Hi Steven, Welcome to the "TM Family" I'm glad you found us, and I think you will find that we all have a lot in common. I have had TM for 6 years now and was also affected from my chest down, lesions at C 4,5 & 6. I have gotten most of the feeling back and I do use a cane. I have bladder problems too - I have to self-cath several times a day. I still have great hopes that I won't have to do that forever! And that burning - isn't it awful. If I might ask, where are your lesions and what medications do you take to help with the symptoms you are dealing with? You were very fortunate to be treated by Dr. Kerr. Do you live close enough that you are still able to see him on a regular basis?
I'm just full of questions. We're glad you wrote and looking forward to hearing from you soon. Linda in Idaho ----- Original Message ----- From: [EMAIL PROTECTED]<mailto:[EMAIL PROTECTED]> To: [EMAIL PROTECTED]<mailto:[EMAIL PROTECTED]> ; tmic-list@eskimo.com<mailto:tmic-list@eskimo.com> Sent: Sunday, March 02, 2008 8:28 PM Subject: Re: [TMIC] Unidentified subject! Hi Steven, It is good to have you write although having TM is the reason you did so. I, too, am affected from my chest down (I think my lesion is at C-3) but did not lose my breathing. My neurologist said my lesion location was very close to having put me on a ventilator. My bladder also has been affected but is manageable. I used a cane briefly but no longer do. April, 2004 was my onset date. I'm sure you will "meet" others on this list with various degrees of symptoms-I consider myself very fortunate compared to several. I, too have the burning you spoke of and also have fatigue. We are glad you wrote. Gary in MIchigan ----- Original Message ----- From: [EMAIL PROTECTED]<mailto:[EMAIL PROTECTED]> To: tmic-list@eskimo.com<mailto:tmic-list@eskimo.com> Sent: Sunday, March 02, 2008 7:06 PM Subject: [TMIC] Unidentified subject! My name is Steven Jabs I am 34 years old. I have TM since 2003 I was affected from the chest down and lost my breathing. I was treated at John Hopkins by Dr. Kerr. I currently walk with a cane. I have bladder problems and allot of burning. I would like to talk to people who also have TM. [EMAIL PROTECTED]<mailto:[EMAIL PROTECTED]>
