Dear friends As someone said there are people who r suffering from these problems are still hopeful and living with full zeal, there is no doubt in that fact. I am a visually handicapped and one of my brothers is also visually handicapped. In my family, i.e. maternal side, there are many members who r suffering from MD. It is difficult to live with such a problem but they are still giving tough fight to the challenges. I would like to say on this topic that our Hon'ble President should give a kind consideration to the request of the parents and should extend help from the Government side so that the children could get proper healthcare facilities along with education.
Thanks Deepak On 8/12/09, SC Vashishth <subhashvashis...@gmail.com> wrote: > Dear Friends, > > We all know MD is a degenerative condition and gradually the muscle fibres > gets replaced by fatty tissues with no muscular strength left. Its starts > from limbs and gradually moves on the central body organs. > The mental faculties remain intact in MD has not been related to mental > retardation etc. Its only a genetic conditions and often girls are silent > carriers of the condition and boys get affected more. > > However, with regular exercise and balanced diet life span increases and > with support systems it can be sustained for many years. > We have live examples like Mr. Sanjeev Sachdeva who is a person with MD and > has been serving as Class I gazetted officer in Indian Parliament. I have > seen him for past several years, his zeal to social work and community > support has further enhanced and strengthened despite the degenerative > condition. He is currently the director, Sanjeevani - an NGO and working for > national trust in running "Sahyogi Scheme of national Trust." There is also > a Muscular Dystrophy Association in India. > > I feel that Govt. should provide support structures to this family and may > be either support the family with requisite supplements or alternatively > with consent of parents and the children have these children in the state > run institution if the parents are unable to look after and meet their > needs. There is a larger need of social security for such children with > disabilities and all persons with disabilities in distress and in need of > support. Its ignorance and lack of support that parents are seeking mercy > death. No parent would like to see his/her child be killed, even if the > child is disabled. Its only apathy of society, Govt. and lack of support > system that people are forced to think that way. > Also should what right we have to take away a life if we can't give a life > to some one. The incidence is an open slap to the social justice department > of the state who have consistently ignored this family. > regards > SC Vashishth > Advocate-Disability Rights > > > > 2009/8/11 Geetha Shamanna <gee...@millernorbert.de> > >> Hi Vamshi, >> >> Muscular distrophy is not just a disability, it is a terminal and >> degenerative condition which gradually deteriorates until the patient >> finally dies. People with this condition suffer a great deal as it >> worsens. >> It can in no way be compared with blindness, deafness or other such >> disabilities. While considering euthenasia in case of normal disabilities >> should be categorized as outright criminal, terminally ill patients should >> be given the right to decide about their own lives and should be allowed >> to >> die if they wish to. Suffering through such conditions is pointless if >> there >> is no hope in sight. >> >> Geetha >> ----- Original Message ----- >> From: "Vamshi. G" <gvamsh...@gmail.com> >> To: <accessindia@accessindia.org.in> >> Sent: Tuesday, August 11, 2009 9:48 PM >> Subject: Re: [AI] Parents want mercy killing for 4 disabled sons >> >> >> I don't support Euthanisia at any stage. We know many cases where >> more than one child in the family is disabled and still they become >> achievers, for which there is more than one example on our list >> itself. We have even seen persons with multiple disabilities achieve >> great heights of success. So, they should carry on their lives with a >> positive attitude awaiting for some miracle to happen, which is easier >> said than done. >> >> I personally interpret the factors which would have prompted the >> parents to take such a decission in a different way. -- considering >> the attitude of the Indian governments towards the disabled persons in >> our country, the parents would have been frightened about the lives of >> their children in a country like ours. >> >> As far as the president's decission is concerned, I feel she should >> throw the decission about Euthanasia out of the window and think in >> lines of what the government should do for a family like this, >> assuring good medical facilities, education and financial assistance >> for any productive purpose the family undertakes for it's survival. >> The steps taken should be in such a manner that no disabled person in >> India should ever even think in lines of Euthanasia again. >> >> I know most of you would burst into laughter reading my suggestions as >> to what our caring and concerned governments should do for this >> family. They are so busy taking care of the members who support them >> to sustain power till the nest elections. >> >> To quote a small example, the H R A of the members of Andhra Pradesh >> assembly has been raised by just 200% recently and the additional >> conveyance allowance paid to disabled bankers is a mighty sum of 400 >> per month. >> Oh god! how much tax should I have to pay this year as a result of >> this conveyance allowance? >> >> -- >> G. Vamshi >> PH Res : +91 877-2243861 >> Mobile: +91 9949349497 >> E-mail ID: >> gvamsh...@gmail.com >> Skype: gvamshi81 >> >> God helps those who help themselves >> >> >> >> On 8/11/09, Vikas Kapoor <dl.vi...@gmail.com> wrote: >> > Folks, what do you have to say on the article pasted below? >> > >> > Parents want mercy killing for 4 disabled sons >> > >> > IANS 11 August 2009, 01:42pm IST >> > >> > LUCKNOW: A farmer and his wife in Uttar Pradesh have sought President >> > Pratibha Patil's permission for the mercy killing of all their four sons >> > who >> > >> > have turned into virtual vegetables. >> > >> > The four, aged 10 to 16 years, have been afflicted by muscular >> > dystrophy, >> > a >> > genetic disease that has confined them to bed. >> > >> > "My sons cannot stand on their feet. They are unable to move their body >> > below the neck. I see their distress every day. Now when doctors too >> > have >> > lost hope, I want they should die. Death would be the ultimate solution >> > for >> > their suffering," farmer Jeet Narayan of Bashi village of Mirzapur >> > district, >> > some 300 km from Lucknow, has said in his letter to Patil. >> > >> > "My sons are in utter discomfort. I cannot see their helplessness any >> > more. >> > So, we have written to the president that our sons be killed through >> > euthanasia," Narayan's wife Prabhavati said over telephone. >> > >> > Narayan has told his neighbours that he has sold of all his valuables to >> > meet the medical expenses of his sons. >> > >> > "Our financial resources have been exhausted. I even sold off the >> parental >> > land. Moreover, I owe nearly Rs 2 lakh to moneylenders," he said. >> > >> > Prabhavati said muscular dystrophy afflicted her sons when they were >> > five >> > years old. She identified them as Durgesh, 16, Sarvesh, 14, Brijesh, 11, >> > and >> > Suresh, 10. All four were normal children until then. >> > >> > The couple now fears their four-year-old daughter may become disabled >> when >> > she turns five. >> > >> > "Till now our daughter is doing fine but we are quite worried about her. >> > She >> > might meet the same fate like her brothers after a year or so," said >> > Prabhavati. >> > >> > >> http://timesofindia.indiatimes.com/news/city/lucknow/Parents-want-mercy-killing-for-4-disabled-sons/articleshow/4880814.cms >> >> > -- > Warm regards, > > Subhash Chandra Vashishth > Mobile: +91 (11) 9811125521 > Please don't print this e-mail unless you really need to. 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