Yes we all have days like this... my 6 year "anniversay" is comming up oct 6th and it's hard not to dwell on how my life changed so much within a few hours... to go from being so active to tired just getting out of bed and try to explain to others how I feel. my TM family gets me thru so much!
----- Original Message ----- From: "john snodgrass" <jcs...@yahoo.com> To: rn11...@yahoo.com Cc: "transverse myelitis" <tmic-list@eskimo.com> Sent: Monday, September 27, 2010 5:56:11 PM Subject: RE: [TMIC] It's my birthday Rob is right. yesterday i had a terrible day. wanted to go visit my 79 year old dad and couldn't. chair to bed all day! there was an accident below my home Saturday evening and i wanted to hurry to see if i could help or was it family or what and i almost fell down a lot of times! if i wanted to be sure on my feet i should use a stick or a walker but i am hard headed and wont s i look like a drunk man walking. today was a little better but still a lot of pain. I am @ 2.5 years into this thing and there was one day when i was so frustrated that i cried. sometimes you have to if you have to. i think self pity is natural when it comes to health problems. anyone who would cast a bad light on someone for that just may find themselves in a worse condition. not long after I had my virus in my spine i found out that one of my best friends had a virus that went to his heart. he is still functioning who who woulda thunk it! sometimes i just want to walk right out of this body. then i think of my loved ones and friends,and of course you folks that fight this same fight with me. keep on the firing line. tomorrow is a better day. --- On Mon, 9/27/10, rn11...@yahoo.com <rn11...@yahoo.com> wrote: From: rn11...@yahoo.com <rn11...@yahoo.com> Subject: RE: [ TMIC ] It's my birthday To: "Robert Pall" <rp...@neillsupply.com> Cc: tmic-list@eskimo.com Date: Monday, September 27, 2010, 5:39 PM Rob, I think everyone has days that tm is overwhelming. There have been several days lately that I've cried about all that I lost when tm struck me on 8/13/95. Except for those here on the list,nobody "gets it" and how hard just getting out of bed and functioning every day is. I thank all of you for being here. Yes Rob,tomorrow will be a better day! Cheryl in Easthampton,MA. --- On Mon, 9/27/10, Robert Pall <rp...@neillsupply.com> wrote: From: Robert Pall <rp...@neillsupply.com> Subject: RE: [TMIC] It's my birthday To: alle...@aol.com, tmic-list@eskimo.com Date: Monday, September 27, 2010, 3:21 PM What a coincidence ...today is my Bar Mitzvah ...it is exactly 13 years for me today...not sure how to celebrate. I came down with TM one week after my 50th birthday....therefore when i had my big 10 year mark it was the first time I allowed myself self pity...I broke down for a day or two and just felt so much self pity......and then i realized how many wonderful things I have and I went back to my normally positive attitude....but today after 13 years I just think when I go home I will have a good cry & allow myself tonight to feel sorry for myself. Tomorrow will be a better day! Ella ...give yourself a little time to grieve for what you have lost and then do your best to put it behind you... All the best! Rob in New Jersey From: alle...@aol.com [mailto:alle...@aol.com] Sent: Monday, September 27, 2010 2:28 PM To: tmic-list@eskimo.com Subject: [TMIC] It's my birthday Hello everyone, Today I am TM 10 and not sure of how I feel. The fact that it is cloudy out doesn't help either. Ten years ago I went into a coma and awoke weeks later not able to move anything, not even my head. Eventually I got everything back but my legs and what happened in the 90's. Am I depressed? I say I am but doctors don't think so, just a bit of sadness. I think I live 80% in my head so I don't dwell on the pain below and everything else that goes along with TM. Am I scared? Sometimes when I think yes this is my new life knowing how bad I want the old. You guys are a God-send and the support we give each other is beyond words. Thanks, I thought I was feeling sorry for myself but writing this made me feel better, have a great day........Ella
