Amanda,Welcome to the TM website which of course was created by Jim Lubin. I
have been out of touch for awhile, my one and only grandchild was here visiting
from San Francisco. I'm so glad you are coming to Johns Hopkins. I was seen up
there by Dr. Pardo and it is a great group of doctors. Some of the hotels give
you nice discounts if you are going to be a few days at Johns Hopkins. When my
husband found out he had prostate cancer 6 different surgeons said it was "too
late"... they were sure the cancer had spread! We went up to Johns Hopkins and
met one of the most incredible doctors from the Prostate group. Dr. Burnett was
fantastic and we feel saved my husband's life. Keep in touch, this is a
wonderful group of people!TrudyVirginiaTM/2002MS/2006
Worrying does not empty tomorrow of its
troubles;
It empties today of its strengths.
Date: Wed, 22 Apr 2009 14:10:21 -0700
From: adis...@yahoo.com
Subject: Re: [TMIC] Amanda needs our support!!
To: pieterheat...@shaw.ca; tmic-list@eskimo.com
Thank you Heather! I am actually going to John Hopkins in July to see one of
the neurologists in the TM center. I am very excited!! Jim Lubin is a
fascinating person isn't he!
From: Pieter and Heather <pieterheat...@shaw.ca>
To: jrushton <jrush...@columbiaenergyllc.com>; Janice <jan...@centurytel.net>;
Amanda Diskey <adis...@yahoo.com>; tmic <tmic-list@eskimo.com>
Sent: Wednesday, April 22, 2009 11:16:32 AM
Subject: Re: [TMIC] Amanda needs our support!!
Amanda,
Another place to get information is the TM Association website as well. Also
the John Hopkins website has good information too. I go to the TMA website
everyday as well.
Jim Lubin our computer guru who started this site years ago is also a quad on a
ventilator. I know he does not live totally independently as he has help but
he does very well from all I have read.
As Jeanne says, read all you can and get educated about this TM. It has played
havoc with soooo many lives. Whether we are affected a lot or a little it
changes us and those around us.
{{Hugs}}
Heather in Calgary
----- Original Message -----
From: jrushton
To: Janice ; Amanda Diskey ; tmic
Sent: Tuesday, April 21, 2009 7:26 PM
Subject: Re: [TMIC] Amanda needs our support!!
..yes, and read all you can from everyone because there are so many
similarities even tho our injuries may be totally different. Sometimes, right
out of the blue you will read something that can really help you but the main
thing is getting educated about this old thing that we have. We're all here
for you every single day!! Jeanne
-------Original Message-------
From: Janice
Date: 4/21/2009 10:20:13 PM
To: jrushton; gor...@earthlink.net; tmic
Subject: Re: [TMIC] Amanda needs our support!!
Amanda, you certainly have my support and prayers, but I have no ideas for you.
There are others here who are
quads and you will surely hear from them. Let us hear more from you on how you
are doing. Janice
----- Original Message -----
From: jrushton
To: gor...@earthlink.net ; tmic
Sent: Tuesday, April 21, 2009 7:46 PM
Subject: Re: [TMIC] Amanda needs our support!!
adis...@yahoo.com
I got it through our tmic??
-------Original Message-------
From: gor...@earthlink.net
Date: 4/21/2009 6:54:35 PM
To: jrushton
Subject: Re: [TMIC] Amanda needs our support!!
what is her email addy?
----- Original Message -----
From: jrushton
To: tmic
Sent: Tuesday, April 21, 2009 10:34 AM
Subject: [TMIC] Amanda needs our support!!
Hi, everyone! We have a new TMer that wrote in last week. She must have
problems with the chat line because she hasn't heard from anyone but me and one
other person and that is really unusual for our group!! I'll copy her note to
show you that she needs us and our support!! ::)) Jeanne in Dayton
Amanda's note:
I was wondering if there is anyone here who is a c6 quad with very little use
of their hands and no use of their legs that lives independently. I am needing
to talk to someone who can offer some advice on how I can do some things.
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