When I had my attack (that what i call it) I woke up feeling like my back was on fire. I thought I had gotten sunburned, but i had a rash across my shoulders and straight down my spine. When I tried to get out of bed I could not stand. My neuro said the rash was a coincidence and had nothing to do with the TM. But, the rash was at the same level as the swelling in my spine. I never did get an answer, and I have the rash on my head right now. My rash is also red bumps and it actually looks like acne but it itches. I bought some Neutrogena anti-acne body wash with salicylic acid in it and used some acne free lotion with the same thing in it and it went away from my back and all. It just recently reappeared on my head! Have a great evening. Amanda
--- On Mon, 3/2/09, tmic-digest-requ...@eskimo.com <tmic-digest-requ...@eskimo.com> wrote: From: tmic-digest-requ...@eskimo.com <tmic-digest-requ...@eskimo.com> Subject: tmic-digest Digest V2009 #124 To: tmic-dig...@eskimo.com Date: Monday, March 2, 2009, 12:06 AM tmic-digest Digest Volume 2009 : Issue 124 Today's Topics: Re: [TMIC] For you MSr's [ jharpe...@aol.com ] [TMIC] anniversary [ Lawrence King <we4king...@verizon.n ] [TMIC] March Birthdays [ jharpe...@aol.com ] [TMIC] Birthday [ celr...@aol.com ] I think that's excellent. The only word I have a little trouble with is "imposing" -- "Individuals who insist on imposing their own beliefs on discussions risk alienating others whose beliefs differ." I agree completely with that statement, but I have experienced sometimes people thinking I am imposing my beliefs when I am just sharing them. But I don't know if there is a better way to word it. I think readers just have to take things in that vein-- that anything shared is the individual's own perspective and what each individual believes is his or her own choice. Barbara H. in SC where we have 5 inches of snow (a big deal for us :-) ) http://barbarah.wordpress.com/ In a message dated 3/1/2009 11:24:26 P.M. Eastern Standard Time, we4king...@verizon.net writes: Hi all, if it were up to me (and I know that it's not!) this is how I would write such a policy: Transverse Myelitis is a disease, which strikes without mercy or regard to sex, race, nationality, religious belief and political affiliation. It’s impact reaches into every area of our lives, from our relationships with family and friends, to our physical, mental, and emotional well being, and to our spiritual lives in ways few of us could have ever imagined. For some of us Tm brings about a renewal of faith and for others a crisis, still others find no connection between this disease and spiritual matters. A great many of us discover that a re-examination of our beliefs is part of our journey. For those of us who do have faith, its aspects: readings, meditations, prayers, rituals and communities are as fundamental to our recovery and survival as our medications and therapies. If we are to fully help each other in coping with this disease and it’s aftermath, spiritual discussions are at times unavoidable. But for our group’s purpose, there is no affiliation with any one religion or doctrine. Individuals who insist on imposing their own beliefs on discussions risk alienating others whose beliefs differ and this diminishes our service to each other. In the same way that each one of us takes away suggestions of products, medications and therapies that we think may be helpful and disregards the rest, so should it be with spiritual discussions. As for politics: there is no place for such discussions here as our members come from many nations. However, notices of pending legislation(s), which directly impacts this disease and its sufferers, may be posted. Our sole purpose is to help each other and there is no support when tempers flare and condemnations rather than sympathies are expressed. copywrite 2009 Mindy King Mindy the Artist On Mar 1, 2009, at 9:09 AM, heyjude48...@aol.com wrote: Trudy and Mindy, I believe that what you are suggesting regarding a way to share "religious" discussions in a manner that would respect each of us and our individual and shared beliefs is just a wonderful idea. I have long wanted to express the way I feel about Prayer and the Father, Son and Holy Ghost. Prayer works, regardless of who or what we Pray to as long as it is done in a pleasing manner to Our Father. There would probably have to be some ground rules. Maybe a small committee could be formed to address the issues that may come up, as they do in any large group. We always need organization, blah, blah, blah. It is a good thing. It's time for me to get off of the computer. I love and Pray for you all. Jude In a message dated 2/28/2009 3:48:14 P.M. Eastern Standard Time, mother...@msn.com writes:Mindy So much of what you shared is exactly where I am at. I cannot organize my thoughts. It's awful, and my memory is totally gone! I take a drug called sanctura for incontinence and I'm not sure it's worth it. Also I hear that copaxone is another drug that causes memory loss. It's been 7 yrs now and my friends and family have finally begun to understand how fatigue is such an incredible factor in this disease. My husband is awesome but it all takes awhile. I also agree with you on the "religion". I wonder if we just make sure we put OT-Religious Content in our Subject area, those of us who wish to share our "spiritual" side can do so. I think that would be great. I wouldn't mind asking Jim Lubin if that's acceptable to him??? I agree, I think we are missing out on a very crucial part of who we are! Our spiritual side.... And we would be adamant that all religions are welcome as long as we respect each other and no evangelizing. Just my thoughts, meanwhile know you are in my prayers. Hang tough!! Trudy Worrying does not empty tomorrow of its troubles; It empties today of its strengths. Date: Sat, 28 Feb 2009 11:42:01 -0800 From: jmh1...@sbcglobal.net Subject: Re: [TMIC] For you MSr's To: tmic-list@eskimo.com; we4king...@verizon.net I am physically capable of doing the things I did before but my mind can't seem to organize my day in a productive way..... This, too, shall pass.......for both you and your hubby....keep positive thoughts in your heart and mind!! jan Mindy the Artist On Feb 28, 2009, at 1:45 AM, Cindy McLeroy wrote: Mindy, I forget where you are from, but if you could find a TM or maybe even a MS support group and take your husband with you, he might have some hah ha moments. I run a support group in So CA and so many people bring someone close to them that doesn't quite "get it". When they hear others describe the things the TM'er has described it is as if a light goes off and a new kind of sensitivity sets in. Let me know where you are from and maybe I can help you find a group near by. Take care, Cindy McLeroy ----- Original Message ----- From: Lawrence King To: tmic-l...@eskimo.com Cc: Lawrence King Sent: Friday, February 27, 2009 9:21 PM Subject: Re: [TMIC] For you MSr's Thanks Linda, and you too Jill for bringing up the subject! I don't post very often but I've been following the group off and on for more than a year and a half and the advice I've gotten from everyone about meds. has literally saved my life. I never lost mobility, can still skip and run if I have to. My balance sucks and I use a cane from time to time but no-one could see my pain or have any Idea what I was (and still am) going through! sometime I would corner friends and acquaintances and pour out my story. I would even take their hand and tip my head down in hopes that the shock would jump from my hand to theirs so that they would feel a bit of what I was going through and know that I wasn't some flake case. after 6 months of this pain I was ready to jump off a cliff like the unfortunate herd of pigs who receive the legion of demons Jesus encounters possessing the mad man outside of the city of Gadarenes. But I did not want to hurt my husband and children. This Sunday is my 2 year anniversary of TM and I don't want to jump off a cliff anymore but I still trying to come to terms with it all, I've come a long way but my husband is still a bit baffled by the changes in me. he has reaffirmed his commitment to me and our marriage of 22 years but he has a long way to go when it comes to understanding the remaining me and the new parts that have been shaped by this invisible pain. I figure that medical researchers have until my 8 year old turns 22 to come up with effective central pain syndrome treatment or cure... and yes I continue to pray for it to go away. the shocks don't bother me as much as the 24/7 buzz... I hope we all find it gone someday! Mindy the Artist On Feb 27, 2009, at 9:31 PM, L T CHERPESKI wrote: I have that too, Mindy - not 24/7 though. My lesions are high up like yours, C4,5 & 6 and I get the shocks down both arms and hands, and when I bend my head I get them from the right side of my neck up the right side only of my head. That's a real special one. Jill, I don't have MS either. I think with these crazy diseases there are many symptoms that are similar. Does that ever go away??? That would be nice, but I've had TM almost 7 years now and I still have these symptoms. I'm sure many people do not have them anymore - and I hope yours go away! Linda - Eagle, ID ---- Original Message ----- From: Lawrence King To: tmic-l...@eskimo.com Cc: Lawrence King Sent: Thursday, February 26, 2009 10:36 PM Subject: Re: [TMIC] For you MSr's I have L'hermettes sign on top of the sensation that I have my finger stuck in a light socket 24/7. Imagine that, electrocution with electric bursts... but I don't have MS. Mindy the Artist TM March 1, 2007 C4-C5 On Feb 26, 2009, at 10:47 PM, Jill Z wrote: I know some of us TMr's turned into MSr's and I was just wondering have any of you experienced that "Lhermette's sign" when you bend your neck forward and get electric down your legs? And does that ever go away??? Thanks, Jill in Chicago TM '04 MS '09 :( Windows Live™ Contacts: Organize your contact list. Check it out. = A Good Credit Score is 700 or Above. See yours in just 2 easy steps! = A Good Credit Score is 700 or Above. See yours in just 2 easy steps! today is my 2 year anniversary of contracting TM. Mindy the Artist Happy Birthday to the March babies! It's a short list this month, but that just means that much more cake for each of you. :-) Please send any additions or corrections to tmic-list@eskimo.com 3-3 Marsha Scholes (marshab...@aol.com) 03.05 Bettie Imus (bettie5...@aol.com) 03/06 Robert Lovette callsr...@wilkes.net 3-7 Sue Mattis (bobsue6...@adelphia.net) 3-15 Sandra Melville (luth...@comcast.net) 3-17 Joy S. (joyst...@aol.com) 3/24/99 Rachel (Of Reading for Rachel fame) (dmdoro...@wideopenwest.com) 3/24 john h (johnloveskara...@aol.com) 3/30 Gary (gbthomas8...@sbcglobal.net) 3-31-39 Jan H (jmh1...@sbcglobal.net) A Good Credit Score is 700 or Above. See yours in just 2 easy steps! Jane Elrod--March 26 is my birthday. I would like to be encluded in the list. Need a job? Find employment help in your area.
