HI Mindy,
I haven't posted lately myself and I'm in about the same boat as you are.
I have had Lhermette's sign on a few occasions in my 2 years of TM. I
actually had it before then and blew it off because it went away.
I have not had ANY symptoms in a while thank God.
I just wanted to get back to you and let you know that is a symptom of mine
that I've had more than once. Usually it's worse when I am stressed or sick
etc.
Hope that helps
Jill
Stacy Harim <[EMAIL PROTECTED]> wrote:
Hi Mindy,
I don't post often and I should be more active but I get caught up in other
things and by the time I get to email, I'm overwhelmed. Anyhow, I got ADEM in
01 and it paralyzed me at T7. You are fortunate but still have the after
affects as everyone else does. Lyrica is fairly new and proves to be good for
neuropathic pain. I love it and used to be on neurontin. I see a pain
specialist and if you are having any sort of pain issues, it might be a good
idea. That is what they are trained for.
Welcome,
Stacy
----- Original Message -----
From: Lawrence King
To: tmic-list@eskimo.com
Cc: Lawrence King
Sent: Tuesday, September 11, 2007 11:14 PM
Subject: [TMIC] my introduction to the group
Hello everyone,
I guess Im ready to introduce myself. I just got the results of my 3rd MRI and
the evidence clearly supports my June 25th 2007 TM diagnosis. My attack
happened around the 7th of March 2007. It started with numbness and tingling in
my legs for a few of days with the sense that a couple of times I thought my
legs might give out on me. I blamed it all on the fact that my time spent on
the computer had quadrupled the same week and because I had a lumpectomy (not
cancerous!) scheduled on the 15th of March.
Began to feel a tingling sensation when I tipped my head down a few days before
surgery and blamed it on the lack of sleep and the stress and fear of surgery.
Didnt notice much beyond the pain and bruising of having a ¼ cup of breast
tissue scooped out for the next week but when that pain subsided I felt a
continuous sense of shivering or buzzing and an electrical shock down to my
finger tips and toes every time I tipped my head down with excessive tingling
down my left arm. We now know the name for this symptom is called Lhermittes
sign.
Did not get to see a Neurologist until May1. At first the surgery department
was blamed for giving me a stinger neck injury while under anesthesia. Then
an MRI revealed a mass or lesion at the c4/c5 level, MS, tumors and TM were all
considered. A lumbar puncture did not show evidence of a tumor, cancerous or
otherwise but proteins associated with an attack of the myelin sheath were
found. MS was dismissed because of my age (46) and absolute absence of lesions
in my brain. My slow onset, extenuating circumstances and lack of dramatic
symptoms made for a drawn-out diagnosis.
Ive never had walking difficulties nor many of the other issues TM survivors
face and after reading these posts for the last few months I think I have no
right to complain even though electrocuting yourself every time you tip your
head down is no fun, found Lyrica on my own and asked my doctor for it but Im
wondering if there is something better Id also love to hear if anyone else has
had Lhermittes sign and if their symptoms improved over time?
Mindy the Artisan
Mindy King
www.chairweaver.com
www.mirthworkscreations.com
www.greatamericanbeanbag.com
