Edith Lemay, Sebastien Pelletier and their kids Mia, Colin, Laurent
and Leo. Credit: pleinleursyeux/Instagram
https://www.tribuneindia.com/news/trending/canadian-family-goes-on-world-tour-to-make-visual-memories-before-3-out-of-4-children-go-blind-432958
Tribune Web Desk

Chandigarh, September 18

A Canadian family of six has embarked on a world tour to soak in as
many visual memories as possible before three of them go blind.

Parents Edith Lemay and Sebastien Pelletier said their children, Mia,
12, Colin, 7, and Laurent, 5, all have been diagnosed with retinitis
pigmentosa — a genetic disorder that affects the eyes and causes loss
of vision.

Their son, Leo, 9, however, was given the all-clear.

The parents have strode on a mission to make sure that their kids get
to see the world before they lose their vision, which is expected to
hit them around midlife.
There is at present no cure for the disease.

As their eldest prepares for blindness by the time she turns 30, the
family was suggested to make ‘visual memories’ by Mia’s speacialist.

Edith told CNN Travel, “I thought, I’m not going to show her an
elephant in a book, I’m going to take her to see a real elephant.”

“And I’m going to fill her visual memory with the best, most beautiful
images I can,” she added.
“With the diagnosis, we have urgency,” Sebastien said. “There’s great
things to do at home, but there’s nothing better than travelling. Not
only the scenery but also the different cultures and people,” he
added.

The family is on an adventure around the globe and doesn’t wish to
return to their home in Quebec for another six months.



The family embarked on their global trek around eastern Canada in July
2021. In March 2022, they started their international tour in Namibia.
They later went from Mongolia to Indonesia and have a bucket list of
activities to cross off as the kids want to ride horses and drink
juice on a camel.

They keep their friends and fans updated with their travels through
regular updates on Facebook and Instagram.



“We never know what’s going to impress them,” Edith said. “They see
puppies in the street and it’s the best thing in their life,” she
added.
“This trip has opened our eyes to a lot of other things, and we really
want to enjoy what we have and the people that are around us,”
Sebastien said.

While preparing their kids for the life-altering challenges ahead, the
parents remain optimistic that their kids will never go blind.

“Hopefully, science will find a solution,” Sebastien said.


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सहायक/ Assistant
मानव संसाधन प्रबंध विभाग/ Human Resource Management Department
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विस्तार/ Extension: 2232

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