Friend,

Kanchan Ma'am is right  currently there is no hope but in indeed there
is a hope in the future, I too  face problem of Optic Nerve Attrophy
when I wanted to go for treatment two years back but doctor said "it
can take 5-10 ears to come this treatment in India or it may come
earlier also no one has when this treatment will be available  in
India!" lets hope for the best as Kanchan Ma'am suggested!

Warm Regards,
Tilak.


On 12/28/17, Kanchan Pamnani <kanchanpamn...@gmail.com> wrote:
> Best wishes for your visit to the hospital.
> However I will reiterate what I had written yesterday.
> Have patience there is no cure or treatment right now.
> Concentrate on other issues and let the doctors and researchers do whatever
> they can.
> Kanchan
> -----Original Message-----
> From: AccessIndia [mailto:accessindia-boun...@accessindia.org.in] On Behalf
> Of Mohib Anwar Rafay
> Sent: 28 December 2017 12:42
> To: AccessIndia: a list for discussing accessibility and issues concerning
> the disabled.
> Subject: Re: [AI] Query about the treatment of RP in Lv Prasad Eye Institute
> Hyderabad
>
> Thank you all, I have fixed an appointment with Dr. Subhadra Jalali in
> January 2018. Post visit, will share my experience.
>
> On 12/27/17, Arijeet Patil <arijeetvinaypa...@gmail.com> wrote:
>> I am extremely overjoyed, extatic and delighted to be informed of
>> this. I’m blind because of RP or ROP, caused due to prematurity. I
>> would very much like to be treated and to gaze at the landscapes as
>> well as utilise my hering, and learn the print alphabet and pen literally,
>> as “mostbody” do.
>> Once again, thank you.
>>
>> Sent from my iPhone
>>
>>> On 27-Dec-2017, at 12:46, Mohib Anwar Rafay <mohibra...@gmail.com> wrote:
>>>
>>> Hi all list members, I want to know whether visiting Dr. LV Prasad
>>> Eye Institute Hyderabad is of any help for RP patients? Is there any
>>> ray of hope for quring the gradual loss of vision due to Retinitis
>>> Pigmentosa? Has any of our members visited this eye institute for RP
>>> or Optic Nerve Attrophy? If there is any specialist doctor of this
>>> area, kindly share the details.
>>>
>>> --
>>> Mohib Anwar Rafay
>>>
>>> Phone: +919 555 555 765
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> --
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