Thanks for the info. Unfortunately Lyrica didn't work for me. I had a weird opposite reaction to it and it mad everything way worse. I'm so glad to hear it is working for you!
Sharon The bluebird in the cedar tree spoke to me... "Your heart's desire dwells here--this is where you belong" --- On Sun, 11/30/08, George Kittner <[EMAIL PROTECTED]> wrote: From: George Kittner <[EMAIL PROTECTED]> Subject: Re: [TMIC] lesions, re-occurance of TM .... and such To: [EMAIL PROTECTED] Date: Sunday, November 30, 2008, 9:44 PM I am on Lyrica 100mg 3x day for my TM. It seems to help a lot. I originally started out at 50 mg 3x day and then 75 mg 3x day and have been on the current dosage of 100mg. I was diagnosed in February 2005. I have some pain in my mid back by late afternoon after working all day. It hit at T7 for me. When walking I lean toward my right side which is the side that it hit me on. I recently went for a balance test and will be going for an evaluation which I am told they will be able to work with me to assist with helping with my walking. Ask your doctor about Lyrica for TM. Let me know what your doctor says and if he will prescribe it for you. Valerie in Illinois --- On Fri, 11/28/08, Sharon M <[EMAIL PROTECTED]> wrote: From: Sharon M <[EMAIL PROTECTED]> Subject: Re: [TMIC] lesions, re-occurance of TM .... and such To: "Pieter and Heather" <[EMAIL PROTECTED]>, tmic-list@eskimo.com Date: Friday, November 28, 2008, 9:21 AM Thanks Heather. The pain in my back was so severe last night that I decided I would see a doctor and insist that they get to the bottom of it. I want to find out for sure what is causing this pain. It is so easy to blame everything on MS. I'm not a wimp when it comes to pain. I have had chronic pain most of my life, but this is different. I don't think it would help to help to see neuro again. He assumes the pain is nerve pain, is connected to TM level in my spine and says the Neurontin should help. Hello! Neurontin does not help. How is your sister doing now? I run a large MS support group on Yahoo and it's not unusual to have other family members with MS or some of the rare neuro diseases. Hugs))) Sharon The bluebird in the cedar tree spoke to me... "Your heart's desire dwells here--this is where you belong" --- On Thu, 11/27/08, Pieter and Heather <[EMAIL PROTECTED]> wrote: From: Pieter and Heather <[EMAIL PROTECTED]> Subject: Re: [TMIC] lesions, re-occurance of TM .... and such To: [EMAIL PROTECTED], tmic-list@eskimo.com Date: Thursday, November 27, 2008, 10:42 PM Sharon, Are you going to be seeing your neuro again soon? I would be asking him about it again. Could it be another attack of the MS? I know my sister has MS and hers was a severe attack back in the late 80's. At that time they weren't sure it was MS.She then had a second severe attack in 1991 (when she was finally diagnosed). She figures she must have had MS even in the mid to late 70's and into the 80's but was never diagnosed. So I'm sure that MS can bring attacks more than once. Have you also seen your family physician to rule out any other problems? I know that even with TM or MS that we need to remember there are other medical problems other than these two that can cause problems. Keep us posted Heather in Calgary ----- Original Message ----- From: Sharon M To: tmic-list@eskimo.com Sent: Thursday, November 27, 2008 5:39 PM Subject: [TMIC] lesions, re-occurance of TM .... and such Hi again everyone! I was hit with TM suddenly in 9/97 and then was dxed with MS in 8/98. They have never found lesions in my spine but I do have lesions in my brain. My original neuro says he still thinks I have a hidden lesion on my spine. In late August 08 I was hit again with the severe numbness. This time on the right side instead of the original left side. The numbness has not gotten better this time. Then about 3 weeks ago I had a sudden, sharp severe pain in my back at that same level. I saw my new neuro last week and he said it was "all connected". I had already figured it was "connected". lol I am having much worse back pain lately, too. Really bad and nothing helps it. It's pain, burning and weakness.... That said, I am really doing pretty good. MS has kicked my butt at times and I have never been symptom-free since the TM attack Labor Day, 1997. I've just gotten worse over time. I am one of the lucky TMers, though, so I really hate to complain. I know it could be so much worse. I just wonder what you experts have to say about this latest occurance for me. hugs to you all Sharon Marsden --- On Tue, 11/25/08, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote: From: [EMAIL PROTECTED] <[EMAIL PROTECTED]> Subject: tmic-digest Digest V2008 #457 To: [EMAIL PROTECTED] Date: Tuesday, November 25, 2008, 3:32 PM tmic-digest Digest Volume 2008 : Issue 457 Today's Topics: Re: [TMIC] Re: tmic-digest Digest V2 [ "jrushton" <[EMAIL PROTECTED] ] #yiv413693790 #yiv1122938698 #yiv625162981 #yiv1833211580 v\:* { } #yiv413693790 #yiv1122938698 #yiv625162981 #yiv1833211580 v\:* { } Jenna, it must be 'where' the lesion is and how much damage it has or they have done. Also, I think it also my have to do with how long it went on from the onset before anything was done to 'stop' it?? Your earlier comment, "who knows for sure" is right on! Jeanne -------Original Message------- From: Jenna Date: 11/24/2008 8:13:40 PM To: Pieter and Heather; [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED] Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #431 It is complicated. But I have 3 lesions on my spine. And damage to my optic nerve. So since the damage to the optic nerve was first, before the first problems showed up in the spine, it is call Divic's version of MS. I hope this makes some kind of since. But the weird thing to me is so many of you my friends have no lesions, just inflammation and can not walk and here I am with 3 lesions and can still walk??? Jenna From: Pieter and Heather <[EMAIL PROTECTED]> To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; tmic-list@eskimo.com Sent: Monday, November 24, 2008 2:20:58 PM Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #431 That is the way I understand it too Jude. My sister who is 3 yrs younger than me has MS. It is the one that progresses slowly but everytime she has and MRI she has more lesions on both spine and brain. Heather in Calgary ----- Original Message ----- From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Monday, November 24, 2008 12:06 PM Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #431 Hello All, It has been my understanding that with TM one must have lesions on the spine but not on the brain. If one has lesions on the brain it is indicative of MS. Am I misinformed regarding this information? God Bless You, Jude In a message dated 11/24/2008 8:34:00 A.M. Eastern Standard Time, [EMAIL PROTECTED] writes: Frank, They were never able to locate a lesion on my spine and from what I have read on the message forums this is true for alot of people. I had mutiple MRIs done both with and without contrast. Lynne --- On Sun, 11/23/08, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote: > From: [EMAIL PROTECTED] <[EMAIL PROTECTED]> > Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #431 > To: "jrushton" <[EMAIL PROTECTED]>, [EMAIL PROTECTED], "TMIC" > <tmic-list@eskimo.com> > Date: Sunday, November 23, 2008, 4:30 PM > > i have a question, has anyone else been told that > they don't have > lesions on their spine? my neuro > says mine is just swelling from c6-t3 > and t9-t10., so > what does that mean? > > What does swelling from c6-t3 > and t9-t10 mean?? > > Did you have an MRI with and with out gadolium > (enhansement)? > > F One site has it all. Your email accounts, your social networks, and the things you love. Try the new AOL.com today!