Hi again everyone!
I was hit with TM suddenly in 9/97 and then was dxed with MS in 8/98. They
have never found lesions in my spine but I do have lesions in my brain. My
original neuro says he still thinks I have a hidden lesion on my spine.
In late August 08 I was hit again with the severe numbness. This time on the
right side instead of the original left side. The numbness has not gotten
better this time. Then about 3 weeks ago I had a sudden, sharp severe pain in
my back at that same level. I saw my new neuro last week and he said it was
"all connected". I had already figured it was "connected". lol
I am having much worse back pain lately, too. Really bad and nothing helps
it. It's pain, burning and weakness....
That said, I am really doing pretty good. MS has kicked my butt at times and I
have never been symptom-free since the TM attack Labor Day, 1997. I've just
gotten worse over time.
I am one of the lucky TMers, though, so I really hate to complain. I know it
could be so much worse. I just wonder what you experts have to say about this
latest occurance for me.
hugs to you all
Sharon Marsden
--- On Tue, 11/25/08, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote:
From: [EMAIL PROTECTED] <[EMAIL PROTECTED]>
Subject: tmic-digest Digest V2008 #457
To: [EMAIL PROTECTED]
Date: Tuesday, November 25, 2008, 3:32 PM
tmic-digest Digest Volume 2008 : Issue 457
Today's Topics:
Re: [TMIC] Re: tmic-digest Digest V2 [ "jrushton"
<[EMAIL PROTECTED] ]
AOL Email
#yiv1833211580 v\:* {
}
#yiv1833211580 v\:* {
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Jenna, it must be 'where' the lesion is and how much damage it has or they have
done. Also, I think it also my have to do with how long it went on from the
onset before anything was done to 'stop' it?? Your earlier comment, "who knows
for sure" is right on! Jeanne
-------Original Message-------
From: Jenna
Date: 11/24/2008 8:13:40 PM
To: Pieter and Heather; [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]
Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #431
It is complicated. But I have 3 lesions on my spine. And damage to my optic
nerve. So since the damage to the optic nerve was first, before the first
problems showed up in the spine, it is call Divic's version of MS. I hope this
makes some kind of since. But the weird thing to me is so many of you my
friends have no lesions, just inflammation and can not walk and here I am with
3 lesions and can still walk???
Jenna
From: Pieter and Heather <[EMAIL PROTECTED]>
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; tmic-list@eskimo.com
Sent: Monday, November 24, 2008 2:20:58 PM
Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #431
That is the way I understand it too Jude. My sister who is 3 yrs younger than
me has MS. It is the one that progresses slowly but everytime she has and MRI
she has more lesions on both spine and brain.
Heather in Calgary
----- Original Message -----
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED] ; tmic-list@eskimo.com
Sent: Monday, November 24, 2008 12:06 PM
Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #431
Hello All,
It has been my understanding that with TM one must have lesions on the spine
but not on the brain. If one has lesions on the brain it is indicative of MS.
Am I misinformed regarding this information?
God Bless You,
Jude
In a message dated 11/24/2008 8:34:00 A.M. Eastern Standard Time, [EMAIL
PROTECTED] writes:
Frank,
They were never able to locate a lesion on my spine and from what I have read
on the message forums this is true for alot of people.
I had mutiple MRIs done both with and without contrast.
Lynne
--- On Sun, 11/23/08, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote:
> From: [EMAIL PROTECTED] <[EMAIL PROTECTED]>
> Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #431
> To: "jrushton" <[EMAIL PROTECTED]>, [EMAIL PROTECTED], "TMIC"
> <tmic-list@eskimo.com>
> Date: Sunday, November 23, 2008, 4:30 PM
> > i have a question, has anyone else been told that
> they don't have > lesions on their spine? my neuro
> says mine is just swelling from c6-t3 > and t9-t10., so
> what does that mean?
>
> What does swelling from c6-t3 > and t9-t10 mean??
>
> Did you have an MRI with and with out gadolium
> (enhansement)?
>
> F
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