When I was pregnant with my first child, my ob-gyn referred me to a
genetic counselor “just in case.”

When I asked my children how they felt about the XLH I had passed on
to them, both of them spoke of the disability as almost, though not
quite, a gift. “It has made me not fit in,” Eliza said, “but it has
taught me empathy.”

“I am sometimes bitter about being so short,” Walker said, “and about
the pain, but I am very glad to be alive.”
Read more: 
http://www.nytimes.com/2016/09/07/opinion/passing-my-disability-on-to-my-children.html?action=click&pgtype=Homepage&clickSource=story-heading&module=opinion-c-col-left-region&region=opinion-c-col-left-region&WT.nav=opinion-c-col-left-region&_r=0

Sheila Black is the author of three books of poetry, most recently,
“Wen Kroy,” an editor of “Beauty Is a Verb: The New Disability
Poetry,” and the director of Gemini Ink, a literary arts center in San
Antonio.

-- 
Avinash Shahi
Doctoral student at Centre for Law and Governance JNU


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