Naomi:
You couldn't have said it better. I have 3 wonderful children, my middle child, 
Ashlee, is the one that was hit with TM. Her older brother is graduating from 
high school today and her little sister is finishing up her last day of 4th 
grade today. Ashlee is done with 7th grade today. It wasn't that long ago that 
I heard my two daughters talking and it took all I had to not cry at what they 
were saying to each other (I have a baby monitor in Ashlee's room so that if 
she needs me during the night, she can call for me.) They were in Ashlee's room 
and I was in mine. My little girl, Kenli, was telling Ash how much she missed 
Ashlee taking care of her and running around in the yard with her. She was 
explaining to Ashlee that this hasn't only effected Ashlee, it has affected 
everyone in our family. They were being very open with each other and it was at 
that moment that I realized that I had raised two very good, grateful, 
affectionate, caring, but also independent daughters. It couldn't have been a 
prouder moment for me. Like I said before, my son is graduating from high 
school today. Instead of going out running around every night with his friends 
and running around after graduation tonight, he is coming home (on his own free 
will) to celebrate with the rest of us and our neighbors. He would much rather 
be at home with us and hanging out with our neighbor friends than be out 
running the streets. Have a great day!
 
Tracey L. Black
Certified Insurance Service Representative
Hockley & O'Donnell Insurance Agency
Phone - 717-334-6741, x 29
Fax - 717-334-3414
 

Thank you for providing information to us. Please beware that no coverage is 
bound and no change to your insurance program is confirmed until verified by a 
licensed agent during regular business hours. If you do not hear from us within 
1 business day, please re-contact us in case your information has not been 
retained.

 

________________________________

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Thursday, June 07, 2007 8:29 PM
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: Re: [TMIC] Rectal problems


Jude,
 
I wasn't sure if you were directing your questions to Natalie or me, but I can 
add my two cents.
 
The "finger thing" that you speak of is the digital stimulation.  It is done by 
inserting one or two fingers in the rectum, to stimulate the anus which causes 
the bowels to move.  As I said before, this was something that my husband had 
to do for me in the early stages of TM.
 
To assume, that I feel worse than you, because I am a quad is very a sumptuous 
on your part.  Apparently that isn't true, because I don't feel like ending it 
all.
 
To be fair to you, I understand that feeling, because I've been through the 
'why me" and" what did I do to deserve this" and "this is the end of life as I 
know it".  Well, that was the end of life as I knew it.  Now I have a brand-new 
life, in which I have to do things differently than the last life.
 
While I was struggling to live in the early days of TM, I ask the good Lord to 
spare my life, to let me live it to see one more day.  He saw fit to answer my 
prayers.  When I was conscious enough to realize that I could move nothing but 
my head, I felt like I would have been better off not seeing another day.  I 
was deeply depressed.  
 
My family was very supportive.  My husband was by my side, day and night for 
two straight months.  My daughter and son was begging me to hang on.  My mother 
was there for me to cry on her shoulder.  I felt if I gave up on life, I would 
have let all their prayers and care be in vain.  That would be so selfish of me.
 
I worked very hard to put the life that the Lord granted me, to good use.  I 
worked hard in rehabilitation to gain some strength and movement.  Just the 
tiniest of task completed was cause for celebration.  Besides, I had my 49th 
birthday party in the hospital.  In attendance were a host of friends, family, 
nurses, doctors, therapists and other patients who I had met along the way.  I 
was only 48 years old!  I still have a life to live.  I still have something to 
give back to this world.  I thank the Lord for sparing me my mind.  I can still 
think on my own!  I could still talk (once my throat healed from the 
ventilator).  Oh yes!  I was still alive and have something to offer.
 
I think now about how much I would have missed if I had not lived.  My 
daughter, Danielle and her husband Damon, has a two-year-old, Kayla, who light 
up the room as soon as she hit the door.  She likes playing choo-choo train, 
while standing on my foot rest of my wheelchair, and us riding around the 
island in the kitchen.  She loves playing elevator, while standing on my foot 
rest while I tilt the cheer up and down.  She loves playing in my hospital bed 
and pushing the buttons to make it go up and down.  She thinks coming to Mam 
Ma's house is like being in an amusement park.  I think about how my daughter 
would have felt when she found out last week she was expecting again, and not 
be able to share that with me.
 
My son, Dante, has a six year old son, who used to be my running buddy.  We 
used to hit the science centers, children's museums, video game stores, 
McDonald's and anyplace else, we thought would be interesting.  He is old 
enough to remember me when I wasn't confined to a wheelchair so it took him a 
little while to adjust to me being different than before.  He is so smart and 
mature for his age.  I think about how I would have missed him losing his first 
teeth.  We took pictures of him without his front teeth.
 
Jude, just think about those who you would leave behind that love you so much 
and would never recover from their loss.  Yes, your life may be a little 
different now, but you are still you!
 
Having Transverse Myelitis, changes all of our lives in different ways.  
Through all the bowel programs, self cathing, neuropathy, blurred vision, 
bladder problems, paralysis and all other things that come with TM, never lose 
sight that each day is a gift from God.  I wake up every day, and thank the 
Lord that he let me see one more day.  I can spend the day with my husband, 
children, grandchildren or friends.  It's up to me to decide what I want to do 
with it.
 
I spend a lot of my time on the computer.  This is no big different from what I 
used to do before I had TM.  I love the computer! I use Dragon 
NaturallySpeaking, voice recognition program to type what I say.  The computer 
is my connection to the outside world.  I do some online work for my nephew, 
who runs his own business.
 
Natalie, there are people on this message board who you can always communicate 
with when you're feeling down and consider us family members and we are always 
concerned about your health and welfare.  You can e-mail me directly at [EMAIL 
PROTECTED]  <mailto:[EMAIL PROTECTED]> 
 
Ask your primary care physician to refer you to a psychologist or psychiatrist, 
and you may also want to check out some antidepressants.  Do what ever it takes 
to get you to where you need to be mentally.
 
Naomi
C-4 quad since July 2, 2005




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