Hello my friend, Since June 3, 2002, I have spiked fevers on almost a daily basis and yet deep inside my body I feel like I am made of ice water. I have not perspired since the onset, but when I am over-tired or late in changing my fentanyl patch, I have bouts of Autonomic-dysreflexia and the only thing that helps then is valium. It sounds as though broken "thermostats" go hand in hand with Transverse Myelitis. My basic temperature is 97.2* Even in the hospital with sepsis (blood infection) I rarely had a temp of over 98*. Isn't that crazy? Most people would be spiking super high temperatures. On to other news...Now it is my turn to ask you for your Prayers and good thoughts for Pam as she is in the hospital unable to move her legs. She told me that she woke up feeling kind of funny, but went ahead and got ready for her day when all of a sudden her hips and back began hurting terribly. She lay down on the bed and before she knew it she couldn't move her legs. Neighbors took her to the hospital where she was admitted right away. This has happened to her before and brings to mind the question, "Is there such a thing as remitting/recurring TM, or does she have MS?" Pam's neurologist says it is TM...there are no lesions on her brain. I need to go as I am having a vancomycin IV treatment and it is about ready to finish. I have to watch the volume of medicine in the tubing to avoid getting air in my pic-line. That would do me in for sure. Anyone who needs Pam's phone number or address can email either Ella or me. I can't reach my notebook where it is written down or I would give it to you now. Peace and Prayers, Jude In a message dated 10/15/2008 7:29:18 A.M. Eastern Daylight Time, [EMAIL PROTECTED] writes:
Hey Randy. I have suspected MS (no definite dx yet). I've had no auditory or visual problems but vertigo/dizziness do come periodically. My sense of smell & taste are also affected. I get pins & needles in my face & sometimes a sensation that someone has stabbed me with a shapened pencil somewhere on the outside of my head. All my brain MRIs have been clear so who knows. Here's something I've never heard discussed on TMIC ... Periodically, I get really high fever. It usually comes with fatigue, emotional upset, etc. The doctors have no answer. I just think it's the nerve damage screwing up my thermostat. Anyone else get fever? Diane in Canada ----- Original Message ----- From: _randy rankin_ (mailto:[EMAIL PROTECTED]) To: _TM Group_ (mailto:tmic-list@eskimo.com) Sent: Tuesday, October 14, 2008 9:29 PM Subject: [TMIC] is this an M.S. problem? I have had some ear problems for the past few weeks. I went from hearing well to sudden hearing problems, vertigo and blurriness with my vision. When I talk, I hear the sounds of my voice muffled up inside of my head and not like the usually normal hearing. The ear doctor cleaned up my ear and it took 3 trips. My hearing seemed improved but a lot of the wierdness kept going on - and I am hoping that it will just clear up. But the reason that I am writing is because the ear doctor said that a lot of my problems seemed to have a neurological basis. I have had vertigo, dizziness and things just seem wierd. My vision has been off in a very odd way especially when I either try to focus or if I move my head or something moves by me. He brought this up without prior knowledge of my history with TM and the other oddities that I had had and wanted me to have an MRI to check to see if my odd auditory and vision issues were being caused from something in my brain. He asked me specifically if I had ever had problems with tingling, numbness or other M.S. type symptoms and thinks that my neuro should check it out. I'm very skeptical about his ideas yet also a little nervous about doubting his speculations. Those of you who have MS, have you ever heard/experienced odd things like sudden vertigo, dizziness, vision and auditory changes ect.? I'm very nervous about this. I have already gone through two foot drops, loss of my right leg, loss of bladder function and the pain and miserable mobility issues that come with TM, the physical thearpy and finally I am for the first time walking and getting around without spasms or pain. I am not ready for a new bout with a new problem . **************New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News & more. Try it out (http://local.mapquest.com/?ncid=emlcntnew00000002)
