Cheryl, does your amount of baclofen you take make you sleepy during the day?
Janice
From: rn11...@yahoo.com
Sent: Wednesday, August 04, 2010 4:27 PM
To: Akua
Cc: tmic-list@eskimo.com
Subject: Re: [TMIC] Meds question
Hi Akua,
I live in an area without any transportation; no bus,taxi,nothing. I
do have a sister and brother in law that take me to appts,and my youngest
daughter usually does my grocery shopping.
When I first got tm and was in rehab.it was hard for the staff to
understand no buses or taxis.
I feel especially bad for you because now that you cancelled the dr
appt,she probably will not renew the script. You'll be lucky if you can even
get a refill.
Do you have a pcp that will order it for you? Mine orders all my
meds,and I haven't seen a neuro in years. I take baclofen 30 mg 2x a day for
spasms;no other meds for tm symptoms,just meds for high bp and diabetes.
I wish you well.
Cheryl in Easthampton,MA.
--- On Wed, 8/4/10, Akua <a...@artfarm.com> wrote:
From: Akua <a...@artfarm.com>
Subject: [TMIC] Meds question
To: tmic-list@eskimo.com
Date: Wednesday, August 4, 2010, 5:15 PM
I take just one thing for nerve pain and well being and that's low dose
naltrexone.
I was without it for a week, because my neurologist refused to extend
my prescription without seeing her.
Last time I saw her in April of 09, she did nothing for me and she
charged about $475.
Her office is about a half a mile away and I live in a town with no
paratransit -- there's
no way fro me to get to the office. There was once an occasional
schedule a ride
to doctor service, but that has disappeared (another long sad story).
Anyway I got
a bit exercised with the staff and said if she made house calls, I was
ready to see her, but until or unless they could arrange transportation---
after all she is the neurologist and should understand
about being paralyzed and in a wheelchair-- couldn't they just call in
my script. they did, finally and set up an appointment for tomorrrow which I've
just had to cancell because there is no way for me to get there.
All this by way of saying I wasn't sure what it did ( I had forgotten)
until i was without it again. It's been
hard to regulate body temperature, I felt stabbing pains in my behind
and pressure in my legs, like
tubes being squeezed and stomped on--- of course this is all from the
inside out, as I cannot feel touch.
The script arrived Monday, so I'm just getting back to equilibrium
again.
--
