Jeron, I honestly don't know what to say to you. I don't have the complications you do, but my life is not independent any more. I panic at the thought that something could happen to my husband - besides his loss to deal with, I know I can not live alone. But, I can not believe you would give up on life. You need a really good doctor and he needs to get you on better or more meds - especially depression meds. I hate the sound of any of us giving up. There are so many people out there that would give anything to live, even with complications like yours. I have 2 friends that are dying of cancer as we speak - they would trade places with you in a flash. Only difference is, they would find a better doctor. Many of us have had a taste of a "not so good" doctor, and it stinks. But you just can NOT give up. You are putting your body through so much more than it has to go through by not taking any meds. Also, the support of family and friends is extremely important. Life, to me, would be unbearable without them. Please get some help - it is out there, just waiting for you.
Please stay in touch with us, Janice From: j ra Sent: Thursday, May 20, 2010 3:10 AM To: Transverse Myelytis Subject: [TMIC] alive Have anyone of you ever wondered what it would be like without this? I've put so much pressure on my family that I now know what loneliness feels like. I haven't seen my wife for months and I prefer it this way. I have so much pain and it's mine and mine alone to bear. I have fibromyalgia, vasculitis and TM.....and I just quit pain meds one week ago....just to see what it all feels like again. I'm suffering from withdrawal symtoms of valium, nuerontin, cymbalta and seroquel all at the same time. I'm just about given up hope.....what's the use...I can't even feel the earth underneath my feet anyway, with or without them. I've decided to live until death with the pain and the agony....be it alone or with my shadow. I love my wife too much to see her cry again for me in a hospital bed...so I've decided to go it alone....no cure...no questions...no more burden to my loved ones. I now live alone and try to get by each day....one day at a time, until the end.....I give up! Sorry to all of you who have been there before for me. Jeron -------------------------------------------------------------------------------- Hotmail: Trusted email with powerful SPAM protection. Sign up now.
