Learning, blood disorders to get disability status

The new draft, once passed, will entitle a thalassaemia patient, for instance, 
to legal rights and benefits similar to those living with blindness or 
locomotor disabilities.

MUMBAI: In a progressive leap for the disability movement in India, a draft 
bill prepared by the ministry of social justice and empowerment has widened its 
definition of disability to give legal recognition to include those living with 
blood disorders (haemophilia and thalassaemia), speech and language disability 
and specific learning disabilities such as dyslexia.
 
The existing Persons with Disabilities (PWD) Act 1995 recognizes only the 
standard seven disabilities. The new draft, once passed, will entitle a 
thalassaemia patient, for instance, to legal rights and benefits similar to 
those living with blindness or locomotor disabilities.
 
The Draft Rights of Persons with Disabilities Bill 2012 was unveiled by the 
ministry in September and the definitional change is in keeping with India's 
ratification of the UN Convention on the Rights of Persons with Disabilities 
which seeks to recognize disability as an evolving concept that is not narrowly 
limited to standalone medical conditions.
 
"Once the act is passed, there will be a procedure for assessment and 
certification of these disabilities," said TD Dhariyal, deputy chief 
commissioner for persons with disabilities under the Union ministry.
 
Groups hail draft
 
The Draft Rights of Persons with Disabilities Bill 2012 offers the most 
comprehensive and inclusive legal definition of disability till date by also 
including categories from another legislation, the National Trust Act, which 
caters specifically to autism, celebral palsy and mental disabilities. It seeks 
to protect disabled persons against discrimination, provide affirmative action 
and penalize and punish offences committed against them.
 
Javed Abidi, founder of the Disability Rights Group, said the proposed changes 
were "very progressive". "It is in our interests that the bill becomes a law at 
the earliest," he said.
 
Many grey areas, however, remain. For instance, the bill entitles those with a 
"benchmark disability" of 40% or more to reservation in jobs and higher 
educational institutions to ensure that government benefits don't go to those 
with minor disabilities at the cost of others. But it is yet to be ascertained 
as to how these benchmarks will be applied for new categories such as 
thalaessemia or learning disabilities.
 
"The 40% standard seems to be a hangover from the earlier versions of the Act 
which covered physical disabilities. How this would apply to thalaessemia, 
haemophilia or mental illness, for that matter, is inexplicable," said Rahul 
Cherian of Inclusive Planet Centre for Disability Law and Policy, Chennai. The 
formulation would have to be re-examined given the widened cover, he said.
 
India had 22 million people with disabilities according to the Census 2001 
which roughly constituted 2% of its population, though the World Health 
Organization pegs the figure at 10%.
 


http://timesofindia.indiatimes.com/india/Learning-blood-disorders-to-get-disability-status/articleshow/16897211.cms

Vikas Kapoor,
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