Have you tried Neurontin/Gabapentin or Lyrica for your pain?
Heather in Calgary
----- Original Message -----
From: Candis Kalley
To: Trudy ; [EMAIL PROTECTED] ; [EMAIL PROTECTED]
Cc: tmic-list@eskimo.com
Sent: Monday, May 07, 2007 1:55 PM
Subject: [TMIC] RE: L-Carnatine
Trudy,
It is a vitamin - an amino acid - which supposely "plays a rle in making
fatty acids available for energy in muscle tissue" altho it has not been
evaluated by FDA. It is supposely an alternative to amantadine which is
"considered to be a first-line treatment for MS & TM related fatigue".
I've been taking 2 500 mg caplets 2X a day of L-Carnatine. After approx. the
3rd day, I did have a boost of energy but for the next 3 days, I slept anytime
I sat down - sleeping anywhere from 30 minutes to 3 hours at a time. Now again
today, I feel more energetic but I'm not sure what tomorrow will bring.
I will say that my muscle don't seem to hurt/ache as bad. It is the constant
chronic fatigue that I am having great difficulty with. I use to be so
energetic now it is a real chore to get up and just "BE" anymore. I am in my
17th month of TM. I am not too happy to hear that things will probably be
worse as I get older.
I've always had a high tolorance for pain but some days, I just have to sit
and cry because I hurt so bad and my meds don't seem to phase it one bit.
I take zanaflex (tizanidine) for the muscle spasms/contractions; Lortab
(hydroco) for pain with X-strength tylenol in between; and zoloft for
depression. But, like I said some days it feels as if I'm just taking sugar
pills.
Did you get the TMA journal? The article on Fatigue and Transverse Myelitis
on page 49 may help to explain a little more.
Hope this helped.
Candy K.
----- Original Message -----
From: Trudy
To: [EMAIL PROTECTED];[EMAIL PROTECTED];[EMAIL PROTECTED]
Cc: tmic-list@eskimo.com
Sent: 5/7/2007 3:57:39 PM
Subject: L-Carnatine
Candis,
I have just heard about L-Carnatine. What is it used for?? Is it a more
"natural" drug???
Does it help with pain??
thanks
Trudy
----------------------------------------------------------------------------
From: Candis Kalley [mailto:[EMAIL PROTECTED]
Sent: Sunday, May 06, 2007 11:33 PM
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]
Cc: tmic-list@eskimo.com
Subject: [TMIC] allodynia & amantadine
I looked up allodynia -
An example of touch allodynia is pain from the touch of clothing. Thermal
allodynia occurs from a draft of warm or cold air on the skin. The March 17,
1997 issue of Newsweek describes a patient who dreaded the breeze from a
ceiling fan because it felt like razors cutting his flesh
I have this when I wear pants or in bed with a sheet on just above my knees
anything touching there feels like a sunburn. If a cold breeze like the air
conditioner in the car hits my left arm/hand it feels like a burning sensation
and also causes severe cramping and spasms.
I really didn't know the name of this but from what I read and experience
it is allodynia both touch and thermal.
Well I tried the in place of amantadine. After 3 days I did feel better -
not as much muscle pain except for the spasms/cramping - but must have over
done it because the past 3 days I have done nothing but sleep and have no
desire to do anything else. I know this could also be a sign of depression but
whatever, I'm calling the Neuro tomorrow. This is not a life.
Did anyone watch "Living with Cancer" on Discovery Health? Too bad that TM
isn't as well know as some of the other diseases.
----- Original Message -----
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]
Cc: tmic-list@eskimo.com
Sent: 5/6/2007 10:22:27 PM
Subject: [TMIC] allodynia
I've looked up 'allodynia', but still don't really understand it. I've
never heard of it before, and now 3 of you have just mentioned it. Can you
give me an example of how it works?
Sally
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