...but we sure as heck won't give up, will we??? j
-------Original Message-------
From: Robert Pall
Date: 3/28/2008 6:42:19 AM
To: jrushton
Subject: RE: [TMIC] UNBELIEVABLE!
Jeanne:
Dr Kerr told me as well that stem cells was the only cure. The problem
is that the first people in the research project will be people who had
their onset within 6-18 months. People like me who have had it for more than
10 years will have to wait. A cure is on the horizon...just not sure it will
be in time or the old timers.
Rob in New Jersey
From: jrushton [mailto:[EMAIL PROTECTED]
Sent: Thursday, March 27, 2008 8:05 PM
To: Cody; tmic-list@eskimo.com
Subject: Re: [TMIC] UNBELIEVABLE!
Rob, so far I've only read one person where the provider said the TM was
caused by a lack of B-12. I haven't seen many who have mentioned the
Varicella-zoster/Herpes/chicken pox virus. This is interesting because that
is the theory I heard from most of the different providers/neurologists I
went to even though they all ended up that it was, in reality, something
idiopathic (don't know)! We are sure getting the majority of stress and
flu-like symptoms prior to the outbreak of the TM, it seems. The one
neurologist at I saw at Johns Hopkins did say if we could get the stem cell
transplant, it would probably be the one thing that would help us. Other
than that he just said reiterated that I had TM. All of this information
from everyone is so interesting, isn't it? I sure do appreciate everyone
for taking the time to share, I truly do.
Thank you, Cody, for sharing your experience. My TM also came on within 24
hours with total paralysis from the T4 down. When I first was taken to ICU,
they immediately put me on IV steroids to 'stop whatever was happening from
doing more damage'. The damage was at the front portion of the spinal cord,
T4 level, so I am still able to have a very strong upper body, thank God,
and have been able to learn to walk pretty well! I still feel like I am full
of wet sand from the chest down but I can sure handle that compared to where
I started!!
Jeanne
-------Original Message-------
From: Cody
Date: 3/27/2008 7:55:18 PM
To: TMIC; Robert Pall
Subject: Re: [TMIC] UNBELIEVABLE!
Rob..........I believe that my TM affliction was related to stress as well.
This is why: I had an extremely stressful job as the lead financial analyst
for the country of Kazakstan following the Exxon-Mobil merger. All of the
properties were heritage Mobil and none of their Kazakstan financial staff
came over after the merger which meant I had to start everything from
scratch into the heritage Exxon accounting system. On top of that Kazakstan
was generating tons of cash which generated tons of complex questions from
upper management. Then they gave me a fresh out of school accounting
major/football player to train. (Controllers fraternity brother). He couldn
t find his butt with both hands. He ended up getting fired for misuse of his
corporate credit card.
During this time I decided to go on the Scarsdale diet which I had
success with before. I was also doing a couple of miles on the treadmill or
playing racquetball during lunch at the YMCA.
I think the combination of all of this caused my body to degrade to a
low and very susceptible level. So I think that when whatever it was that
got into my spinal cord virus, bacteria, or etc found a a very vulernable
situation. Then my immune sytem attacked and destroyed the myelin. I never
had any lesions. All my nuero found from the MRI and spinal tap was an
increase in the protein level in my fluid.
Needless to say my diagnosis was idiopathic. I am paralized at T-3/4 with
absolutely no recovery. Seven years ago this April the 8th. It happened very
fast, less than 24 hours and they diagnosed me very fast and put me on the
IV prednisone treatment. All to no avail. I was in the Methodist acute care
hospital in Houston for a month and in the TIRR therapy hospital for a month
I'm not sure if the medical folks that treated me did me no good or if they
were successful at limiting my paralysis to T-3/4. At any rate I am thankful
that I can still use my arms.............Cody in Austin (No clouds, no wind
just sunshine and 80 degrees and tons of little peaches on our two trees.)
