Has anyone onset been from a virus? Another thing I experience that my neurologist thinks is something other than TM is if I am out in and it is windy or cold and tense up almost as if to shiver, my legs stiffen up and I have a hard time walking. Has anyone experienced that?
There, I did it, I am now identified! > Rita (Snowing BIG TIME in Cleveland) > Rita: welcome, welcome, Come right in and sit down at the (virtual) kitchen table! We are a very special buncha folks. You are in great company. I was paralyzed from about my bellybutton down. The area that was hit first was the backs of my thighs/buttocks. But the burning is on my left lower leg, about sock-top high, on the outside. I could not walk and though it seems insignificant when listening to some of the others, I was only in rehab about 3 weeks, released with an indwelling catheter, wheelchair, walker, etc... After a year or so becoming wise via this group, I made an appointment to see Dr. Kerr at Johns Hopkins in Baltimore. On that initial appointment, he came to the conclusion that my "TM" was actually demyelination caused by B-12 deficiency. So, no viruses, and that was why they never found any lesions or other markers in my spinal fluid. I have about 5 years. Someone said "my body just doesn't feel right" That about sums it up. Some lose hot/cold sensation, some cannot feel sharp, while they can feel a light touch. Some are unable to sweat in the affected areas. Those who have TM from a virus have a balancing act to maintain: don't boost the immune system so much that you activate it to attack nerves again!--but keep it intact and active so it protects you. Cora in Oklahoma
