Hi All,

I too have experienced ssuch incidents where people doubt if I'm
really challenged. And also, I'm not a very good user of the cane.
Anyway what's importaant is that we accept the reality and never
pretend to be normal sighted. I started using the cane when I was
around 18 studying in class 12. I prefer to ask the driver about the
bus # and its route, mostly I get a satisfactory answer from him and
sometimes from the passengers inside. I travel by the normal
first/second class coach in the railway trains coz I'm comfortable
with it, not to hide my disability. One good thing is that I'm able to
restrict loss of vision due to treatment since the age of 2 years, I'm
35 now. My ophthalmo has clarified that the medicines he prescribe are
for retention and not for cure, I follow his instructions strictly and
believe it has helped me. I understand not being able to see something
that could be seen earlier is a painful experience but its really
important for us to be prepared when we know that its ought to happen.
Think of ways to overcome difficulties rather than cripping over
something that's not under our control. Vision loss can happen with
anyone, the difference for us is that we know about it in advance.
Isn't this an advantage and an opportunity for us to prepare for the
future?

Dear friend, don't lose hope - keep your cool and you'd be able to
think of the positive side of the situation. Wish you ALL THE BEST...

On 8/20/12, Shona Man <shonam...@gmail.com> wrote:
> The worldd for me too is a growing dark due to disappearing my center
> vision. I was a person' who was a naughty' kiddy and having amaising
> arrangement of my personal contacts, but everything has been lost on
> the account of my diminishing vision. Many people consider me as a
> sighted person as my eyes do not reflect any sense of blindness by
> looking on them, but there is a dark inside these two little balls. I
> have lost many of my relations because I do not often visit them and
> most of the time confine my self at my resident pllace. But I think a
> lot' if I had been a sighted person' could enjoy every moment of my
> life, as by driving, by making every one pleased by my activities but
> alas! nothing is with me which could me pleased when i have lost my
> sight.
>
>
> On 8/20/12, Geetha Shamanna <geethas2...@gmail.com> wrote:
>> Hi Ekinath,
>>
>> I fully understand your fear of losing the little vision you have,
>> although
>> it is practically of no use. Although I have been nearly blind since
>> birth,
>> the little vision I have had has kept me going. Just being able to see
>> light
>> makes me cheerful as well, especially on sunny days.
>>
>> Did you have your eyes examined for cataract? Doctors recently discovered
>> cataract in both my eyes and operated them. I have been able to see a lot
>> more light ever since.
>>
>> I do not wish to raise hopes -- cataract surgeries don't always result in
>> an
>> improvement in vision. But if you do undergo tests for cataract now or
>> later
>> and if doctors do determine cataract, do have it removed. It might help
>> sometimes.
>>
>> It is important to accept reality otherwise and carry on with life. Try
>> learning to meditate. It is an effective way of grounding oneself in
>> reality.
>> Geetha
>> -----Original Message-----
>> From: accessindia-boun...@accessindia.org.in
>> [mailto:accessindia-boun...@accessindia.org.in] On Behalf Of Ekinath
>> Khedekar
>> Sent: 19 August 2012 07:55
>> To: accessindia
>> Subject: [AI] RP & hopelessness
>>
>> Hi Friends,
>>
>> Today and last night I was a little senti.
>>
>> My right eye in which I have mere light vision has been paining for
>> couple
>> of days and therefore, I visited a specialist.
>>
>> She told me nothing abnormal nieghter pressure not anything to worry but
>> just an usual degeneration of my retina due to RP and recent maleria.
>>
>> So it means I might lose my taken for granted just a light perception.
>>
>> Friends, it struck me hard.
>>
>> I have zero vision in my left eye. And some of you will exactly
>> understand
>> what it means. I mean I shared this with my close friend but she could
>> not
>> appreciate and said "then it will go all dark right?"
>>
>> No sighted person can understand this but totally blind persons.
>>
>> I am very scared to lose this little vision. Practically, this remaining
>> vision is of no use, but I can see light which makes me cheerful. I can
>> make
>> out shadows etc. and appreciate weather.
>>
>> But it might go away and then what will follow is not even darkness, but
>> complete elimination of one of the senses.
>>
>> I will never be able to see again.
>>
>> What frustrates me is that there's no way out or around RP to be able to
>> enjoy the beautiful gift of seeing partially though.
>>
>> So questions for the learned and experienced:
>>
>> 1.   Can I anyhow retain what little I have?
>> 2.   If I lose all my sight will any break through treatment in future
>> can be availed by me because they say at least little vision is must to
>> treat.
>>
>> Last but not the least:
>>
>> I have made up  my mind to enjoy every bit moment that has been given to
>> me
>> before I lose all my sight.
>> I will take lot of leaves and plan more outings so those last moments of
>> light are saved in before it's time for darkness, hmmm, no I don't know
>> how
>> to describe that but it's more horrible than darkness.
>>
>> kindly answer my queries and help me do the best in circumstances.
>>
>> Cheers
>>
>>
>>
>>
>>
>>
>>
>> --
>> "The waves breaking on the surface draw all the attention, but it is the
>> current beneath the water that determines your direction."
>>
>>
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>> http://www.mail-archive.com/accessindia@accessindia.org.in/
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>
>
> --
> LL.M candidate
>  at Faculty of Law in University of Delhi
>
>
> Search for old postings at:
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>
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-- 
Best Regards,
Zujar...

An optimist laughs to forget, whereas a pessimist forgets to laugh!


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