There is another option you may want to check into, I know there is a company
out there that does vitamin D in a liquid form that you rub on your chest
every day.
--- On Thu, 5/28/09, CANDIS KALLEY <cakal...@embarqmail.com> wrote:
From: CANDIS KALLEY <cakal...@embarqmail.com>
Subject: Re: [TMIC] Steroids and Osteoporosis
To: "tmic-list" <tmic-list@eskimo.com>
Date: Thursday, May 28, 2009, 10:58 AM
#yiv618796850 p {margin:0;}
I have been taking Boniva for over 7 years. I tried the daily and weekly
supplements but that caused constant diarrhea
Part of my problems is that 33 years ago, I had to have my colon removed
(ileostomy) and a foot of my small intestine along with the rectum (I was given
a 90% of cancer but beat that). Therefore, my body does not absorb alot of the
nutrients that I need. I am on 50,000 units of Vit. D 1X weekly plus I take
additional supplements of Vit. D, 2,000 IU and calcium with magnesium 2X
daily. Plus I eat yogart, eat cheese, and have milk daily. The milk does
cause diarrhea but I LOVE milk and try to have it in the afternoon.
The good thing about the ileostomy is that I don't have the problems of
constipation that alot of us TM'ers have because I wear an appliance to catch
the waste and have to empty it atleast 5X aday.
I also have the problem that even with the Vit. D supplements, my system only
shows 1/4 of the required Vit. D.
I did some research and yes I thought about the IV but the cost is about $1800
which is alot but if you are paying approx. $100 per month for Boniva is not
too much different. I also found where you can have a daily injection of
teriparatide (forteo) but haven't found any $ amount.
My biggest problem is that I was born into the wrong body or with this body the
wrong family I could almost be a bionic woman with the $ amount I have had to
spend just to keep living!
Prayers and thoughts for you and yours,Candy K.
----- Original Message -----
From: montzma...@aol.com
To: cakal...@embarqmail.com
Sent: Thursday, May 28, 2009 10:07:08 AM GMT -05:00 US/Canada Eastern
Subject: Re: [TMIC] Steroids and Osteoporosis
I HAVE HAD OSTEOPOROSIS FOR YEARS NOW. I HAVE HAD TM FOR ALMOST 18 YEARS. I
HAVE BEEN ON AND OFF OF THEM FOR THE LAST 17 AND 8 MONTHS OF LIFE WITH TM.
I GET A BONE DENSITY TEST EVERY YEAR. I TAKE 50,000 UNITS OF VITAMIN D ONCE A
MONTH.
I ALSO TAKE BONIVA ONCE A MONTH. MINE IS IN MY HIPS. BUT I HAVE GREATLY
IMPROVED. SO
MY ENDOCRONOLOGIST HOPES I CAN STOP THE BONIVA IN A YEAR.
THEY NOW HAVE A SHOT YOU TAKE CALLED RESTASIS ONCE A YEAR, ITS REALLY A FIFTEEN
MINUTE IV SORRY ABOUT THAT. MY DOCTOR WANTED ME TO DO THAT BUT ITS VERY
EXPENSIVE LIKE 1800 SO MY INSURANCE COMPANY WOULD NOT COVER IT.SO I WILL STAY
ON THE BONIVA FOR ANOTHER YEAR IT WORKS AND IS ALOT CHEAPER, I PAY 150.00 FOR 3
PILLS.
EVERYONE ON STEROIDS ARE WHO HAVE BEEN ON THEM NEED A BONE DENSITY TEST.
TIAD PAM!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
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