Dear Mr. Avinash Shahi
Wonderful
You keep all of us updated with all the current affairs in the country.
Thank you
God bless
Dr. Paul Muddha


-----Original Message-----
From: AccessIndia [mailto:accessindia-boun...@accessindia.org.in] On Behalf Of 
avinash shahi
Sent: Wednesday, April 04, 2018 2:57 PM
To: accessindia
Subject: [AI] Frontline obituary: Javed Abidi (1965-2018) worked relentlessly 
all his life to improve the lives of the disabled and help them live with 
dignity. By ZIYA US SALAM

Friend of the disabled
http://www.frontline.in/other/obituary/friend-of-the-disabled/article10095685.ece
FOR a little under three decades, Javed Abidi was the face that came to the 
public mind on any issue concerning the disabled. This recall value was based 
on Abidi’s sustained work—his ability to run from pillar to post in the quest 
to make the nation more friendly to the disabled. For years he fought the 
notoriously lethargic bureaucracy, and for decades he fought social stereotypes 
and prejudices, at a time when terms like “handicapped”
were an accepted
part of social conversation and terms such as differently abled or specially 
abled had not yet found their way into social vocabulary.
For years he fought
a political system where most parties offered nothing more than homilies. And 
when he did press for affirmative action for the community, he stayed 
politically neutral.

After several years of heartburning and frustration, he succeeded. The 
Disability Act was possible owing to his perseverance, his ability to take one 
step at a time but never stop or procrastinate. In his relentless pursuit of 
the common needs of the disabled, Abidi concentrated on what he did
best: bringing
about a change at the ground level through relentless toil. He became the 
pioneer of the cross-disability movement whereby people with varying special 
skills came on a common platform. Thus was founded the Disabled Rights Group in 
1993. The group worked on cross-disability issues of access.
It was courtesy
his effort that many stadiums, cinemas, railway stations and airports began to 
have ramps, allowing for easier passage of the wheelchair-bound, and 
tessellation flooring facilitating the movement of the visually challenged.

Then came the turn of monuments such as Humayun’s tomb, the Red Fort and the 
Qutub Minar, which too became disabled-friendly. It was a small step for the 
authorities but a giant leap for the disabled community. Slowly, Abidi began to 
be taken seriously. He was not just another activist. For the world he was 
somebody; for the specially abled he was the world.

Indeed, his life was a relentless pursuit of dignity for the community. He 
played an important role in getting Parliament to pass the crucial Rights of 
Persons with Disabilities Act, 2016. Incidentally, it was the passage of this 
Act that showed the truly wide horizon of Abidi, his ability to overcome 
political challenges.

The Disability Rights Bill was mooted during the United Progressive Alliance 
regime but could not be passed. When the Bharatiya Janata Party-led National 
Democratic Alliance government took charge in 2014, he pursued the Bill with 
the new dispensation, much to the chagrin of some of his supporters. Abidi, 
however, proved that the rights of the disabled surmounted any political 
affiliation or the lack of it. When the Bill was passed, many found it wanting 
in adequate safeguards for the disabled. Abidi understood their viewpoint, but 
was pragmatic enough to understand that the new Act gave recognition to
21 disability conditions, which was a vast improvement over the seven types 
agreed upon in the 1990s.

More recently, his voice rose above the din surrounding the implementation of 
Goods and Services Tax (GST). The Central government put several items of daily 
need for the specially abled in the high taxation slab. Thus, wheelchairs, 
hearing aids and Braille paper came under GST with the tax rates ranging from 
12 per cent to 18 per cent.

Abidi protested, took to Twitter, and succeeded in getting the government to 
announce a partial rollback of GST on these items—the tax was revised to 5 per 
cent. But Abidi was not satisfied with partial success. He wanted the tax to be 
waived completely on items of use for the specially abled. This ability to hold 
his own in front of the powerful was in complete consonance with his tenet of 
“Nothing About Us Without Us”. Abidi’s was not a one-way “I demand, you 
deliver” tactic though. If he prevailed upon successive governments to be more 
open to the interests of the disabled, he also tried to bring about a change in 
the mindset of the community. He wanted the community to fight for its share of 
the pie like any other Indian and live and compete on equal terms with others. 
He insisted on avoiding any doles or sops.

This call to the community to fight its own battles came through in his 
appreciation of the noted director Sanjay Leela Bhansali’s film Black, in which 
the lead character is a disabled girl. Abidi liked the fact that the film had 
no sermons on special interests of the disabled and did not preach social 
exclusion in the name of greater care.

Importantly, the film was invested with a rare sensitivity, no mean achievement 
as the industry has been notorious for cheap thrills at the expense of the 
specially abled. Expressions like “andha” (visually challenged) and “behra” 
(hearing impaired) have often been passed by the censor board without a thought 
for the sensitivity of the community. Abidi was appreciative of the director’s 
attempt to instil a sense of independence in the section.

The same principle stayed in place for him when he was at the helm of the 
National Centre for the Promotion of Employment for Disabled People.

For the disabled, employment was not something to be handed out as a petty 
concession but a right won on merit. For life to be lived with dignity, the 
disabled have to have jobs that enable them to do so on their terms.

Abidi, born in 1965, found no signs of social exclusion in Aligarh where he 
grew up. Early in life he was diagnosed with spina bifida.
Owing to a lack
of adequate medical care, there was nerve damage in subsequent years.
A fall at the age of 10 meant that he had to undergo an operation.
Soon afterwards,
he was treated in the Children’s Hospital in Boston in the United States. He 
was never able to walk after that and was confined to a wheelchair by the age 
of 15.

Then, to the surprise of his parents, he went to the U.S. to pursue media 
studies. In 1990, he came back to India, armed with a graduation degree from 
the Wright State University in Ohio and with dreams of making it to a big 
newspaper. But unable to get a job, he began doing freelance writing and 
working for the rights of the specially abled.

He recalled in an interview to The Hindu: “For the first time, it hit me that I 
am disabled. I was treated as a normal child at home and by my friends in 
Aligarh and also in the U.S. I was so self-dependent. I never felt disability 
before.”

As a journalist and activist, he met Congress leader Sonia Gandhi in the early 
1990s. The Rajiv Gandhi Foundation was a work in progress then. She asked him 
to set up a disability centre there. Abidi found the offer irresistible. A 
little later, he founded the Disability Rights Group.
This was to be the
beginning of a social movement aimed at making life a wee bit better for the 
specially abled.

The movement bore fruit a couple of years later when Parliament passed the 
Persons with Disabilities Act towards the end of 1995. Abidi did not stop with 
that. In the new millennium, following his letter to the Chief Justice of 
India, the Supreme Court issued directions to make polling booths accessible 
for the differently abled. Abidi was also to be the global chair of the 
Disabled People International.

Amidst all the challenges and triumphs, his sense of humour never left him. And 
his optimism was contagious. Once, in a lighter vein, he told The Hindu:
“When I was born, the doctor, seeing a lump on my back, strangely predicted 
that I will live for only 20 days. I was my parents’
firstborn. They were heart-broken
but not ready to give up. They named me Javed, which means immortal in Urdu. 
Today, there is a joke in the family that I might live up to my name.”

Abidi could not live forever but he did succeed in living way beyond the 
doctor’s prediction. Javed Abidi’s life was all about pushing the boundaries of 
possibilities.

He pushed, he petitioned, he prayed. He succeeded.


--
Avinash Shahi
Doctoral student at Centre for Law and Governance JNU




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