Tracey and all:  The doctor at Johns Hopkins who is doing my interstim (in
March--I'll be sure to tell you all about it) said that Botox injections
in the bladder muscle is the next thing to try for my spastic bladder. 
and as for spasms in legs, I have a very good massage therapist. She does
not make a euphoric, dreamy, good-feeling massage--she gets in there and
kneads those muscles til it hurts, but over the past few months, I
actually have had some time when the spazzing in the backs of my thighs
stopped! (for some days)  Of course, we're  in ice right now and walking
on it has got my legs tightened up again.  She claims that the horseback
riding helps as much or more than her massage.  For me, this is working,
as long as I work at it.  That seems to be the key doesn't it? We all have
to work hard at keeping whatever functioning we have.

Cora, who cannot ride til the ice melts and the temperature gets to at
least 40 degrees.

> My 13 year old daughter just received Botox in the outside calf muscle
> on her one leg. The only issue is that it relaxed the good muscles to
> help the others to become strong. They have now put a cast on her leg,
> from her knee down, to re-teach the muscle where it should be. It was
> too tight and they couldn't get it to relax. The chance of a sprain is
> very good b/c she won't have the control of her "good muscles" and the
> "not so good" muscles have not completely strengthened yet. If you are
> not able to be up and moving, this would probably be a good fix, but if
> you are currently up and moving about, it will relax muscles that you
> used to have control over, therefore, making slightly harder to get
> around until the other muscles are strong.
> I don't regret her having it at all. The prognosis is supposed to be
> very good. I would just make sure that you all know the risks involved
> before doing it. With my daughter, they actually hooked up e stem to the
> needle so that they could make the muscles jump and know that they were
> getting the botox into the correct muscle. She had approx 15 shots in an
> area of about 10 inches high and 4 inches wide. The froze the skin with
> that freezing spray before they inserted each  needle and she didn't
> seem to mind any of it. She has approx 95% of her feeling back in her
> legs and couldn't really feel anything during the procedure. The only
> issue was that the freezing spray actually caused "frostbite" kind of
> marks on her leg. By the evening her leg was burning and kind of sore
> but Tylenol helped it quite a bit and she has been fine since.
>
> Tracey L. Black
> Certified Insurance Service Representative
> Hockley & O'Donnell Insurance Agency
> Phone - 717-334-6741, x 29
> Fax - 717-334-3414
>
>
> Thank you for providing information to us. Please beware that no
> coverage is bound and no change to your insurance program is confirmed
> until verified by a licensed agent during regular business hours. If you
> do not hear from us within 1 business day, please re-contact us in case
> your information has not been retained.
>
>
>
> ________________________________
>
> From: Sandy Heidel [mailto:[EMAIL PROTECTED]
> Sent: Wednesday, January 17, 2007 10:13 AM
> To: [EMAIL PROTECTED]; TMIC-LIST@eskimo.com
> Subject: Re: [TMIC] TM Spasms
>
>
> Reported January 3, 2007
>
> Botox: Helping Patients Move Again
>
>  WINSTON-SALEM, N.C. (Ivanhoe Broadcast News) -- You've seen the results
> of people who look years younger after Botox injections. But Botox is
> turning out to be more than a fountain of youth ... It's becoming a life
> saver for some people battling serious illness.
>
> Nine-year-old Andrew Carter is not afraid to fall off a horse. And he
> refuses to let cerebral palsy get the best of him. "I like the jumping,"
> he says. "That's my favorite part."
>
> When Carter tried to move, his muscles would fight him -- jerking him
> around. It's a condition called spasticity. Botox injections help calm
> his muscles. He says, "It hurts but I really do think it helps because
> it loosens me up."
>
> Botulinum toxin is what causes food poisoning, but in patients like
> Carter, it's targeted to specific muscles.
>
>  "It causes partial paralysis in the muscle you inject it into,"
> Orthopedic Surgeon Lewis Andrew Koman, M.D., of Wake Forest University
> Baptist Medical Center in Winston-Salem, North Carolina, tells Ivanhoe.
>
> Botox is also helping stroke patients, like Ginger Hinshaw, by relaxing
> muscles. Before Botox, Hinshaw could barely move after her stroke. "My
> left hand -- if it's not in this splint, my fingers will just be in a
> knot," she says.
>
> Today, Hinshaw is able to write about what happened to her. She says, "I
> have a lot of exercises and stretches to do at home to get me ready for
> my next phase of recovery."
>
>  Wake Forest Neurologist Allison Brashear, M.D., says there's no risk --
> and patients can take it again and again and again. "The beauty of the
> drug is that you put the Botox in the arm, and it just stays there."
>
> Botox is also being used to help multiple sclerosis patients and
> patients with traumatic brain injuries. Injections need to be repeated
> about every four to six months. There are no known side effects.
>
> This article was reported by Ivanhoe.com, who offers Medical Alerts by
> e-mail every day of the week. To subscribe, go to:
> http://www.ivanhoe.com/newsalert/.
>
> If you would like more information, please contact:
>
>       Karen Richardson
>       Public Relations
>       Wake Forest University Baptist Medical Center
> <http://www1.wfubmc.edu/>
>       (336) 716-4453
>
>       ----- Original Message -----
>       From: [EMAIL PROTECTED]
>       To: TMIC-LIST@eskimo.com
>       Sent: Tuesday, January 16, 2007 6:29 PM
>       Subject: [TMIC] TM Spasms
>
> Hello All,
>
> It's me again, complaining with my continuous woes.  I am so sick of
> this!
>
> Does anyone out there know what causes the response, in some of us,
> known as spasms?  I have had them, hard, from day one--around my
> abdomen.  It feels as though someone is fastening me into a lace up
> corset where they put one foot in the middle of your back and pull as
> hard as they can before going on to the next set of laces.
>
> I have no idea what has set off this particular set of spasms, but I
> have had them steady, day and night, without stopping for almost one
> month.  I am taking Baclofen and Valium which are not cutting the spasms
> one bit.  I do a lot of "cry-babying" on this list because that is what
> it is here for, but I am normally pretty stoic and can take a lot of
> pain.
>
> Has anyone here on the List had continual spasms like this?  I'd like to
> know what they did for them.  Please find me some relief and solace.
> Please keep me in your Prayers and I will do the same for you one day.
>
> Thanks,
> Jude
>
>


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