Well, me missus had her first attack in September '97 at T-8. No treatment
received.
Then in Feb '99 she had a second attack, this one at C-5,6.
Her dx was changed from TM to MS and she's been on Avonex ever since.
No more events, relapses, nada. One can't tell she's afflicted.
BobbyJim, in melting Elvisland
----- Original Message -----
From: rn11...@yahoo.com
To: jeff bernier
Cc: tmic
Sent: Wednesday, June 01, 2011 10:02 AM
Subject: Re: [TMIC] the run around
Hi,
You're right,it is a circus.
I got tm on 8/13/95. MRI showed lesion from T4-T5. Started out
paralyzed from T4 to toes. Now numb in that area,with a few areas of
hypersensitivity on left side. I have bladder/bowel problems,spasms,numbness
and tingling. I walk with a walker.
A year or so after dx. I had a flare-up and had another MRI. The
original lesion was gone. My dx remains tm. I've never had an LP.
Are your docs planning another LP? Why do they say there is not any
sign of demyl from the spinal fluid? Isn't that what made them think (along
with the spot on the brain) it was MS? I'm confused!
Cheryl in Easthampton,MA
--- On Wed, 6/1/11, jeff bernier <jeffsmokeea...@yahoo.com> wrote:
From: jeff bernier <jeffsmokeea...@yahoo.com>
Subject: [TMIC] the run around
To: msersl...@yahoogroups.com, tmic-list@eskimo.com
Date: Wednesday, June 1, 2011, 10:24 AM
hello,i havnt posted on here in years,recognise most of you and see
alot of new names,just thought i would throw this out there and see what you
all think.
in feb 2000,i fell through a staircase fighting a fire and landed on
my heels,i had a shockwave go up my spine and went over on my head.had no
sighns of numbness or the pins and needles untill 3 weeks later,it got so bad i
started falling on my face and became so weak the wheelchair was the only other
option,i was given all the ms test and came up neg,but they found lesions on my
c spine and were extremely quick to call what i had transverse myelitis (
inflamation of the spinal chord ).through the course of 5 years,i went through
all the crap that comes with ms,everything from spasms,bladderdisfunct,sexual
problems etc etc and experienced every range of emotion there is.in 2005 i was
dx with ms after a positive lp and a small lesion on the brain,the lesions on
the c spine were gone and i thought i was finally going to get some
answers.well in jan i had a repeat mri done and found the spot on the brain is
still there,but was told the spinal fluid they took in 2005 showed no sighns of
demyl and they changed my dx back to tm.now how frustrating is that? 11
years,22 doctors,3 major hospital centers and 15 therapy centers later to be
put back to square 1 with still no answers.what a circus.
DIPLOMACY DOES NOT
WORK WHEN DEALING WITH
NUT'S HELL BENT ON
DESTROYING US.
