was thinking more of a pamphlet than a manual, I guess. But why not do both - a 'novel' type of book to tell the stories - and - a pamphlet with information in it, for doctors to hand out to newly diagnosed TMers. Because as you gather information for your book, I'm sure you'll get, at the same time, people's suggestions for what works for them, and what doesn't. Sally --------------------------------Sally, That's funny; I wasn't thinking of any kind of manual, but your idea about a pull-out pamphlet is wonderful. I believe that it ought to be written by someone with more knowledge than I. There have been a couple of manuals already written and it is my thought that they haven't gone over very well at getting TM out there and made interesting to the public. So...my idea is to turn each persons story into a drama of sorts...something with "heart" that will grab at a person's soul and make them want to be a part of something bigger, such as finding a cure. I guess I haven't given the List a clue regarding what I want to do therefore I've gotten very little response. That's something I needd to do, but I didn't realize what I wanted to do until reading your email. I want to show each of us as a person, make us real. Let each person offer something different, to tell their story and the personal experiences they have had to endure. I loved Grace's story about falling at the store and no one would help her get up....people need their eyes open!!! Do they realize how they are treating people with disabilities? I, we, want people to end up knowing what it feels like to be stricken with TM, from onset to those of us who have taken our own lives, to those of us who have chosen life and what we have to do to get on with living it. There has got to be fact, heart, and Truth, Truth, Truth. . Who out there has an opinion? Are you going to share your stories and your lives with me. Do you want to write a chapter, a particular topic? I love you...haven't heard lately from Bob in PA. Anyone know where he is. Oh...by the way, My pyloric valve was stuck shut and my esophogus, small intestine and stomach are full of huge, white patches of ulcers. And, the insurance company is fighting with my doctor regarding the medication he wants to prescribe. And, it hurts like crazy. I know one thing we need to do and that is find a way to show the way that a paralytic who does not have sensation can "feel" pain on the inside. It drives me nuts that the very first thing, in my experience, is that if I go to ER, directed by the Dr., the assumption is that I am an addict out looking for drugs to support my habit!!!!!!!!!!!!!! Let me know what each of you thinks. Love, Jude
Our present troubles are quite small and won't last very long. Yet they produce for us an immeasurably great Glory that will last forever" 2 Corinthians 4:17 NLT ************************************** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour
