Friends, Ratheesh here. Monsoon started cool wet evening. Hope you are all doing well. I want to make a request here. Can anyone tell me whether there is any mailing list for Marfan syndrome patients. It is a genetic disorder and I suffer from it. I lost my sight because of it and have cardiac problem too. I am abnormally tall. These are all its manifestation. If there is one mailing list like Access India for the people suffering from Marfan Syndrome, it will be great. Kindly guide me on this. Thank you, Ratheesh Skype- ratheesh.ignou
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