been there ; still there although taking 300 mg of quinne-odan helps somewhat. i wake up with my toes curled upwards. the pain is awesome. I then rub a535 on my feet and the pain subsides and my toes become normal. I am usually up for an hour or so I can get into bed. that is repeated about 4 or 5 times during the night haven't had a full 6 to 8 hours sleep straight about 6 years. p.s you should see my collection of books I have.
Date: Wed, 11 Aug 2010 08:32:38 -0700 From: tmic-digest-requ...@eskimo.com Subject: tmic-digest Digest V2010 #361 To: tmic-dig...@eskimo.com --Forwarded Message Attachment-- tmic-digest Digest Volume 2010 : Issue 361 Today's Topics: Re: [TMIC] Fact Sheet on TM [ CANDIS KALLEY <cakal...@embarqmail. ] [TMIC] arghhh!!!!!!! [ john snodgrass <jcs...@yahoo.com> ] Re: [TMIC] August Birthdays [ "L T CHERPESKI" <cherp...@msn.com> ] Re: [TMIC] arghhh!!!!!!! [ randy rankin <rj_ran...@yahoo.com> ] RE: [TMIC] arghhh!!!!!!! [ "Janet Dunn" <j.d...@shaw.ca> ] --Forwarded Message Attachment-- Date: Tue, 10 Aug 2010 07:53:34 -0400 From: cakal...@embarqmail.com To: TMIC-LIST@eskimo.com Subject: Re: [TMIC] Fact Sheet on TM Todd, I have my info on an Excel spreadsheet. I then did a sort on med column then dr. column which then put all the med names in alpha order by the doctor. Then each dr. can see at a glance who is prescribing what. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. ----- Original Message ----- From: "Todd Tarno" <toddtm2...@sbcglobal.net> To: "CANDIS KALLEY" <cakal...@embarqmail.com> Sent: Monday, August 9, 2010 4:04:08 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Fact Sheet on TM Thanks Candy, This is a wonderful ideal, since I do have more than one doctor. You just had to ADD another column to my medication list. LOL Thanks for the info. Todd --- On Sat, 8/7/10, CANDIS KALLEY <cakal...@embarqmail.com> wrote: From: CANDIS KALLEY <cakal...@embarqmail.com> Subject: Re: [TMIC] Fact Sheet on TM To: "Todd Tarno" <toddtm2...@sbcglobal.net> Date: Saturday, August 7, 2010, 4:08 PM I also have a column of which dr. prescribed the med. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. ----- Original Message ----- From: "Todd Tarno" <toddtm2...@sbcglobal.net> To: "TMIC" <tmic-list@eskimo.com> Sent: Saturday, August 7, 2010 2:50:05 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Fact Sheet on TM My medication speadsheet has the following: Medication, Date Started, Dose, Times of Day w/time of the day M, D, & N ( Morning, Dinner & Night), Type of Med. I believe this will cover everthing. lol Todd in CC, TX --- On Sat, 8/7/10, CANDIS KALLEY <cakal...@embarqmail.com> wrote: From: CANDIS KALLEY <cakal...@embarqmail.com> Subject: Re: [TMIC] Fact Sheet on TM To: "tmic-list" <tmic-list@eskimo.com> Date: Saturday, August 7, 2010, 10:40 AM Patti, you may also want to make a sheet on all the meds you are on. Also, the vitamins and supplements that you may be taking. I keep an Excel spreadsheet so that I can change dosages and add or delete meds as needed. I also list the dates of start/end, plus the Dr. info. This is much easier as I have found that on every visit, the questionaire asks for "current" meds. This way, I print the list before the visit and just say "See attached". Much Much easier! Candy K. ----- Original Message ----- From: "Patricia Cooley" <patticoole...@gmail.com> To: "Rev. Craig Crossman" <revcross...@gmail.com>, tmic-list@eskimo.com Sent: Saturday, August 7, 2010 11:22:15 AM GMT -05:00 US/Canada Eastern Subject: RE: [TMIC] Fact Sheet on TM THANKS SO MUCH FOR THIS INFO. SINCE I MOVED SEVERAL MONTHS AGO, I WILL NEED TO CONNECT WITH A NEW PCP, NEUROLOGIST, AND UROLOGIST VERY SOON. SINCE THIS IS A SMALL TOWN, I WAS AFRAID THEY WOULD NOT BE AWARE OF TM. I PRINTED IT OFF AND WILL BE SURE TO TAKE WITH ME AT MY FIRST APPOINTMENT. THANKS AGAIN. PATTI - WISCONSIN From: Rev. Craig Crossman [mailto:revcross...@gmail.com] Sent: Friday, August 06, 2010 3:08 PM To: tmic-list@eskimo.com Subject: [TMIC] Fact Sheet on TM Many of you have probably already read this Fact Sheet. I find it helpful to give any physician or PA or NP that is my primary care provider since 90% of them have no idea what TM is, and it seems many don’t want to take the time to find out about it as well. What is even more aggravating is that my new neurologist (the only one within three hours travel) has no experience with it either. So she’ll get a copy as well. http://www.ninds.nih.gov/disorders/transversemyelitis Rev. Craig Crossman First Baptist Church 615 W. Webster St. Colby, KS 67701 W - (785)462-2867/ Cell - (785)443-5154 revcross...@gmail.com www.firstbaptistcolby.org --Forwarded Message Attachment-- Date: Tue, 10 Aug 2010 20:13:59 -0700 From: jcs...@yahoo.com To: tmic-list@eskimo.com Subject: [TMIC] arghhh!!!!!!! bed at 8 up at 10 spasm city! more pain meds. now just burning legs. gotta be up at 4. slept 2.5 hours last night. whats this? getting sleepy. good. --Forwarded Message Attachment-- Date: Tue, 10 Aug 2010 21:56:50 -0600 From: cherp...@msn.com To: tmic-list@eskimo.com; barbara...@gmail.com Subject: Re: [TMIC] August Birthdays HAPPY BIRTHDAY AUGUST KIDS! (Great time of the year to be born!) ----- Original Message ----- From: Barbara H. To: TMIC Sent: Saturday, July 31, 2010 10:22 PM Subject: [TMIC] August Birthdays Happy Birthday to the August kids! Please send any additions or corrections to tmic-l...@eskimo.com. 8/1 Peachi (pkeene2...@aol.com) 8/1 Cindy McLeroy (cindymcle...@socal.rr.com) 8- 1 Stacy Firth (safi...@dow.com ) 8-3 Larry Throne (lbthr...@hotmail.com ) 8-10 Sean Indiveri (sindiv...@hotmail.com) 8-11 Raylene Gökeri (mrs_gok...@yahoo.com 8-11 Michelle Maricic (mmari...@aol.com) 11th August 1950 Dalida S. Ortiz de Garcia (py...@yahoo.com) 8-16- phyllisj...@webtv.net 08/17 Sandra (Harth) Brassil (sbras...@aol.com) 8-17 Kim (jnks...@huntel.net) 08/18 Corinne "Cookie" Knox (horsecookies...@wmconnect.com) 8-19 Saroj (sarojkumar...@gmail.com) 8-21 Barbara H. (jbarbara...@gmail.com) 8/22 - Debi (debdo...@aol.com) 8-23 Cole (neilandwe...@rogers.com) 8-29 Lisa Baker (Judy's daughter) (judybak...@juno.com 8-29 Kathleen (kkar...@dacor.net ) 8/30 Lynn Pouliot (lpoul...@cox.net) 8- 31 Robin in Ontario(Brampton)(rjohnson1...@rogers.com ) --Forwarded Message Attachment-- Date: Tue, 10 Aug 2010 21:48:20 -0700 From: rj_ran...@yahoo.com To: jcs...@yahoo.com; tmic-list@eskimo.com Subject: Re: [TMIC] arghhh!!!!!!! Hey John, been there - understand what you're going through. I'm not sure what will work for you. mix of meds and p.t. (eventhough my first neuro said p.t. wouldn't do any good) made a big difference but it took several years of constant determination. From: john snodgrass <jcs...@yahoo.com> To: transverse myelitis <tmic-list@eskimo.com> Sent: Tue, August 10, 2010 11:13:59 PM Subject: [TMIC] arghhh!!!!!!! bed at 8 up at 10 spasm city! more pain meds. now just burning legs. gotta be up at 4. slept 2.5 hours last night. whats this? getting sleepy. good. --Forwarded Message Attachment-- Date: Tue, 10 Aug 2010 23:44:06 -0700 From: j.d...@shaw.ca To: rj_ran...@yahoo.com; jcs...@yahoo.com; tmic-list@eskimo.com Subject: RE: [TMIC] arghhh!!!!!!! Hey John, Randy, I’ve been there too. Besides Percodan and Baclofen, I also use a good healthy dose of Magnesium Citrate. About 400 – 500 mgs – it is a natural muscle relaxant. And it helps with the sleep issue. Gotta love TM. Gotta. NOT! Janet From: randy rankin [mailto:rj_ran...@yahoo.com] Sent: August 10, 2010 9:48 PM To: john snodgrass; transverse myelitis Subject: Re: [TMIC] arghhh!!!!!!! Hey John, been there - understand what you're going through. I'm not sure what will work for you. mix of meds and p.t. (eventhough my first neuro said p.t. wouldn't do any good) made a big difference but it took several years of constant determination. From: john snodgrass <jcs...@yahoo.com> To: transverse myelitis <tmic-list@eskimo.com> Sent: Tue, August 10, 2010 11:13:59 PM Subject: [TMIC] arghhh!!!!!!! bed at 8 up at 10 spasm city! more pain meds. now just burning legs. gotta be up at 4. slept 2.5 hours last night. whats this? getting sleepy. good.
