Hi Rahul, Well we have been following the evolution of this course of treatment since about six years now (since when it was in Phase III). My mom has been in contact with the Trial administrator. My mom tried very hard to get me in the Phase III trial. Despite registering well in advance and even sending my gene sample to the University of Philadelphia, we couldn't get through the red tape: they only preferred American patients. We have even visited Dr. Bath liroea the other doctor(apart from Dr. Albert and Dr. Jeane) involved in developing in the treatment in 2015. As per the results of the trials he seemed very optimistic: as they were patients who could zebra crossings at night. Now, the treatment has been approved. As per my opthamologist, Dr. LG at Sankara Naitralaya, only 24 people worldwide have availed the treatment. He was optimistic of the cost significantly going down as the numbers increase. Best Turab
On 9/3/18, Ved <vedprakash.sha...@gmail.com> wrote: > The article is not authentic. Presently, no gene therapies have been > recommended for the V I. of course, some trials have been taken place but > they did not show expected results. I have good relations with a reputed > eye > specialist. I keep on sending links of such article to him. His response is > not very enthusiastic. In his opinion, no treatment have since been > recommended with regard to gene therapies in the field of vision related > diseases. > > -----Original Message----- > From: AccessIndia [mailto:accessindia-boun...@accessindia.org.in] On Behalf > Of Rahul Bajaj > Sent: Monday, September 03, 2018 12:13 AM > To: accessindia@accessindia.org.in > Subject: [AI] Let there be sight | health > > A fascinating piece. This concerns my eye condition, but I do not have this > genetic mutation. > Given the cost of Rs. 5.38 crore, this may just be of academic interest for > most of us at this juncture. I am wondering, however, if people would opt > for this 'cure', in the event that it applied to their condition. > https://www.theweek.in/health/more/2018/08/31/let-there-be-sight.html > > > Sent from my iPhone > > > > Search for old postings at: > http://www.mail-archive.com/accessindia@accessindia.org.in/ > > To unsubscribe send a message to > accessindia-requ...@accessindia.org.in > with the subject unsubscribe. > > To change your subscription to digest mode or make any other changes, > please > visit the list home page at > http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in > > > Disclaimer: > 1. Contents of the mails, factual, or otherwise, reflect the thinking of > the > person sending the mail and AI in no way relates itself to its veracity; > > 2. AI cannot be held liable for any commission/omission based on the mails > sent through this mailing list.. > > > > > > Search for old postings at: > http://www.mail-archive.com/accessindia@accessindia.org.in/ > > To unsubscribe send a message to > accessindia-requ...@accessindia.org.in > with the subject unsubscribe. > > To change your subscription to digest mode or make any other changes, please > visit the list home page at > http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in > > > Disclaimer: > 1. Contents of the mails, factual, or otherwise, reflect the thinking of the > person sending the mail and AI in no way relates itself to its veracity; > > 2. AI cannot be held liable for any commission/omission based on the mails > sent through this mailing list.. > Search for old postings at: http://www.mail-archive.com/accessindia@accessindia.org.in/ To unsubscribe send a message to accessindia-requ...@accessindia.org.in with the subject unsubscribe. To change your subscription to digest mode or make any other changes, please visit the list home page at http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in Disclaimer: 1. Contents of the mails, factual, or otherwise, reflect the thinking of the person sending the mail and AI in no way relates itself to its veracity; 2. AI cannot be held liable for any commission/omission based on the mails sent through this mailing list..
