You know, Debbie...I almost got in touch with you before I sent the e-mail to TMIC! You are such a blessing as are all of you on TMIC! I will pass this info on to Sophia's mom! Thank you! j -------Original Message------- From: Deborah Nord Capen Date: 1/14/2009 11:16:44 AM To: jrushton Subject: Re: [TMIC] Needing help...?? Hi Jeanne, I don't have the information readily available, but you might want to contact Jeanne Hamilton in Illinois (she is in the TMA Membership Directory) There are several parents of children with TM who are available for help. Due to her age and privacy issues, we do not have any groups specifically for children, but for the parents of children. There is a parents support group that you can find at the website at www.myelitis.org under "support groups". She definitely needs to sign up for the Victory Junction Children's and Family Camp this summer!! Please, if you can send me her information I will contact the Mom to discuss this with her. She will meet others who are her age (and older), as well as Dr. Kerr, Dr. Kaplan and Dr. Pidcock, who will be at the camp. And it is absolutely free to attend for the children and the families (this includes any siblings she has). The only cost is the travel expense to get there. Please let me know how I can help. Take care, Debbie ----- Original Message ----- From: jrushton To: tmic Sent: Tuesday, January 13, 2009 7:51 PM Subject: [TMIC] Needing help...??
Hi, everyone, I recently found out about a little girl in the third grade that is really having a tough time with her TM and needs to find some other children or even someone that might have been stricken with TM when they were young and are older now. I am getting the details to see how she can chat' with someone but this is my first step. Sure hope someone can help her.. Jeanne in Dayton