Debbie, Very well written. I agree! Carol in Culver, IN ----- Original Message ----- From: Deborah Nord Capen To: tmic-list@eskimo.com ; Jim Lubin Sent: Thursday, November 01, 2007 11:36 AM Subject: Re: [TMIC] IMPORTANT REMINDER
Jim has posted a very important message to us all. I have been subscribed to the tmic list for almost 11 years, and I can attest to the fact that if you post to the list, your information will be there for the world to share. I have used most search engines and typed in my own name, and now there are hundreds of "hits" with information I have posted on the internet. Your privacy is compromised every time you "surf" the internet, so if you are concerned about that, you should not be online at all. This can be a bad thing for those who value their privacy; however, we have all subscribed to the list because we needed information for learning to cope with our daily struggles with transverse myelitis after it has decided to permanently reside with us. If others, such as Jim Lubin, had not posted their requests for information about their same issues, I would never have found this list, and I would never have found out about the TMA. If we were all concerned about our privacy and did not reach out in search of help, there would still be no information available on the internet. If your privacy concerns you, please do not post on the list. If you want help, please DO post on the list. My mailbox has not been overwhelmed with "junk mail" because of the tmic list. I have "tracers" that can detect where the junk is coming from. None of the information posted on the list is used to send you more junk. I also have never received any viruses due to the list. Now, there are certain "people" on the list who have had their computers infected, and if they have added my name to their address book, I have received infected emails from them, but they did not come directly from the list. I also have very good anti-virus protection, so all of the infected mail has been caught before causing any harm. There are heavy filters placed on the server that processes the tmic list messages. If any infected emails are sent to the server, they are "cleaned out" before being forwarded to those who subscribe, so you should not be concerned about infections either. Sorry to post such a long message, but I feel that Jim's email warrants more than one small post. Please keep posting your messages. You are helping more than one person out there who has questions and concerns. Take care, Debbie ----- Original Message ----- From: Jim Lubin To: tmic-list@eskimo.com Sent: Tuesday, October 30, 2007 5:22 PM Subject: [TMIC] IMPORTANT REMINDER I received an email from someone who wrote "I am distressed to see that your archives are public and anyone can search my name and come up with some very private medical information." Do not post personal information that you don't want the world knowing. The message archive is searchable by anyone with Internet access. The archive is at http://www.mail-archive.com/tmic-list@eskimo.com/ If you want a message deleted send me the page url example: http://www.mail-archive.com/tmic-list@eskimo.com/msg06410.html and I will try to get it deleted. The only alternative option is to remove the archive completely. Keep in mind that many people found help by search for their own symptoms and finding a message someone else had posted. That was the reason the archive has always been publicly searchable. ---- Jim Lubin [EMAIL PROTECTED] http://makoa.org/jim disAbility Resources: http://www.makoa.org