It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant http://health.groups.yahoo.com/group/MSersLife/ ----- Original Message ---- From: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]> To: [EMAIL PROTECTED]; tmic-list@eskimo.com Sent: Tuesday, November 28, 2006 9:22:11 AM Subject: Re: [TMIC] TM Question I guess that is the answer finding your own magic medicine potion that works for you. Has your Dr's told you what that burning pain is? I didn't have this before i just got it and it is when I lay down. Are you walking? Do you have TM or MS? -----Original Message----- From: [EMAIL PROTECTED] To: [EMAIL PROTECTED]; tmic-list@eskimo.com Sent: Tue, 28 Nov 2006 12:06 AM Subject: Re: [TMIC] TM Question .<SPAN id="misspell-8" class="mark" >AOLPlainTextBody</SPAN> { margin:0<SPAN id="misspell-9" class="mark" >px</SPAN>; font-family:<SPAN id="misspell-10" class="mark" >Tahoma</SPAN>, <SPAN id="misspell-11" class="mark" >Verdana</SPAN>, <SPAN id="misspell-12" class="mark" >Arial</SPAN>, Sans-Serif; font-size:12<SPAN id="misspell-13" class="mark" >px</SPAN>; color:#000; background-color:#<SPAN id="misspell-14" class="mark" >fff</SPAN>; } .<SPAN id="misspell-15" class="mark" >AOLPlainTextBody</SPAN> <SPAN id="misspell-16" class="mark" >pre</SPAN> { font-size:9pt; } .<SPAN id="misspell-17" class="mark" >AOLInlineAttachment</SPAN> { margin:10<SPAN id="misspell-18" class="mark" >px</SPAN>; } .<SPAN id="misspell-19" class="mark" >AOLAttachmentHeader</SPAN> { font:11<SPAN id="misspell-20" class="mark" >px</SPAN> <SPAN id="misspell-21" class="mark" >arial</SPAN>; border:1<SPAN id="misspell-22" class="mark" >px</SPAN> solid #7DA8D4; background:#F9F9F9; } .<SPAN id="misspell-23" class="mark" >AOLAttachmentHeader</SPAN> .Title { font:11<SPAN id="misspell-24" class="mark" >px</SPAN> <SPAN id="misspell-25" class="mark" >arial</SPAN>; background:#B5<SPAN id="misspell-26" class="mark" >DDFA</SPAN>; padding:3<SPAN id="misspell-27" class="mark" >px</SPAN> 3<SPAN id="misspell-28" class="mark" >px</SPAN> 3<SPAN id="misspell-29" class="mark" >px</SPAN> 3<SPAN id="misspell-30" class="mark" >px</SPAN>; } .<SPAN id="misspell-31" class="mark" >AOLAttachmentHeader</SPAN> .<SPAN id="misspell-32" class="mark" >FieldLabel</SPAN> { font:11<SPAN id="misspell-33" class="mark" >px</SPAN> <SPAN id="misspell-34" class="mark" >arial</SPAN>; color:#000000; padding:1<SPAN id="misspell-35" class="mark" >px</SPAN> 10<SPAN id="misspell-36" class="mark" >px</SPAN> 1<SPAN id="misspell-37" class="mark" >px</SPAN> 9<SPAN id="misspell-38" class="mark" >px</SPAN>; background:#F9F9F9; } .<SPAN id="misspell-39" class="mark" >AOLAttachmentHeader</SPAN> .<SPAN id="misspell-40" class="mark" >FieldValue</SPAN> { font:11<SPAN id="misspell-41" class="mark" >px</SPAN> <SPAN id="misspell-42" class="mark" >arial</SPAN>; color:#000000; background:#F9F9F9; } .<SPAN id="misspell-43" class="mark" >AOLAttachmentHeader</SPAN> a, .<SPAN id="misspell-44" class="mark" >AOLImage</SPAN> a { color:#2864B4; text-decoration:none; } .<SPAN id="misspell-45" class="mark" >AOLAttachmentHeader</SPAN> a:hover, .<SPAN id="misspell-46" class="mark" >AOLImage</SPAN> a:hover { color:#2864B4; text-decoration:underline; } body { background-color:white; font-family:"<SPAN id="misspell-47" class="mark" >Verdana</SPAN>"; font-size:10pt; border:0<SPAN id="misspell-48" class="mark" >px</SPAN>; } p { margin:0<SPAN id="misspell-49" class="mark" >px</SPAN>; padding:0<SPAN id="misspell-50" class="mark" >px</SPAN>; } <SPAN id="misspell-51" class="mark" >img</SPAN>.<SPAN id="misspell-52" class="mark" >managedImg</SPAN> { width:0<SPAN id="misspell-53" class="mark" >px</SPAN>; height:0<SPAN id="misspell-54" class="mark" >px</SPAN>; } <SPAN id="misspell-55" class="mark" >img</SPAN>.placeholder { width:275<SPAN id="misspell-56" class="mark" >px</SPAN>; height:206<SPAN id="misspell-57" class="mark" >px</SPAN>; background:#F4F4F4 center center no-repeat; border:1<SPAN id="misspell-58" class="mark" >px</SPAN> solid #<SPAN id="misspell-59" class="mark" >DADAD</SPAN>6 !important; } I have burning pain when I lay down too. It's been going on for a year. I have been on as much as 3200 mgs. of Neurontin a day and it did nothing for that leg pain. I take 80 mg. of Baclofen for the spasticity. I take Cymbalta and that has helped. I took Lyrica but had a side effect that brought me more intense pain so I'm off of it. I have recently started on 3 mg. a day of LDN (Low Dose Naltrexone) for MS treatment. I've been surprised that there has been a real, true improvement in the noctural leg pain. I can sleep better! I do think the LDN is the reason for the lower pain level in my legs. Good luck and I hope you find your own magic treatment. hugs))) Sharon --from Arizona TM 1997 to MS 1998 It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant http://health.groups.yahoo.com/group/MSersLife/ ----- Original Message ---- From: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]> To: TMIC-LIST@eskimo.com Sent: Sunday, November 26, 2006 6:06:41 PM Subject: [TMIC] TM Question I have had TM for six months. I have it from the waist down and was initially paralyed from the waist down. I am now walking on a walker and semi on a heme cane. However, I get these strange sensations from the nerves in my legs and when I am laying down a burning sensation in my thighs that really hurts. Have any of you experienced this and is this medication for it? Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more.
